Guest guest Posted March 16, 2005 Report Share Posted March 16, 2005 Hi Guys, Has any of your wonderful RSS kids had any liver issues? I have read most of the articles out there on RSS (courtesy of Magic) and have not noted liver involvement within the syndrome. Last April, Dr Harbison ordered blood tests which showed Jillie had abnormal liver function tests. She had a multitude of non invasive tests and had her prilosec switched to zantac (ocassional side effect of prilosec is liver inflammation which goes away when discontinued). Her LFT's remained the same. Last month she had a liver biopsy and today her GI doc called to tell me the results are clearly abnormal but very confusing. He is meeting with a pathologist and a liver expert on Monday to discuss her biopsy. Of course being a NICU nurse, I'm fast forwarding to a possible liver transplant! I thought I was stressed with sending her to school in 2 months (even though she will be going with a nurse) but this is freaking me out. Has anyone out there had a similar experience?? (Mom to Ethan age 6 and Jillie age 2.75+, RSS) Quote Link to comment Share on other sites More sharing options...
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