Re: Relin : Have to get colon fully removed in next few weeks

[Guest guest]

Mark,"so will use 2 litres (quarts) of cream like you said to get that extra

calories. So i should use twice the amount of yogurt starter than i

usually would"Oops!, that is incorrect. My bad! One is to actually quadruple it according to the recipe that is in BTVC listed as French Cream, at the bottom of page 158. In the recipe is says to use 1/2 cup commercial yogurt for each 2 cups of cream (about 1/2 of a quart/litre). Happy eating!Amelia To: BTVC-SCD Sent: Mon, May 24, 2010 2:08:58 PMSubject: Re:

Relin : Have to get colon fully removed in next few weeks

Hi Amelia,

Ye i can avoid eggs and have something different for breakfast, I have coconut oil i got some today so will use that in my smoothies, as for the yoghurt im making a batch today so will use 2 litres (quarts) of cream like you said to get that extra calories. So i should use twice the amount of yogurt starter than i usually would and i will also cook some apples tonight too.

Thanks for the help, Mark

From: Amelia Bhide <bhide_thehague@ yahoo.com>To: BTVC-SCD@yahoogroup s.comSent: Mon, May 24, 2010 1:53:36 PMSubject: Re: Relin : Have to get colon fully removed in next few weeks

Mark,If you still have brisk diarrhea, you should be avoiding eggs. Otherwise it sounds like you are getting a good amount of protein and fat to put on weight. Have you tried coconut oil? That and butter put into smoothies will really pack in the fat calories. Also, if you tolerate cooked apples, you can cook them, chill them, and add them to your smoothies as well. They are also good cooked with butter and coconut oil -- no added water -- Yum! If you are making yogurt, you should try making it with cream instead of milk (need to double the starter though) and it will make a lovely very fattening cream yogurt. You can also whip it like regular cream and use it as a topping onto your cooked fruit or bananas.Hope this helps. Amelia

From: mark lambert <lambo042002@ yahoo.com>To: BTVC-SCD@yahoogroup s.comSent: Mon, May 24, 2010 11:06:23 AMSubject: Re: Relin : Have to get colon fully removed in next few weeks

Hi Marilyn,

Thanks for your help i greatly appreciate it, I'm really not sure what's best to do to get myself in the best shape possible for this surgery they are taking the whole colon and rectum out as they are where my disease is active luckily enough my small bowel is fine. But il be on a stoma bag for life as there is no cahance of reattachment.

I get so mixed up with this diet and only add more stress to myself making me worse plus i was told on LDN groups that i should stop takin LDN before surgerey coz pain meds wont work! (news to me).

Since im only stage 1 still and still have the diorreha im always confused on what and waht not i should eat. Your right about vitiman c and i would juice some oranges but afraid it will make my D worse, so i only juice grapes and apples. I have Freeda Multi Vits (3 a day) and Freeda calcium (5 per day) too so should i take the full amount of them each day or is there some scd legal vit c i can get?

As i need to get my weight up for this surgerey to avoid complications (im only 6 & half stone) do you reccommend i eat all scd foods even if there stage 2,3,4 etc. Im soo worried bout my low weight im even considering taking the fresubin drinks again which my dietition had me on, there high calorie drinks but with illegals, But then again maybe my yoghurt (which i make with cream and milk) smoothies with bannana,honey, vanilla, butter and raw egg will be good enough for getting the calories up, I also have cream cheese ( made from straining my yogurt) on my sandwich bread topped with chedder cheese each day, i bought avacados too and eat meat each day with purred carrots for dinner, maybe i should add more cooked vegetables to my dinners? As for breakfast il eat scrambled eggs with chedder cheese and butter as a mix, or else tinned tuna or mackeral in sunflour oil. Is there anything else you suggest i do or dont do...

By the way my stoma nurse said i will be on a feed after surgery and could be in hospital for 2 weeks depending on recovery, she also said that when i go back to eating i need to drink loads of water i think 4 litres per day and that i can never eat nuts or mushrooms?? which had me thinking how would i do SCD...

