Guest guest Posted May 12, 2005 Report Share Posted May 12, 2005 Hi Jen WOW !!! You guys deserve a sleep in ! just reading that email, makes me realise we have a long way to go. How lucky is Lindsey (and the rest of us) that you are so ready for the next stage. I need to read heaps more and keep Liams records up to date. Take care Jody > We left Los Angeles at 1:30pm on Wednesday; arrived at 10pm New York > City; by 11pm we're at the hotel and in bed asleep by midnight. > Wake up by 9am, appt at 11am. Walk over there on time, and since > Dr. H doesn't normally see patients that day (she had to cancel an > earlier appt for us) she saw us by 11:30am! SHOCK! The appt still > lasted 1 1/2 hours (even after 4 1/2 years....) but we were done by > 1pm or so. We got a picnic in Central Park, then took the subway to > Toys R Us at Times Square. Long rush hour cab to the airport, on > the plane by 6pm, sat on the runway for 90 minutes; then a 6 hour > flight home, and back to our house by 10:30pm Thursday. We will > NEVER do that again.... > > 's growth velocity has definitely flattened out after 4 1/2 > years on GH -- she is traveling along her own curves at about the > 65th percentile in height and 25th in weight. She actually thought > 's weight for height was at her best ever, so that made me > happy. > > Blood tests show that is in complete adrenarche, although no > body odor or pubic hair, she does have oily hair and some forehead > pimples. The blood test is called the DHEA. Her levels for years > were between 60-70; last year were 170 or so, and this year is 320. > > Furthermore, in the last 1.65 years of chronological age, 's > bone age has advanced 2.77 years!!! She has lost all her delay in > bone age and her bone age is now 6 months PAST her chronological age. > > As I have written before, Steve and I spent 2 months researching > aromatase inhibitors, as Dr. H wanted her to start on Arimidex. We > are starting Arimidex to halt the production of estrogen. Crossing > our fingers that it will slow the bone age down; otherwise, > is on track to lose most if not all of the height gain she has made > on growth hormone. > > Other than that, is doing well, as is Dr. Harbison. That's > it for now. I can't wait for all of you to see at the > convention. She truly has grown up. She gets herself up every > morning (before me) with an alarm clock, she gets dressed, and comes > downstairs and I find her making her oatmeal in the microwave. > > One note, for those of you using Periactin. For the last month, > has been SOO emotional. We chalked it up to the > adrenarche. However, we suddenly realized that we also made a huge > jump in her morning Periactin.... and we remembered how she used to > get tantrums when we did that when she was 5. So we dropped the > Periactin morning dose back down, and the tantrums have gone mostly > away.... > > Jenn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2005 Report Share Posted May 12, 2005 Wow you did not stay very long in NY. Glad to here everything is good. Can't wait to meet . And very anxious to see Dr.H. Forgot to post - 's Dr. H visit We left Los Angeles at 1:30pm on Wednesday; arrived at 10pm New York City; by 11pm we're at the hotel and in bed asleep by midnight. Wake up by 9am, appt at 11am. Walk over there on time, and since Dr. H doesn't normally see patients that day (she had to cancel an earlier appt for us) she saw us by 11:30am! SHOCK! The appt still lasted 1 1/2 hours (even after 4 1/2 years....) but we were done by 1pm or so. We got a picnic in Central Park, then took the subway to Toys R Us at Times Square. Long rush hour cab to the airport, on the plane by 6pm, sat on the runway for 90 minutes; then a 6 hour flight home, and back to our house by 10:30pm Thursday. We will NEVER do that again.... 's growth velocity has definitely flattened out after 4 1/2 years on GH -- she is traveling along her own curves at about the 65th percentile in height and 25th in weight. She actually thought 's weight for height was at her best ever, so that made me happy. Blood tests show that is in complete adrenarche, although no body odor or pubic hair, she does have oily hair and some forehead pimples. The blood test is called the DHEA. Her levels for years were between 60-70; last year were 170 or so, and this year is 320. Furthermore, in the last 1.65 years of chronological age, 's bone age has advanced 2.77 years!!! She has lost all her delay in bone age and her bone age is now 6 months PAST her chronological age. As I have written before, Steve and I spent 2 months researching aromatase inhibitors, as Dr. H wanted her to start on Arimidex. We are starting Arimidex to halt the production of estrogen. Crossing our fingers that it will slow the bone age down; otherwise, is on track to lose most if not all of the height gain she has made on growth hormone. Other than that, is doing well, as is Dr. Harbison. That's it for now. I can't wait for all of you to see at the convention. She truly has grown up. She gets herself up every morning (before me) with an alarm clock, she gets dressed, and comes downstairs and I find her making her oatmeal in the microwave. One note, for those of you using Periactin. For the last month, has been SOO emotional. We chalked it up to the adrenarche. However, we suddenly realized that we also made a huge jump in her morning Periactin.... and we remembered how she used to get tantrums when we did that when she was 5. So we dropped the Periactin morning dose back down, and the tantrums have gone mostly away.... Jenn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2005 Report Share Posted May 13, 2005 hey jenn!! wow!! talk about a busy 2 days!!! i hope taking the new med works for lindsay!! and i know what you mean about the periactin, dr h just upped christopher's and he has been moodier on some days!! but he has been eating more as well so i guess i have to take the bad with the good!! LOL!! cant wait to see you guys at convention!! jodie c Quote Link to comment Share on other sites More sharing options...
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