Re: My mind must be going....

[Guest guest]

Pink I am getting a thing which is flowered and is on rollers and I will be able to put my 02 in it! It is a thing which I have no name for but it is so pretty and is on wheels...it is canvas but with flowers on it....it is only $10 too! Joyce R

Rudy

i take the baby stroller to the mall and the baby is my O2, that way i am able to walk around the entire mall

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org--- On Tue, 11/17/09, BlueLiddy (AT) aol (DOT) com <BlueLiddy (AT) aol (DOT) com> wrote:

From: BlueLiddy (AT) aol (DOT) com <BlueLiddy (AT) aol (DOT) com>Subject: Re: My mind must be going....To: Breathe-Support Date: Tuesday, November 17, 2009, 9:00 PM

Pink- I so agree about the 02 being heavy...it seems like it is getting heavier too. Walking just generally makes me tired. Thank God that when I go out generally I have little walking. I used to love to go window shopping at the Mall and have lunch in the Food Court but don't do that any more and now I am terrified of stair cases! Joyce Rudy AZ birds

In a message dated 11/17/2009 6:24:44 A.M. US Mountain Standard Time, pinkrockybeach@ yahoo.com writes:

Rudy Joyce

i find walking around the neighborhood more difficult than walking on the treadmill

i think it is because on the treadmill, i put the O2 on the floor and don't have to hold it

carrying the o2 is a pain -- it's heavy, sometimes hurts my back, and makes me tired

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund. org

From: BlueLiddy (AT) aol (DOT) com <BlueLiddy (AT) aol (DOT) com>Subject: My mind must be going....To: Breathe-support@ yahoogroups. comDate: Monday, November 16, 2009, 11:09 PM

I write messages and click to send them and never see them on post. I must be clicking on the X instead of send now...????? Very frustrating to me..

Went out today all day and went to Fudruckers and I love fudruckers! they have a veggie burger! But had to do much walking and boy was I panting and panting and had to slow down to a crawl....I am not liking this one bit...but got there and loved my burger..piled it high with every veggie they had and I loved the dill pickles! They tasted like clausen's. LOL I am beginning to psychologically want to avoid long walks and stuff and I really don't like this change in me....It makes me feel like I am lazy...It seems like it is getting harder and harder to walk and to go up stairs and things like that...I have to find a way to not psychologically avoid these circumstances. ..my docs say they want me to walk and to not ride in carts and things. Joyce Rudy AZ birds____________ _________ _________ _________ _________ __

[Guest guest]

Stefani- Duh! I never thought of taking an apple with me! I love apples too and bananas! Thank you! I won't leave the house without some fruit! What a good idea....Joyce Rudy AZ birds

Joyce -Just going to reiterate what Beth said. I am diabetic also. I always have apples, bananas and oranges around to throw in my backpack. I also have pre-packaged cheerios that can be thrown in at a moments notice. Sometimes when I went to rehab I wouldn't be sure when I would get out because they would schedule other sessions for me. I was glad I had the cup of cheerios and the apple. The rehab clinic and my doctors office have valet parking... ooooh do I love that. It is paid for by the hospital and clinic so they tell us NOT TO TIP. I have a handicap parking tag and I use it often. I practice my breathing techniques. When I was at National Jewish I got so frustrated lugging the tank. I noticed some "veterans" carrying a "handle on top" back pack with their tank in it. I found one this fall with the school supply sales. It was $10.00 and boy do I love it. It is so much easier than the backpacks or carts. I use my cart around home and sometimes for walks, but most of the time, I use my backpack. It has side net pouches that I can put my oximeter in. It has two zipper pouches that I use for food/snacks/camera and a velcro close pouch that accommodates papers (that you take to or get from doctors). The guiding word is take care of yourself. Figure out what will work best for you and make your life sing!!Stefani 61 year old UtahnLD 2/2006, NSIP (fibrotic) 10/2009, Diabetes II 2/2006, Severe Sleep Apnea 4/2009> >>> >>> >>>From: BlueLiddy (AT) aol (DOT) com <BlueLiddy (AT) aol (DOT) com>> >>>Subject: My mind must be going....> >>>To: Breathe-support@ yahoogroups. com> >>>Date: Monday, November 16, 2009, 10:09 PM> >>>> >>>> >>> > >>>I write messages and click to send them and never see them on post. I must be clicking on the X instead of send now...????? Very frustrating to me..> >>>> >>>Went out today all day and went to Fudruckers and I love fudruckers! they have a veggie burger! But had to do much walking and boy was I panting and panting and had to slow down to a crawl....I am not liking this one bit...but got there and loved my burger..piled it high with every veggie they had and I loved the dill pickles! They tasted like clausen's. LOL I am beginning to psychologically want to avoid long walks and stuff and I really don't like this change in me....It makes me feel like I am lazy...It seems like it is getting harder and harder to walk and to go up stairs and things like that...I have to find a way to not psychologically avoid these circumstances. ..my docs say they want me to walk and to not ride in carts and things. Joyce Rudy AZ birds > >>>

