Re: Hello from New Zealand

[Guest guest]

Welcome ,

My name is and I have two daughters, 5

and Kelli 2 1/2. was diagnosed with RSS at 3

3/4 by a genenticist and confirmed by a local endo.

However, the end of January we met Dr. H (the expert

in RSS) who says she does not diagnosis RSS but rather

growth failure. Our treatment is the same and

currently we are tracking 's height and weight

now with Dr. H. at her visit with Dr. was 30.2

pounds and not quite 38 inches tall.

You say you have an accent. Where are you from?

You have found a great support group with great

knowledge and caring. It's a big family here of

people who are there for your ups and downs and with

great advice. That's why I haven't left the group.

B

5 and Kelli 2 1/2

--- Macpherson wrote:

>

>

> Hello everyone , just wanted to say hi and introduce

> myself. My son

> Rhys and I are coming to Chicago in july for the

> Magic Convention.

> Rhys is 6 years old and weights 15kgs, not sure what

> that is in

> pounds.He is 109 cm tall and very much a boy. I am

> looking forward

> to maybe meeting some of you if you are at the

> convention, please

> say hello, I will be the one with the accent!

> bye

>

>

>

>

>

>

>

>

__________________________________________________

[Guest guest]

hi megan!!

look forward to meeting you and you son this summer at convention!!

i will be the tall blonde pulling her hair out with the 3 blonde

boys ages nicholas 7 nonrss, christopher 4 rss, and johnathon will

be 2 in june!!! oh yeah i will also have my hubby and my mom in

tow!!!LOL!!! really i look forward to meeting you we will be

arriving on mon. sometime!!

jodie c

>

>

> Hello everyone , just wanted to say hi and introduce myself. My

son

> Rhys and I are coming to Chicago in july for the Magic Convention.

> Rhys is 6 years old and weights 15kgs, not sure what that is in

> pounds.He is 109 cm tall and very much a boy. I am looking forward

> to maybe meeting some of you if you are at the convention, please

> say hello, I will be the one with the accent!

> bye

>

[Guest guest]

Hi !!

Welcome to the RSS list serve. I don't know if you chat with Forsythe

often, but if you do, tell her Pat, 's g-ma says hello!

My daughter, Kaity, and I will be attending the convention again this year,

so I hope we get to meet. My grandson, , has RSS. He's 3 yrs 2 months

of age, and his stats are at the bottom in my signature.

Rhys would measure approximately 40 inches and weighs about 33# if that

helps! LOL

Again, welcome! You've found a great bunch of friends!!

Pat (g-ma to , RSS, 3 yrs old, 23.5# (10.7kg), 32.8 " (83.3cm),

G-Tube)

[Guest guest]

Hey, , if you really want to make friends with the MAGIC

people, bring along some TimTams for them. They are the best and we

can't get them here, in the US. Forsyth taught me the TimTam

implosion. Wow!

Jodi Z

[Guest guest]

Hi !

I'm a too (so rare to find one that spells the same!). Look

forward to meeting you - I'll be there with my 2 year old daughter

Emerence. My son is 5 and will be at home. Last year was

my first year and it was great! You will be overwhelmed with how

much you learn!

, mom to , 5 and Emerence 2, SGA 31 " 19lb 4 oz.

>

>

> Hello everyone , just wanted to say hi and introduce myself. My son

> Rhys and I are coming to Chicago in july for the Magic Convention.

> Rhys is 6 years old and weights 15kgs, not sure what that is in

> pounds.He is 109 cm tall and very much a boy. I am looking forward

> to maybe meeting some of you if you are at the convention, please

> say hello, I will be the one with the accent!

> bye

>