Re: List of better antibiotics?

[Guest guest]

Safe to Take: Macrodantin (Macrobid), Sulfa, Aminoglycoside, Flagyl (metronidiazole) , Oral and IV VancomycinEeeewwwwww, flagyl?? Ugh, worst 10 days of my LIFE. Safe to take as in, it won't hurt the gut? Or safe as in it doesn't make you feel like total cr@p the entire time you're on it? Because the latter was DEFINITELY NOT true for me. Peace =)Alyssa 16 yo UC April 2008, dx Sept 2008SCD June 2009 (restarted)Azathioprine 75 mg 1x per dayPrednisone 30 mg 1x per day

[Guest guest]

Thanks to all for responding.

Mara - yes, I posted this to Healing Crow as well.

My instinct is to say no to the doxyclycline. My son is finally doing

pretty well bathroom-wise and I sure don't want to upset things. He's

got a colonoscopy checkup on June 4, and I am praying that healing has

actually occurred. I think the GI is very focused on preventing any

C-diff recurrence and likely won't allow the doxy either.

Amelia- I don't know if there is a yeast issue. That could something to

look into.

One of things he's dealing with are some " weird " (that was the

dermatologist's word - doesn't exactly inspire confidence) spots on the

sides of his face that no one thinks is acne. Developed at the same time

as the acne (after prednisone treatment back in 2007), but the facial

acne is much improved, but these spots persist. They did a biopsy

yesterday to try to determine if it might be " cutaneous Crohns " .

And yes, I agree that I'd rather have some acne than a bad gut,

but that is more difficult for an 18 year old boy to put into

perspective, esp when I've seen little kids stare and point at him.

Breaks my heart. And of course the social issues at that age are very

important.

Thanks again.

Sally

[Guest guest]

Flagyl was my undoing. It was the drug from H#LL. I had some D before I took it,

but basically I was coping. On Flagyl I had nausea, moodiness.. It was horrible.

I know sometimes there is no other alternative, but I hope and pray I never

have to take that again!!

PJ

>

>

> > Safe to Take: Macrodantin (Macrobid), Sulfa, Aminoglycoside, Flagyl

> > (metronidiazole) , Oral and IV Vancomycin

>

>

> Eeeewwwwww, flagyl?? Ugh, worst 10 days of my LIFE. Safe to take as

> in, it won't hurt the gut? Or safe as in it doesn't make you feel like

> total cr@p the entire time you're on it? Because the latter was

> DEFINITELY NOT true for me.

>

> Peace =)

> Alyssa 16 yo

> UC April 2008, dx Sept 2008

> SCD June 2009 (restarted)

> Azathioprine 75 mg 1x per day

> Prednisone 30 mg 1x per day

>

[Guest guest]

At 06:59 AM 5/12/2010, you wrote:

Hi friends, I'm searching for a

suggestion of antibiotics that may be less damaging for my 3 y.o.(asd,

seizures, allergic to penicillin), as we are headed to the doc now for a

bad cough. All of her regressions have occurred while on antibiotics,

along with severe diarrhea etc.

Here's something which might be of use:

· Help! My doctor says I

have to take antibiotics for <fill in the blank>. But I just know

they’re going to mess up my gut. Are there any antibiotics which are safe

for SCDers?

The following advice was originally from a Clostridium Difficile

website (the origin of which I was unable to track). It is now posted on

www.breakingtheviciouscycle.info.

Antibiotics likely to cause problems: Clindamycin,

Keflex, Ceftin, Ceclor, All other cephalosporins, Amoxicillin,

Augmentin.

Middle Of The Road (may or may not

cause problems): Cipro, Levoflex (also Levaquin), Tequin, Avelox,

Bactrim, Erythromycin, Biaxin, Zithromax

Safe to Take: Macrodantin

(Macrobid), Sulfa, Aminoglycoside, Flagyl (metronidiazole), Oral and IV

Vancomycin

As with anything medical, this

recommendation is not intended to take the place of your doctor or

healthcare professional’s advice. But it may give you a starting point

for discussing alternatives with him or her.

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

Babette the Foundling Beagle

[Guest guest]

FWIW. My favorite antibiotics are olive leaf extract, astragalus and Manuka Honey.What's your experience with Manuka honey? I just started taking it, and I can't tell yet if there's a difference. I'm on too many meds to be really in tune with my body. I'd be interested to know more about it and others' experiences, though! Peace =)Alyssa 16 yo UC April 2008, dx Sept 2008SCD June 2009 (restarted)Azathioprine 75 mg 1x per dayPrednisone 30 mg 1x per day

[Guest guest]

Is astragalus legal? I always kind of assumed it wasn't.

