Welcome, !

[Guest guest]

Hi ,

It is great that you are joining this group. There are so many

helpful people on here that have been through so much and are more

than willing to help with any questions you may have.

I have a son, , who is 34 months old. He was born at 34 weeks

weighing 2 lbs. 12 1/2 oz. and 14 1/4 " long. After birth was very

involved and he was hospitalized until he turned three months old.

Then, he weighed 5 lbs. 3 oz. Our story is long, but to make a long

story short, I eventually found this group myself when was 16

months old. By that time, he weighed only 10 lbs. at best. People

on here where very supportive and convinced me to take him to see Dr.

H. There, at 17 months old exactly, he was diagnosed with RSS,

weighing 10 lbs. 10 oz! Anyway, we have come a long way from that

very scary time when I wasn't sure was going to see tomorrow,

but Dr. H got us straigtened out and on track.

Please ask any questions you have. Don't be afraid to ask. This is

where you come to learn, and believe me, you will learn. It sounds

like is doing pretty well. Keep your chin up and and keep

checking in here! )

Take care,

Jodi R.

, 34 months, 22 lbs. today! Prilosec, and still spitting up!

UGH.

>

>

> Hello everyone! My name is and i am new to this support

> group. Here's a quick run down of my story. I am 29 years old and i

> have one son (ryan) who is 14 months old. I carried him full term

> and he was born at 5lbs 8oz, 18 inches long. He didn't/doesn't have

> any major health problems. His pediatrician at birth was worried

> about his weight after he went in for his first few appointments

and

> did not gain weight. He ordered blood test to see how his kidneys

> functioned. They were normal. We then moved to Tijuana, Mexico and

> the first week we were there he had the flu ( was about 8

mos).

> We took him to a well known Dr in Tijuana, and it was there were he

> brought up the fact that he might have RSS. We wanted to make sure

> so we then took him to a pediatrician in Southern California, to

get

> a second opinion, We had no idea what RSS was and wanted to know

ALL

> the details of the genetic syndrome. Our next stop was the

> Geneticist, who confirmed did indeed have RSS. He didn't

really

> get too detailed on RSS (which i thought he could have been more

> informative since we were first time parents, let alone with a son

> who has RSS). So i decided to join this support group in hope to

> compare notes with other parents who are/have been in the same

> situation. now weighs 12lbs, and is 24 inches long.

> Thank you so much for your time (as i will probably have more

> questions to come ;o)...)

> , mother of