Guest guest Posted March 31, 2005 Report Share Posted March 31, 2005 Hi Jodi I am writing to say went went almost the same route since my daughter was told to have skeletal dysplasia (typical dwarfism) prenatally, and aafter birth I joined LP support group for children.When the geneticist (3 of them) could not offer a diangosis but named all kids of syndromes as a possibility (RSS seems as common as blue eyes compared to some of them) we went to see Dr all the way from texas because from that group I learned he is a leading dwarfism expert. Dr said no to all of them including RSS, but he did say she did not have a skeletal dysplasia, which helped with our decision to Start GH. Although we have not seen Dr H, I felt very comfortable with his diagnosis (or lack thereoff). Sabina mother of Naomi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2005 Report Share Posted March 31, 2005 Isn't Dr. just wonderful? I remember him as being so attentive and compassionate. We don't see him anymore, but I recall him in a very favorable way. Jodi Z Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2005 Report Share Posted March 31, 2005 He sure is. He is not semi-retired. He spent three whole hours with us and wrote a six page very detailed report within a week. His entire staff are awesome, they (including an orthopaedic surgeon there) reviewed all her xrays, MRIs and medical record on their own time (and dime I guess) months before we ever deciced about visiting in person. Sabina > > Isn't Dr. just wonderful? I remember him as being so attentive > and compassionate. We don't see him anymore, but I recall him in a > very favorable way. > > Jodi Z Quote Link to comment Share on other sites More sharing options...
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