Wombat's Surgery

[Guest guest]

Hi All!

Tomorrow (10:30 EST), Connor will have a g-tube put in to assist in

catch up calories at night. Our family would covet any praeyrs or

warm feelings sent his way.

Thank you to all who responded or called me regarding " The ABC's of

a g-tube. " I appreciate the time and effort you put into each post.

The freinds we have made on this list serve and at convention are

what keep my sanity intact when faced with yet another, RSS curve

ball.

I have to admit, two days ago I was getting cold feet regarding his

surgery. I thought that I was yet again, over reacting to his

syndrome. Well, we took him in for another weight in. He's down

another pound to just about 19. As much as I pour into that little

guy, it's just not registering in him. At this point, the

nutritionist want's to get 72 cc's an hour into Connor at night. Is

that realistic? I'm so new at this I simply don't know. The

equivalent would be 3 cans of Pediasure in one night. Presently, he

takes 3 cans over a 24 hour period plus his oral feeds. He's on a

vanilla pudding kick right now and I've been adding a teaspoon of

flax seed oil to boost calories. As more teeth come in, the

malocclusion of the jaw becomes more of a problem. It's just to

painful for him to chew. So, when do we take him to see the

Orthofacial specialist? Can you do anything with the jaw when they

are this young?

Ugh. I need to go pack. All the Teletubbies will be assisting us

in the hospital and God help me if I forget Barney!!!!

Mom to Graham 8 ADD; Cameron 5; Connor IUGR RSS Kyphosis G-Tube

Periactin, Prevacid, Zantac, GH in two weeks.