Re: VATS at U of Miami-dave

[Guest guest]

Hi Dave,

I got my results today from Dr. Glassberg. It's what they thought all along.

IPF. She said we'd meet in a couple of weeks and discuss options for treatment.

Terre, IPF 6-08, FL

> > >

> > > First I'd like to thank the well wishers about my VATS procedure. Mike, I

wanted to get back to you about how things went for me.

> > > They cahnged the arrival time to 5:30 vs 5 am. I was sent to pre-op after

registering. I talked with many people on the sugery team. Possibly 10 or more.

The anesthesia doctor wanted to use a new procedure on me that acts like an

epidural for child birth. But, it was higher up around the lungs. She explained

that it would be 4 shots next to my spine starting at the base of my neck and

going down along the spine to the bottom of the lungs. This would be in addition

to the general anesthesia. I agreed to the block.

> > > I left the prep room at 7:32 for the 7:30 surgery. I remember going into

the room but the next thing is waking up in recovery at 9:30 am.

> > > Dr. Nguyen had said that I would go to ICU after the surgery because he

wanted to be able to use all of his resources.

> > > However, they took me upstairs to a medical floor. Where I didn't get my

drainage tube hooked up for an hour or anything else either. My wife who is a

nurse went into action at that time. I'd go to ICU if I had it to do over again.

It's good to have an advocate with you if you can because you are too out of it

to know or care what's going on.

> > > Later that day near 4 pm, Dr, Nguyen came up to assess me. He didn't know

why I was upstairs either. I think it was because I talked to Dr. Glassberg

about helping with fund raising (volunteering) and maybe they thought I was

going to donate a lot of money. hahahahaha. The floor was a penthouse room for

just one person. Go to ICU.

> > > My drainage was good. I had a lot of pain in my shoulder joint and my

shoulder blade. When he took out the drainage tube it all went away. I stayed

over Friday night and was discahrged around 9:30 am Saturday.

> > > I was back at the house by noon saturday.

> > > I felt good most of saturday until that evening I had some pizza and

resumed my normal meds. I forgot the lactase enzyme for the cheese on the pizza.

I took two Motrin for pain. I took two more later on.

> > > That evening I went to bed but started getting stomach cramps. I could not

have a bowel movement. All of Fridays food and saturdays was still there. My

wife thought I was having a heart attack as my blood pressure dropped and I was

sweating and pale. So, the paramedics were called and I spent Sat. night in the

local ER. They really couldn't find anything but guessed my digestive system

hadn't restarted after all of the anestegia.

> > > Got out Sat evening during the Dolphins debacle. Today I'm up and around

and feeling pretty good. I've eaten regular food today and washed up. I've

gotten a back spasm when I breathe from laying around

> > > but Aleve seems to be helping. It was probably from watching the Dolphins

from bed. Other than that the pain is quite manageable and I'm breathing OK. I

use the spirometer they gave me to excercise my lungs.

> > > Probably too much detail but I wanted you to know what some of the

problems can be. I'll probaly go back to work Wed.

> > > The best of luck to you Mike. If you have any questions, please let me

know.

> > > I'll see Dr. Nguyen in a week from today. Takes about a week for the

report. I do know that I have scarring and he said he got two good samples.

> > > All the best,

> > > Terre

> > >

> >

>

[Guest guest]

Dot...speaking of constipation, or even impaction, as in my case, dodo do (lol, no pun intended!) get Miralax. It's OTC and an absolute miracle for anyone with these problems. It can be used indefinitely, per my pcp and has no side effects.

MamaSher; 71, IPF 3-2006, OR.Don't fret about tomorrow, God is already there!

Re: VATS at U of MiamiTo: Breathe-Support Date: Tuesday, October 27, 2009, 2:27 PM

