Hello everyone

[Guest guest]

Hello everyone! My name is and i am new to this support

group. Here's a quick run down of my story. I am 29 years old and i

have one son (ryan) who is 14 months old. I carried him full term

and he was born at 5lbs 8oz, 18 inches long. He didn't/doesn't have

any major health problems. His pediatrician at birth was worried

about his weight after he went in for his first few appointments and

did not gain weight. He ordered blood test to see how his kidneys

functioned. They were normal. We then moved to Tijuana, Mexico and

the first week we were there he had the flu ( was about 8 mos).

We took him to a well known Dr in Tijuana, and it was there were he

brought up the fact that he might have RSS. We wanted to make sure

so we then took him to a pediatrician in Southern California, to get

a second opinion, We had no idea what RSS was and wanted to know ALL

the details of the genetic syndrome. Our next stop was the

Geneticist, who confirmed did indeed have RSS. He didn't really

get too detailed on RSS (which i thought he could have been more

informative since we were first time parents, let alone with a son

who has RSS). So i decided to join this support group in hope to

compare notes with other parents who are/have been in the same

situation. now weighs 12lbs, and is 24 inches long.

Thank you so much for your time (as i will probably have more

questions to come ;o)...)

, mother of