> > >Hi friends, I'm searching for a suggestion of

> > >antibiotics that may be less damaging for my 3

> > >y.o.(asd, seizures, allergic to penicillin), as

> > >we are headed to the doc now for a bad cough.

> > >All of her regressions have occurred while on

> > >antibiotics, along with severe diarrhea etc.

> >

> > Here's something which might be of use:

> >

> > · Help! My doctor says I have to take

> > antibiotics for <fill in the blank>. But I just

> > know they're going to mess up my gut. Are there

> > any antibiotics which are safe for SCDers?

> >

> > The following advice was originally from a

> > Clostridium Difficile website (the origin of

> > which I was unable to track). It is now posted on

> > <http://www.breakingtheviciouscycle.info/>www.breakingtheviciouscycle.info.

> >

> > Antibiotics likely to cause problems:

> > Clindamycin, Keflex, Ceftin, Ceclor, All other

> > cephalosporins, Amoxicillin, Augmentin.

> > Middle Of The Road (may or may not cause

> > problems): Cipro, Levoflex (also Levaquin),

> > Tequin, Avelox, Bactrim, Erythromycin, Biaxin, Zithromax

> > Safe to Take: Macrodantin (Macrobid),

> > Sulfa, Aminoglycoside, Flagyl (metronidiazole), Oral and IV Vancomycin

> >

> > As with anything medical, this

> > recommendation is not intended to take the place

> > of your doctor or healthcare professional's

> > advice. But it may give you a starting point for

> > discussing alternatives with him or her.

> >

> >

> > — Marilyn

> > New Orleans, Louisiana, USA

> > Undiagnosed IBS since 1976, SCD since 2001

> > Darn Good SCD Cook

> > No Human Children

> > Shadow & Sunny Longhair Dachshund

> > Babette the Foundling Beagle

>

> >

> FWIW. My favorite antibiotics are olive leaf extract, astragalus and Manuka

Honey. Tamanu seems to offer much of the same benefits offered by Manuksa Honey,

like curing diabetic ulcers and severe burns, even after gangrene is present. I

have no experience with Tamanu, but if you need something for rashes or acne, it

would certainly be worth a little Googling.

>

> For coughs we use an extract of English Ivy called Bronchial Soothe. It

appears to be far superior to the old cough syrups. At this point it has allowed

my grandson to put down his asthma medication. We pray that it will continue to

do so.

>

> Les

>

[Guest guest]

I hope you write a book about it!

PJ

> >

> > > I've been cured of Crohn's for over ten years now so I really don't

> > > remember.

> >

> >

> > THAT'S SO COOL!! I can't wait until I can say that about my UC =) Did

> > you do it with the SCD, or something else? I'm pretty sure I'm staying

> > SCD anyways, but I'm just curious.

> >

> > Peace =)

> > Alyssa 16 yo

> > UC April 2008, dx Sept 2008

> > SCD June 2009 (restarted)

> > Azathioprine 75 mg 1x per day

> > Prednisone 30 mg 1x per day

> >

> You need not be curious.I was absolutely committed to SCD. Made my own catchup

and mayonnaise, lots of almond flour stuff. My loving daughters came home and

filled the freezers with many, many legal meals. When I got out of the hospital

I was driven by anger at the system, to get well in spite of all they did to me

and tried to do to me. Most of my doctors were truly awful, and that's why I

have embraced alternatives as I have. Through what I learned, I made myself well

and I guess that's the best way I have for sticking it to the system.

>

> Stay with the SCD and don't cheat. Only after my symptoms were almost gone,

did I use some stuff that might be called " gray area " , like stevia and bifidus,

knowing that if it wasn't right it would let me know. My objective was to attack

the culprit bacteria in any way I could. It seems I got 'em.

>

> Les

>

[Guest guest]

Hey Alyssa,

Just wanted to chime in. I bit the bullet and gave Manuka honey a try and

I've definitely seen an improvement in my symptoms. Hehe...and I haven't eaten

it as frequently lately and all of a sudden I'm not feeling as well!

stacey

>

> > FWIW. My favorite antibiotics are olive leaf extract, astragalus and

> > Manuka Honey.

>

>

> What's your experience with Manuka honey? I just started taking it,

> and I can't tell yet if there's a difference. I'm on too many meds to

> be really in tune with my body. I'd be interested to know more about

> it and others' experiences, though!