Terre,I am glad everything went ok for you, considering some of the posts on here. I am courious as to why you needed an epidural when you are getting general anesthesia. I though an epidoral was only used if you are going to be awake for the procedure. Please let me know. Should I make sure I have a bowel movement before I leave the hospital? So you did not have a pathalogist next door to look at the sample? Dr. Nguyen said that a pathologist would be in the room next door to make sure that he got a saple of tissue that was diseased and would be able to give me some sort of preliminary findings after the procedure. I spoke to at Dr. Nguyen office today and I mentioned that we talked on the internet. She said I was having my procedure at Memorial and that you had had yours at different hospital. What's up with that? I will make sure I get put in the ICU. Hope you are feeling good today. Was it hard to breathe after the operation? Thanks for all the feedback. Dave>> First I'd like to thank the well wishers about my VATS procedure. Mike, I wanted to get back to you about how things went for me.> They cahnged the arrival time to 5:30 vs 5 am. I was sent to pre-op after registering. I talked with many people on the sugery team. Possibly 10 or more. The anesthesia doctor wanted to use a new procedure on me that acts like an epidural for child birth. But, it was higher up around the lungs. She explained that it would be 4 shots next to my spine starting at the base of my neck and going down along the spine to the bottom of the lungs. This would be in addition to the general anesthesia. I agreed to the block.> I left the prep room at 7:32 for the 7:30 surgery. I remember going into the room but the next thing is waking up in recovery at 9:30 am.> Dr. Nguyen had said that I would go to ICU after the surgery because he wanted to be able to use all of his resources.> However, they took me upstairs to a medical floor. Where I didn't get my drainage tube hooked up for an hour or anything else either. My wife who is a nurse went into action at that time. I'd go to ICU if I had it to do over again. It's good to have an advocate with you if you can because you are too out of it to know or care what's going on.> Later that day near 4 pm, Dr, Nguyen came up to assess me. He didn't know why I was upstairs either. I think it was because I talked to Dr. Glassberg about helping with fund raising (volunteering) and maybe they thought I was going to donate a lot of money. hahahahaha. The floor was a penthouse room for just one person. Go to ICU.> My drainage was good. I had a lot of pain in my shoulder joint and my shoulder blade. When he took out the drainage tube it all went away. I stayed over Friday night and was discahrged around 9:30 am Saturday.> I was back at the house by noon saturday.> I felt good most of saturday until that evening I had some pizza and resumed my normal meds. I forgot the lactase enzyme for the cheese on the pizza. I took two Motrin for pain. I took two more later on.> That evening I went to bed but started getting stomach cramps. I could not have a bowel movement. All of Fridays food and saturdays was still there. My wife thought I was having a heart attack as my blood pressure dropped and I was sweating and pale. So, the paramedics were called and I spent Sat. night in the local ER. They really couldn't find anything but guessed my digestive system hadn't restarted after all of the anestegia.> Got out Sat evening during the Dolphins debacle. Today I'm up and around and feeling pretty good. I've eaten regular food today and washed up. I've gotten a back spasm when I breathe from laying around> but Aleve seems to be helping. It was probably from watching the Dolphins from bed. Other than that the pain is quite manageable and I'm breathing OK. I use the spirometer they gave me to excercise my lungs.> Probably too much detail but I wanted you to know what some of the problems can be. I'll probaly go back to work Wed.> The best of luck to you Mike. If you have any questions, please let me know.> I'll see Dr. Nguyen in a week from today. Takes about a week for the report. I do know that I have scarring and he said he got two good samples.> All the best,> Terre>

[Guest guest]

Terre,

Sorry to hear that, I am not that up to speed on all the different kinds of

Fibrosis, IPF means that they " just dont know how you got it " ? Does it make a

difference in the treatment? Dave

> > > >

> > > > First I'd like to thank the well wishers about my VATS procedure. Mike,

I wanted to get back to you about how things went for me.

> > > > They cahnged the arrival time to 5:30 vs 5 am. I was sent to pre-op

after registering. I talked with many people on the sugery team. Possibly 10 or

more. The anesthesia doctor wanted to use a new procedure on me that acts like

an epidural for child birth. But, it was higher up around the lungs. She

explained that it would be 4 shots next to my spine starting at the base of my

neck and going down along the spine to the bottom of the lungs. This would be in

addition to the general anesthesia. I agreed to the block.

> > > > I left the prep room at 7:32 for the 7:30 surgery. I remember going into

the room but the next thing is waking up in recovery at 9:30 am.

> > > > Dr. Nguyen had said that I would go to ICU after the surgery because he

wanted to be able to use all of his resources.

> > > > However, they took me upstairs to a medical floor. Where I didn't get my

drainage tube hooked up for an hour or anything else either. My wife who is a

nurse went into action at that time. I'd go to ICU if I had it to do over again.

It's good to have an advocate with you if you can because you are too out of it

to know or care what's going on.

> > > > Later that day near 4 pm, Dr, Nguyen came up to assess me. He didn't

know why I was upstairs either. I think it was because I talked to Dr. Glassberg

about helping with fund raising (volunteering) and maybe they thought I was

going to donate a lot of money. hahahahaha. The floor was a penthouse room for

just one person. Go to ICU.

> > > > My drainage was good. I had a lot of pain in my shoulder joint and my

shoulder blade. When he took out the drainage tube it all went away. I stayed

over Friday night and was discahrged around 9:30 am Saturday.

> > > > I was back at the house by noon saturday.