Thank you so much for the help, id be lost without the help

Mark

Prednisilone ( started 40 mg 19th April 2010, now on 25 mg tabs decreasing by 5mg each week)

LDN (Started 3mg tabs may 1st 2010, due to increase to 4.5 mg tabs after 1 month)

Freeda Multi vit tabs

Freeda Calcium tabs

Diognosed with chrons/UC 1998

Started SCD bout a month ago

From: Wizop Marilyn L. Alm <LouisianaSCDLagniap pe (AT) gmail (DOT) com>To: BTVC-SCD@yahoogroup s.comSent: Mon, May 24, 2010 12:50:30 AMSubject: Re: Re: Have to get colon fully removed in next few weeks

Mark,I'm genuinely sorry to hear that you need to have this permanently life-changing surgery. I've been there, two years ago, for cancer surgery -- had a complete hysterectomy, removal of ovaries and Fallopian tubes, as well as removal of lymph nodes for tests to see if the cancer had spread. I was scared witless because one of the first places cancer spreads from the uterus is to the colon, and they'd told me that if it had spread, they'd be taking my colon, too.Please stay with SCD up to your surgery. The nutrition will help. I also recommend a good multivitamin, as well as as much Vitamin C as you can tolerate. It makes a major difference in how you heal.You CAN stay on SCD while you are in the hospital. If you are not equal to the amount of cooking necessary for this, find someone who is willing to cook food, put it up for you, and bring it to the hospital for you. You might ask your doctor what your food

regimen will be after the surgery. It may well start with clear liquids, progress to thick liquids, then to soft foods, and finally to whatever your new normal foods will be.If that's the case, I can help you formulate SCD-legal menus for this time, and you can have your foods made up in advance. I also recommend having someone prepare food for you for at least six weeks after your hospital stay, because you are not going to feel like cooking while you recover.I also strongly recommend that you prepare your home -- make sure you do not have to climb stairs to reach your home, your bedroom, or your bathroom. Make sure you have rails to hold onto getting on and off the toilet, in and out of bed, and in and out of the shower. My surgery was on a Monday; I did very well, and they released me on Friday. It hadn't occured to me that I would need help getting out of bed, so I'd only set up a superpole in the bathroom. We got home, and I

discovered I needed a pole and trapeze for the bed, and had to order them second day air. Darned shipping cost almost as much as the pole! But when we had that in place, I was able to get myself in and out of bed, especially at night. Before the pole came in, my poor husband lost a lot of sleep -- his normal sleep cycle is about three hours. My bladder was on a two hour cycle. "Harry. I have to go pee." "Mmm." "Harry. I have to go pee." "Mmm." "Harry, if I don't go pee NOW, you're going to be getting up and changing the bed. I have to go NOW!"Once the pole came in, I was able to get in and out of bed on my own, which made for a big improvement in my outlook. <wry grin> Ask Jodi: she also made the mistake of not having a set-up for getting in and out of bed, and on and off a couch or chair after her gut surgery.I do wish to heaven that it was possible for you to give SCD a chance, but if you can't, you can't. Please know

that my thoughts are with you.

— Marilyn New Orleans, Louisiana, USA Undiagnosed IBS since 1976, SCD since 2001 Darn Good SCD Cook No Human Children Shadow & Sunny Longhair Dachshund Babette the Foundling Beagle

hi

[Guest guest]

,You could substitute meats and fats instead. If you can have bananas or other cooked fruits, you could use those along with a bit of juice, ice, butter and/or coconut oil. You will be amazed at how filling it will be. If you can tolerate nuts, soak a handful, and toss them in as well and blend until smooth. I do have a VitaMix, so it makes the nuts undetectable. Adds in more fats and protein as well.AmeliaTo: BTVC-SCD Sent: Mon, May 24, 2010 2:13:52 PMSubject: Re: Relin : Have to get colon fully removed in next few weeks

If we have to avoid eggs for breaksfast, what else can we have?

[Guest guest]

Thanks Amelia. The funny thing is for some reason I can tolerate oranges better than legal orange juice it seems. Any reason why this may be?