[Guest guest]

Marcia- exactly! For some reason I breathe thru my mouth the minute I get outside! I have no idea why but I seem to have problems outside...and you are lucky...no such things as sidewalks here and mostly dirt roads. LOL But in the supermarket I breathe thru my nose and holding the cart seems to work well for me too. Joyce Rudy AZ birds

I also find the treadmill easier to walk on than outside. My Dr. said it is because the belt comes to you or something like that. I think perhaps it is also because I put my hands on the rails and it may lift the chest up differently and make breathing easier, maybe not but it is a thought. I know I get the same effect in the grocery store holding on to the cart. Also inside and on the treadmill is an even base and a controlled climate. Outside there are curbs, and streets usually slant slightly on the edges, and also uneven sidewalks. For some reason, as soon as I get outside, I often find I am breathing thru my mouth, and especially if it is windy. Also as you said we don't need to carry the portable on the treadmill. Marcia

[Guest guest]

Oh, thank you Beth and Joyce and Mama Sher for your concern for me. It touches me and makes me want to be so much more careful! I will take good care of myself! Please don't worry about me...I will take a sandwich with me and an apple if I leave the house and will be gone a long time...I can make some soy egg salad and have it in the frig....and I'll carry a fruit with me at all times. As to the junk that is coming up...I don't khow if it has color because I swallow it immediately without thinking about it but will look. I think it will be clear...AJoyce R

 Joyce....hey, a 'ditto' from me on the posts here from MB.

Do please take care of you.

MamaSher; 71, IPF 3-2006, OR.Don't fret about tomorrow, God is already there!

My mind must be going....To: Breathe-support@ yahoogroups. comDate: Monday, November 16, 2009, 10:09 PM

I write messages and click to send them and never see them on post. I must be clicking on the X instead of send now...????? Very frustrating to me..

Went out today all day and went to Fudruckers and I love fudruckers! they have a veggie burger! But had to do much walking and boy was I panting and panting and had to slow down to a crawl....I am not liking this one bit...but got there and loved my burger..piled it high with every veggie they had and I loved the dill pickles! They tasted like clausen's. LOL I am beginning to psychologically want to avoid long walks and stuff and I really don't like this change in me....It makes me feel like I am lazy...It seems like it is getting harder and harder to walk and to go up stairs and things like that...I have to find a way to not psychologically avoid these circumstances. ..my docs say they want me to walk and to not ride in carts and things. Joyce Rudy AZ birds

[Guest guest]

wonderful

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: My mind must be going....To: Breathe-Support Date: Wednesday, November 18, 2009, 10:13 AM

Pink I am getting a thing which is flowered and is on rollers and I will be able to put my 02 in it! It is a thing which I have no name for but it is so pretty and is on wheels...it is canvas but with flowers on it....it is only $10 too! Joyce R

