Guest guest Posted April 13, 2005 Report Share Posted April 13, 2005 Hi , I read your latest post. You seem to be getting very little support from your health professionals which must be very frustrating for you. I also received a lot of negative comments from 'professionals' so I understand how annoying it is. To be fair to them, RSS is so rare that they have no knowledge of it.However that is no excuse to throw comments about. I would tell them not to comment on something that they know nothing about and perhaps they should take a bit of time to learn something about it. I pushed to have Blair seen by an experienced doctor and refused to back down until I had a definite diagnosis. The skeletal survey was an X-ray of his skull, spine, legs and arms and was carried out at our local hospital. I cannot help much on the eating issue as Blair has always been a good eater, we are very lucky in that respect. Best wishes xx Quote Link to comment Share on other sites More sharing options...
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