Grass roots pulmo doc proposal

[Guest guest]

Dear Group,

A few weeks ago we were struggling with people getting the correct diagnosis for IPF and other ILDs. We don't have the money or resources to fund a campaign to the Pulnonologists of their country or any other. So, I started thinking , (smell the smoke?) maybe we could start a grass roots campaign for each of us to give the Pulmo docs in our area some information.

I'm sure that not all of you will agree or want to take the time and/or spend the money to do this. What I would like is a discussion of this idea. I've also written a draft letter that if we do want to do this we would polish the letter and send it out.

I've checked the phone book and on line for Pulmo docs in the three cities that I'm in or on either side of me. it adds up to approx. 27 docs. if I mailed a letter to each, that's about $11.50 in postage plus the paper and envelopes.

Not all of these doctors will read the letter, some may not even get it if their staff reads it first. It might take several mailings over time to get to them. Obviously, it doesn't even apply to some docs.

So, let us have a discussion to see what we think about this.

I'd also in the future I'd like us to contact the medical reporters at our local TV stations and newspapers. We could meet with them, after some prep, and educate them on the disease and the issues we have. I'll bet that they would jump at the chance for a story. This would raise the awareness of our situation.

This way we are working on two major issues that impact us tremendously.

Best regards,

Terre, IPF 6-08

I have attached the draft letter as a pdf and a word doc

Best regards,

Terre

2 of 2 File(s)

Pulmo doc ltr.pdf

Pulmo doc ltr 2.doc