>

> Peace =)

> Alyssa 16 yo

> UC April 2008, dx Sept 2008

> SCD June 2009 (restarted)

> Azathioprine 75 mg 1x per day

> Prednisone 30 mg 1x per day

>

[Guest guest]

>

> Les,

>

> " I also mentioned olive leaf extract. It is anti-oxidant, anti-microbial

> (kills Staph), anti-fungal, anti-malarial, anti-herpes,

> anti-cholesterol, anti-diabetic, anti-parasitic and anti-hypertensive.

> Google it as I did. Don't take my word for it. "

>

> I would like to know if you know of any studies to show that olive leaf

extract is an anti-malarial. We are moving to India soon and I want to protect

the 5 of us as safely and naturally as possible.

>

> Amelia

>

> For the sheer volume of information, I suggest that you go to Curezone and

search for olive leaf extract malaria and for artemisia malaria.

Les

>

[Guest guest]

Can this honey also be used for baking, or more just for it s healing

properties?

>I buy mine either at whole foods or a local health food store

>Stacey

>

>

>> >>

>> >> > Just wanted to chime in. I bit the bullet and gave Manuka honey a

>> >> > try and I've definitely seen an improvement in my symptoms.

>> >> > Hehe...and I haven't eaten it as frequently lately and all of a

>> >> > sudden I'm not feeling as well!

>> >>

>> >>

>> >> Thanks for chiming! =) How much/when are you taking it? I've been

>> >> taking one teaspoon a morning on an empty stomach, because I read it

>> >> 'coats the bowels to reduce inflammation.'

>> >>

>> >> Peace =)

>> >> Alyssa 16 yo

>> >> UC April 2008, dx Sept 2008

>> >> SCD June 2009 (restarted)

>> >> Azathioprine 75 mg 1x per day

>> >> Prednisone 30 mg 1x per day

>> >>

>> >

>> >

>>

>

>

[Guest guest]

Way too expensive to use for baking.

Mara

> Can this honey also be used for baking, or more just for it s healing

properties?

>

>

>

>> I buy mine either at whole foods or a local health food store

>> Stacey

>>

>>

>>>>>

>>>>>> Just wanted to chime in. I bit the bullet and gave Manuka honey a

>>>>>> try and I've definitely seen an improvement in my symptoms.

>>>>>> Hehe...and I haven't eaten it as frequently lately and all of a

>>>>>> sudden I'm not feeling as well!

>>>>>

>>>>>

>>>>> Thanks for chiming! =) How much/when are you taking it? I've been

>>>>> taking one teaspoon a morning on an empty stomach, because I read it

>>>>> 'coats the bowels to reduce inflammation.'

>>>>>

>>>>> Peace =)

>>>>> Alyssa 16 yo

>>>>> UC April 2008, dx Sept 2008

>>>>> SCD June 2009 (restarted)

>>>>> Azathioprine 75 mg 1x per day

>>>>> Prednisone 30 mg 1x per day

>>>>>

>>>>

>>>>

>>>

>>

>>

>

>

>

>

>

>

> ------------------------------------

>

>

[Guest guest]

Way too expensive to use for baking. OH yeah. If you use the serving size on the bottle I have, which is 1 tbsp, it works out to be $1 per serving, or therabouts. Peace =)Alyssa 16 yo UC April 2008, dx Sept 2008SCD June 2009 (restarted)Azathioprine 75 mg 1x per dayPrednisone 30 mg 1x per day

[Guest guest]

I....wouldn't. It costs a lot so using it for baking seems like kind of a

waste.

Stacey

> >> >>

> >> >> > Just wanted to chime in. I bit the bullet and gave Manuka honey a

> >> >> > try and I've definitely seen an improvement in my symptoms.

> >> >> > Hehe...and I haven't eaten it as frequently lately and all of a

> >> >> > sudden I'm not feeling as well!

> >> >>

> >> >>

> >> >> Thanks for chiming! =) How much/when are you taking it? I've been

> >> >> taking one teaspoon a morning on an empty stomach, because I read it

> >> >> 'coats the bowels to reduce inflammation.'

> >> >>

> >> >> Peace =)

> >> >> Alyssa 16 yo

> >> >> UC April 2008, dx Sept 2008

> >> >> SCD June 2009 (restarted)

> >> >> Azathioprine 75 mg 1x per day

> >> >> Prednisone 30 mg 1x per day

> >> >>

> >> >

> >> >

> >>

> >

> >

>