In a message dated 11/18/2009 7:09:03 A.M. US Mountain Standard Time, pinkrockybeach@ yahoo.com writes:

Rudy

i take the baby stroller to the mall and the baby is my O2, that way i am able to walk around the entire mall

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund. org

From: BlueLiddy (AT) aol (DOT) com <BlueLiddy (AT) aol (DOT) com>Subject: My mind must be going....To: Breathe-support@ yahoogroups. comDate: Monday, November 16, 2009, 11:09 PM

I write messages and click to send them and never see them on post. I must be clicking on the X instead of send now...????? Very frustrating to me..

Went out today all day and went to Fudruckers and I love fudruckers! they have a veggie burger! But had to do much walking and boy was I panting and panting and had to slow down to a crawl....I am not liking this one bit...but got there and loved my burger..piled it high with every veggie they had and I loved the dill pickles! They tasted like clausen's. LOL I am beginning to psychologically want to avoid long walks and stuff and I really don't like this change in me....It makes me feel like I am lazy...It seems like it is getting harder and harder to walk and to go up stairs and things like that...I have to find a way to not psychologically avoid these circumstances. ..my docs say they want me to walk and to not ride in carts and things. Joyce Rudy AZ birds____________ _________ _________ _________ _________ __

[Guest guest]

is it just me then..i can't seem to keep any seafood down..especially tuna or fish of any kind. it's so hard for me to digest...does anyone else have any trouble with seafood. i love it, but for a year now...i can't eat it..i have the hardest time...after eating it i just feel soo bloated & it takes forever to digest. .my chest even hurts...

dot/uip10/08/sa,tx/42

Subject: Re: My mind must be going....To: Breathe-Support Date: Wednesday, November 18, 2009, 6:46 AM

Spinach!! I am not a vegan, but love my fruits and veggies and have cut out most meats over the years. I do a lot of fish (was raised on fish in MN). I have tuna fish sandwich for lunch probably 3 times a week. When I go out, it is shrimp and clams (what an odd combo) or salmon. I started craving spinach with my subs and sandwiches. That is one of those things I have never been able to put my finger on, but I start craving some of the strangest foods (in most people's books). Since the onset of this disease, spinach has been one of those cravings. Some other cravings include apples, blueberries, bananas, and cauliflower. Over the years, I have learned that I should follow my cravings because in the long term it has proven to be good for me. I have to watch the chocolate one, but then that is the dark chocolate (as opposed to the lighter milk chocolate). I also have felt better with MODERATE exercise, but that is true whether I am sick or

not.Stefani 61 year old UtahnLD 2/2006, NSIP (fibrotic) 10/2009, Diabetes II 2/2006, Sleep Apnea 4/2009>> Joyce,> I am not a total vegan, but I do try to eat mostly fish, chicken and turkey. Where ever I go, I carry lots and lots of nuts, which as you know are a good source of protein, potassium and the B vitamins. Raw nuts and raw vegetables make a meal for me most days. > > Also, does your blood tend toward the anemic side? You wouldn't want to add iron unless tests showed you needed it, but not eating meat may tilt your numbers toward needing iron, and boy do weneed iron in our blood! Although vegatables like spinach and dried fruit like

raisins do have iron, it is not as readily available as that found in meat. So do keep an eye on your blood tests. Also, I take B12 (along with other B vitamins) every day. B12 is the one vitamin that plants don't make. > > And we have to rest throughout the day, We so easily drop into an oxygen deficit, and once our heart gets above idleing, it won't come down until we reduce our need for oxygen, and most likely it will continue to increase in speed until we stop and take some deep breaths. When our brain and muscles need oxygen, our heart must speed up during times of greater activity, and the heart itself uses more oxygen than any organ in the body. When our heart tries to pump more oxygen than our lungs can provide, we hit that brick wall, and we have to take a break. And do you know Joyce, what I can do in my mind is still much more than I can actually do in real life. My mind will never catch up with this disease and get real.