[Guest guest]

That never really made that much sense to me, since it has less lactose,so why quadruple.You can do it that way, but it also works fine with less.MaraMark,"so will use 2 litres (quarts) of cream like you said to get that extra calories. So i should use twice the amount of yogurt starter than i usually would"Oops!, that is incorrect. My bad! One is to actually quadruple it according to the recipe that is in BTVC listed as French Cream, at the bottom of page 158. In the recipe is says to use 1/2 cup commercial yogurt for each 2 cups of cream (about 1/2 of a quart/litre). Happy eating!Amelia To: BTVC-SCD Sent: Mon, May 24, 2010 2:08:58 PMSubject: Re: Relin : Have to get colon fully removed in next few weeksHi Amelia, Ye i can avoid eggs and have something different for breakfast, I have coconut oil i got some today so will use that in my smoothies, as for the yoghurt im making a batch today so will use 2 litres (quarts) of cream like you said to get that extra calories. So i should use twice the amount of yogurt starter than i usually would and i will also cook some apples tonight too. Thanks for the help, MarkFrom: Amelia Bhide <bhide_thehague@ yahoo.com>To: BTVC-SCD@yahoogroup s.comSent: Mon, May 24, 2010 1:53:36 PMSubject: Re: Relin : Have to get colon fully removed in next few weeks Mark,If you still have brisk diarrhea, you should be avoiding eggs. Otherwise it sounds like you are getting a good amount of protein and fat to put on weight. Have you tried coconut oil? That and butter put into smoothies will really pack in the fat calories. Also, if you tolerate cooked apples, you can cook them, chill them, and add them to your smoothies as well. They are also good cooked with butter and coconut oil -- no added water -- Yum! If you are making yogurt, you should try making it with cream instead of milk (need to double the starter though) and it will make a lovely very fattening cream yogurt. You can also whip it like regular cream and use it as a topping onto your cooked fruit or bananas.Hope this helps. AmeliaFrom: mark lambert <lambo042002@ yahoo.com>To: BTVC-SCD@yahoogroup s.comSent: Mon, May 24, 2010 11:06:23 AMSubject: Re: Relin : Have to get colon fully removed in next few weeks Hi Marilyn, Thanks for your help i greatly appreciate it, I'm really not sure what's best to do to get myself in the best shape possible for this surgery they are taking the whole colon and rectum out as they are where my disease is active luckily enough my small bowel is fine. But il be on a stoma bag for life as there is no cahance of reattachment. I get so mixed up with this diet and only add more stress to myself making me worse plus i was told on LDN groups that i should stop takin LDN before surgerey coz pain meds wont work! (news to me). Since im only stage 1 still and still have the diorreha im always confused on what and waht not i should eat. Your right about vitiman c and i would juice some oranges but afraid it will make my D worse, so i only juice grapes and apples. I have Freeda Multi Vits (3 a day) and Freeda calcium (5 per day) too so should i take the full amount of them each day or is there some scd legal vit c i can get? As i need to get my weight up for this surgerey to avoid complications (im only 6 & half stone) do you reccommend i eat all scd foods even if there stage 2,3,4 etc. Im soo worried bout my low weight im even considering taking the fresubin drinks again which my dietition had me on, there high calorie drinks but with illegals, But then again maybe my yoghurt (which i make with cream and milk) smoothies with bannana,honey, vanilla, butter and raw egg will be good enough for getting the calories up, I also have cream cheese ( made from straining my yogurt) on my sandwich bread topped with chedder cheese each day, i bought avacados too and eat meat each day with purred carrots for dinner, maybe i should add more cooked vegetables to my dinners? As for breakfast il eat scrambled eggs with chedder cheese and butter as a mix, or else tinned tuna or mackeral in sunflour oil. Is there anything else you suggest i do or dont do... By the way my stoma nurse said i will be on a feed after surgery and could be in hospital for 2 weeks depending on recovery, she also said that when i go back to eating i need to drink loads of water i think 4 litres per day and that i can never eat nuts or mushrooms?? which had me thinking how would