Update on Mathieu

[Guest guest]

Hey all,

It has been along time since I have posted. After a long battle

trying to determine if Mathieu was suffering from Crohn's

Inflammatory Bowel Disease, they discovered when they did immune

levels again that his IgG and IgA were low, particularily the IgG

was significantly low.

We will be seeing an immunologist in May for the 3rd time since he

was 5 months old....It has been a long going thing.

I will keep you all posted. We have been dealing with alot of

illness here with him, so hopefully they can figuyre out which

Primary immune deficicency he has so they can start him on a

treatment plan.

I am keepng a coninual fever chart, (he fevers everday righ now,

which is an increase from 20 out of 30 days he used to have) he has

had two episodesof conjuctivitis in the past 2 months, very bad

cases, and he now has a sinus infection. He has had three seriously

high fevers since January, so I am glad we know where we are going

to hopefully get help for him. They missed the diagnosis the first

time because my breastmilk when the blood was taken at 12 months was

masking the levels to look normal, and back then he really wasn't

terribly ill because my antibodies helped him in fighting infections.

Thanks for letting me hang here even though he didn't have

RSS.

Jay

Mom to

Mathieu 27 months 24 pounds 31 inches Low IgG and IgA

levels..unknown illness as of now, but something in the Primary

immune deficiency family.