Anything more than a moderate to lite exertion, and I get out of sorts. As I may have said, I can walk at a slow to moderate pace on a treamill for miles, but put me on an incline, and I'mdone for very quickly. That is the body I am having to> learn to work with now. > > Take care of yourself and our sweet doggie friends too.> > Jerry/Mississippi/ 54/IPF/dx April 5> > Who believes that hard times help us appreciate the good times even more.>

[Guest guest]

Pink

I haven't eaten at any recently but not consciously. However, there

absolutely is some amount of risk involved above a sit down meal. Is it

significant? I don't know. But I think it's also something easily given

up. Will I eat at a buffet sometime perhaps? Yes, but at the least it

will be one I have some feeling of safety regarding. However, I won't

make it a regular practice.

It's hard to balance risk/reward in many of our daily activities. For

instance, I like to get out and just walk around stores and look.

Especially big stores. However, that involves exposure to people. So my

balancing of that is that I do it during the day and on weekdays. I

avoid times when the stores are filled with lots of runny nose coughing

kids. Might I still catch something? Of course. But the balance I've

chosen is the one right for me. I try to minimize exposure, but I'm not

going to stop living altogether in fear of it. I do the same timing with

grocery shopping. In fact my last trip I went when the store was nearly

empty at 9 PM.

I would say too that learning the transplant instructions in advance and

practicing some of them is certainly good preparation. There are certain

disciplines involved in post transplant such as exercise and dietary

recommendations. It's good to prove to yourself you can follow those

prior. Then post transplant won't seem quite as difficult.

>

>

> From: miranda gagne tazluvzraz (AT) yahoo (DOT) com>

> Subject: My mind must be going....

> To: Breathe-Support@ yahoogroups. com

> Date: Monday, November 16, 2009, 10:48 PM

>

>

> Â

>

>

>

>

>

>

> Oh wow, Fudruckers ! I used to go to the one in Pasadena,CA all

the time as a kid. Just last week I was wanting to go there and was sad

when my mom told me they closed down. Wish they were still around

for my kids to enjoy.

> Â

> I mess up on here too. It is confusing, especially when you are oxygen

deprived. LOL

> Â

> Miranda

> LA / 29 yrs old

> IPF 05

>

[Guest guest]

Adrienne- I too have a Marathon and it is heavy. I'm getting it from a friend who found them in Laughlin I believe. Nevada...It is a canvas bag that is really pretty...it sits straight up and has a top to it and is not limp....and it is on wheels...you just put your marathon in it and of you go. I will call my friend and find out what it is called...Joyce R

Joyce R,

What is the thing you bought for $10.00 to carry your oxygen in. If you don't have a name can you describe it or tell me where you bought it. My Marathon is very heavy especially when I first fill it up.

Adrienne

From: BlueLiddy (AT) aol (DOT) com <BlueLiddy (AT) aol (DOT) com>Subject: My mind must be going....To: Breathe-support@ yahoogroups. comDate: Monday, November 16, 2009, 11:09 PM

I write messages and click to send them and never see them on post. I must be clicking on the X instead of send now...????? Very frustrating to me..

Went out today all day and went to Fudruckers and I love fudruckers! they have a veggie burger! But had to do much walking and boy was I panting and panting and had to slow down to a crawl....I am not liking this one bit...but got there and loved my burger..piled it high with every veggie they had and I loved the dill pickles! They tasted like clausen's. LOL I am beginning to psychologically want to avoid long walks and stuff and I really don't like this change in me....It makes me feel like I am lazy...It seems like it is getting harder and harder to walk and to go up stairs and things like that...I have to find a way to not psychologically avoid these circumstances. ..my docs say they want me to walk and to not ride in carts and things. Joyce Rudy AZ birds____________ _________ _________ _________ _________ __