Guest guest Posted October 29, 2009 Report Share Posted October 29, 2009 Yesterday, I had an emal from my friend Congressman Mike Michaud on H.R. 1079, the Pulmonary Fibrosis Enhancement Act, telling me that he supports this bill. The bill will create a patient registry, Federal money for research, helping to identify treatments and a cure. Today I received an email from the Coalition for Pulmonary Fibrosis stating that they have 60 members of Congress supporting this bill, but need 40 more in order to get a Congressional hearing on PF. This bill will be milestone for us on this board and all those who will follow us. The Coalition is asking all of us and our friends and family to call now to urge our Congressmen to support this bill You can do this be calling (the Capitol Switchboard) and ask for the Health Legislative Assistance. If you leave a voice mail message, include your name and phone number so that they can call you back. Sample phone message: "I am a pulmonary fibrosis (patient, family member of patient, caregiver) in (your town). I am calling to urge Rep. ______________(your Congressman) to support pulmonary fibrosis patients by supporting the Pulmonary Fibrosis Enhancement Act. This critically important legislation will create a much-needed patient registry and will finally move research forward in PF, helping identify treatments and a cure. Please support patients and families by supporting H. R. 1079." This will take only a few minutes, but just think, if we work collectively in supporting and getting passage of H. R. 1079, we not only help ourselves, but all those out there who have PF and those yet to come. If we don't help ourselves, nobody will. Please call today. PS I will know who calls and who doesn't and those who don't won't get a Christmas gift this year. Such are my powers. Jack79/IPF - UIP/dx06/05 Maine Quote Link to comment Share on other sites More sharing options...
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