i do SCD... Thank you so much for the help, id be lost without the help Mark Prednisilone ( started 40 mg 19th April 2010, now on 25 mg tabs decreasing by 5mg each week)LDN (Started 3mg tabs may 1st 2010, due to increase to 4.5 mg tabs after 1 month)Freeda Multi vit tabsFreeda Calcium tabsDiognosed with chrons/UC 1998Started SCD bout a month agoFrom: Wizop Marilyn L. Alm <LouisianaSCDLagniap pe (AT) gmail (DOT) com>To: BTVC-SCD@yahoogroup s.comSent: Mon, May 24, 2010 12:50:30 AMSubject: Re: Re: Have to get colon fully removed in next few weeks Mark,I'm genuinely sorry to hear that you need to have this permanently life-changing surgery. I've been there, two years ago, for cancer surgery -- had a complete hysterectomy, removal of ovaries and Fallopian tubes, as well as removal of lymph nodes for tests to see if the cancer had spread. I was scared witless because one of the first places cancer spreads from the uterus is to the colon, and they'd told me that if it had spread, they'd be taking my colon, too.Please stay with SCD up to your surgery. The nutrition will help. I also recommend a good multivitamin, as well as as much Vitamin C as you can tolerate. It makes a major difference in how you heal.You CAN stay on SCD while you are in the hospital. If you are not equal to the amount of cooking necessary for this, find someone who is willing to cook food, put it up for you, and bring it to the hospital for you. You might ask your doctor what your food regimen will be after the surgery. It may well start with clear liquids, progress to thick liquids, then to soft foods, and finally to whatever your new normal foods will be.If that's the case, I can help you formulate SCD-legal menus for this time, and you can have your foods made up in advance. I also recommend having someone prepare food for you for at least six weeks after your hospital stay, because you are not going to feel like cooking while you recover.I also strongly recommend that you prepare your home -- make sure you do not have to climb stairs to reach your home, your bedroom, or your bathroom. Make sure you have rails to hold onto getting on and off the toilet, in and out of bed, and in and out of the shower. My surgery was on a Monday; I did very well, and they released me on Friday. It hadn't occured to me that I would need help getting out of bed, so I'd only set up a superpole in the bathroom. We got home, and I discovered I needed a pole and trapeze for the bed, and had to order them second day air. Darned shipping cost almost as much as the pole! But when we had that in place, I was able to get myself in and out of bed, especially at night. Before the pole came in, my poor husband lost a lot of sleep -- his normal sleep cycle is about three hours. My bladder was on a two hour cycle. "Harry. I have to go pee." "Mmm." "Harry. I have to go pee." "Mmm." "Harry, if I don't go pee NOW, you're going to be getting up and changing the bed. I have to go NOW!"Once the pole came in, I was able to get in and out of bed on my own, which made for a big improvement in my outlook. <wry grin> Ask Jodi: she also made the mistake of not having a set-up for getting in and out of bed, and on and off a couch or chair after her gut surgery.I do wish to heaven that it was possible for you to give SCD a chance, but if you can't, you can't. Please know that my thoughts are with you.— Marilyn New Orleans, Louisiana, USA Undiagnosed IBS since 1976, SCD since 2001 Darn Good SCD Cook No Human Children Shadow & Sunny Longhair Dachshund Babette the Foundling Beagle hi

[Guest guest]

Mark,

I know we are all very sympathetic to your coming surgery. Marilyn's

advice is tops! I would add only one thing. When I had my

mastectomy they were surprised how well I healed. Well, I was on a

good diet (pretty much SCD only I did have some whole grains in those

days). I made sure I had plenty of C, E, and zinc as well as my

regular supplements. The E and the zinc also are very valuable for healing.

One other idea as you work out your diet. After my appendectomy, the

nurse giving me my discharge instructions suggested that, although

there normally are no dietary restrictions after having your appendix

out, with my gut troubles I'd be better off to puree everything for a

couple of weeks. I did, and I think it helped, although it got a bit

boring. You might want to do this, too, probably for longer than two weeks.