> > > > I felt good most of saturday until that evening I had some pizza and

resumed my normal meds. I forgot the lactase enzyme for the cheese on the pizza.

I took two Motrin for pain. I took two more later on.

> > > > That evening I went to bed but started getting stomach cramps. I could

not have a bowel movement. All of Fridays food and saturdays was still there. My

wife thought I was having a heart attack as my blood pressure dropped and I was

sweating and pale. So, the paramedics were called and I spent Sat. night in the

local ER. They really couldn't find anything but guessed my digestive system

hadn't restarted after all of the anestegia.

> > > > Got out Sat evening during the Dolphins debacle. Today I'm up and around

and feeling pretty good. I've eaten regular food today and washed up. I've

gotten a back spasm when I breathe from laying around

> > > > but Aleve seems to be helping. It was probably from watching the

Dolphins from bed. Other than that the pain is quite manageable and I'm

breathing OK. I use the spirometer they gave me to excercise my lungs.

> > > > Probably too much detail but I wanted you to know what some of the

problems can be. I'll probaly go back to work Wed.

> > > > The best of luck to you Mike. If you have any questions, please let me

know.

> > > > I'll see Dr. Nguyen in a week from today. Takes about a week for the

report. I do know that I have scarring and he said he got two good samples.

> > > > All the best,

> > > > Terre

> > > >

> > >

> >

>

[Guest guest]

Thanks for the info Bruce

> > > > > > >

> > > > > > > First I'd like to thank the well wishers about my VATS

> procedure. Mike, I wanted to get back to you about how things went for

> me.

> > > > > > > They cahnged the arrival time to 5:30 vs 5 am. I was sent to

> pre-op after registering. I talked with many people on the sugery team.

> Possibly 10 or more. The anesthesia doctor wanted to use a new procedure

> on me that acts like an epidural for child birth. But, it was higher up

> around the lungs. She explained that it would be 4 shots next to my

> spine starting at the base of my neck and going down along the spine to

> the bottom of the lungs. This would be in addition to the general

> anesthesia. I agreed to the block.

> > > > > > > I left the prep room at 7:32 for the 7:30 surgery. I

> remember going into the room but the next thing is waking up in recovery

> at 9:30 am.

> > > > > > > Dr. Nguyen had said that I would go to ICU after the surgery

> because he wanted to be able to use all of his resources.

> > > > > > > However, they took me upstairs to a medical floor. Where I

> didn't get my drainage tube hooked up for an hour or anything else

> either. My wife who is a nurse went into action at that time. I'd go to

> ICU if I had it to do over again. It's good to have an advocate with you

> if you can because you are too out of it to know or care what's going

> on.

> > > > > > > Later that day near 4 pm, Dr, Nguyen came up to assess me.

> He didn't know why I was upstairs either. I think it was because I

> talked to Dr. Glassberg about helping with fund raising (volunteering)

> and maybe they thought I was going to donate a lot of money. hahahahaha.

> The floor was a penthouse room for just one person. Go to ICU.

> > > > > > > My drainage was good. I had a lot of pain in my shoulder

> joint and my shoulder blade. When he took out the drainage tube it all

> went away. I stayed over Friday night and was discahrged around 9:30 am

> Saturday.

> > > > > > > I was back at the house by noon saturday.

> > > > > > > I felt good most of saturday until that evening I had some

> pizza and resumed my normal meds. I forgot the lactase enzyme for the

> cheese on the pizza. I took two Motrin for pain. I took two more later

> on.

> > > > > > > That evening I went to bed but started getting stomach

> cramps. I could not have a bowel movement. All of Fridays food and

> saturdays was still there. My wife thought I was having a heart attack

> as my blood pressure dropped and I was sweating and pale. So, the

> paramedics were called and I spent Sat. night in the local ER. They

> really couldn't find anything but guessed my digestive system hadn't

> restarted after all of the anestegia.

> > > > > > > Got out Sat evening during the Dolphins debacle. Today I'm

> up and around and feeling pretty good. I've eaten regular food today and

> washed up. I've gotten a back spasm when I breathe from laying around

> > > > > > > but Aleve seems to be helping. It was probably from watching

> the Dolphins from bed. Other than that the pain is quite manageable and

> I'm breathing OK. I use the spirometer they gave me to excercise my

> lungs.

> > > > > > > Probably too much detail but I wanted you to know what some

> of the problems can be. I'll probaly go back to work Wed.

> > > > > > > The best of luck to you Mike. If you have any questions,

> please let me know.

> > > > > > > I'll see Dr. Nguyen in a week from today. Takes about a week

> for the report. I do know that I have scarring and he said he got two

> good samples.

> > > > > > > All the best,

> > > > > > > Terre

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

>