Re: Just starting the intro diet...need advice, support, hope...

[Guest guest]

Any hints, suggestions, glimmers of hope - most welcomed! I don't mean to sound down, I guess it's all the timing - finances are at an all time low etc. When it rains it pours. I will survive! I know it's all for my own good! You will! It DOES get easier, I promise =) That's a bummer that you being gluten free didn't help too much with your symptoms! Hopefully the SCD will =) It sounds like it very well could've been IBD all along...I'm excited to read all that is on this site! Thanks for listening! TheresaThis is a fantastic group! Really great support. I think I would be crazy by now if it weren't for everyone here =) As I'm sure Marilyn will say, sorry you had to find us, but glad you did! Peace =)Alyssa 16 yo UC April 2008, dx Sept 2008SCD June 2009 (restarted)Azathioprine 75 mg 1x per dayPrednisone 30 mg 1x per day

[Guest guest]

At 06:02 PM 5/4/2010, you wrote:

Any hints, suggestions, glimmers

of hope - most welcomed! I don't mean to sound down, I guess it's all the

timing - finances are at an all time low etc. When it rains it pours. I

will survive! I know it's all for my own good!

I'm excited to read all that is on this site! Thanks for

listening!

Theresa,

Welcome! Sometimes I think that while you may not have to be crazy when

you start this adventure of healing with food, it might help.

At least here, when you scream, or have a triumph over a reduction in the

number of times you spent in the loo today, or something else, there are

people here who have Been There and Done That, right down to trying to

eat healthy on a limited diet.

<g> Glad you found us, though sorry you needed to!

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

Babette the Foundling Beagle

[Guest guest]

Theresa,Fish is good during intro as well, just do it baked or grilled with not much seasoning for now. You can have the carrots pureed into the soup if you want, just not the onion yet. You can also make a small bag of herbs and spices to simmer in with the soup to make removing them easier. Make sure you are using baking SODA, not powder now (it contains starches). I think flax meal is illegal, at least at this point in the diet for certain. If it is the lactose that is the problem, the SCD yogurt should be fine. If it is the milk protein, even though it is denatured somewhat, it might still cause problems -- did for my husband. I would definitely look for a good acidophilus supplement if you can't take the yogurt. It will be very important in keeping

yeast in check while all the bad bacteria is dying off.AmeliaTo: BTVC-SCD Sent: Wed, May 5, 2010 3:36:31 AMSubject: Re: Just starting the intro diet...need advice, support, hope...

Thanks Everyone!

I feel so much better already. Yes, I know it will all take time. One doctor feels I may have had this since I was a little girl - at 49 now, I guess that's a lot of years!

I can't tolerate eggs, which will be a challenge with many of the recipes I've seen, I am used to substituting applesauce and Baking powder, or flax meal and water. I was told to stay off dairy, I did leave a message for my GI dr to clarify if its dairy-free or lactose-free that he wants me to be on, with my flat villi. What have others done?

I enjoyed my chicken soup today. I know we are not to have carrots/onions etc. I cooked it with it, but I didn't eat them - I hope that's okay. It just gave flavor. I made the grape juice jello - it was still thin, but it was a nice treat!

Is fresh fish good for me during the intro diet? I love fish, well, I love it deep fried - another time... hee hee

Thanks again! I am glad I found this site! You are the best!

Theresa

[Guest guest]

Hi Theresa, and welcome.

I'm a year+ into SCD, and I've been egg-free since I discovered that my

lingering d at the beginning of the diet was from the eggs I ate every morning.

I also couldn't tolerate the yogurt at first (way too much bloating and gas) and

it took me a few months of slowly weaning myself onto it to get up to roughly a

half cup a day.

I've used vinegar and baking soda as my leavener when baking. I've also found

pheasant eggs at one of my local markets and have been successful about using

them in baking, also (not quite prepared to sit down to a plate of scrambleds,

however). I know a few folk here and on Pecanbreak also use duck and quail

eggs. I've also tried chicken eggs (both yolks and the whole egg) a few times

recently. I wasn't side-effect free (some headach-y stuff, some bad feeling,

and some gas), but it didn't cause d and I will continue to try to add eggs in

the future.

Be careful on the fish. I was eating it regularly my first six months of the

diet, but it seems to have a naturally (or perhaps it is my local supermarket

where I was buying it) occuring higher levels of bacteria, and it threw me for a

loop (yellow d for days) a few times. I've been off of it for a while now, but

will reintroduce using only frozen (and I have seen a few people say they even

react to the frozen).

Good luck!! I hope SCD works miracles for you, like it has for me.

Ellen

>

>

>

> Thanks Everyone!

>

> I feel so much better already. Yes, I know it will all take time. One doctor

feels I may have had this since I was a little girl - at 49 now, I guess that's

a lot of years!

>

> I can't tolerate eggs, which will be a challenge with many of the recipes I've

seen, I am used to substituting applesauce and Baking powder, or flax meal and

water. I was told to stay off dairy, I did leave a message for my GI dr to

clarify if its dairy-free or lactose-free that he wants me to be on, with my

flat villi. What have others done?

>

> I enjoyed my chicken soup today. I know we are not to have carrots/onions

etc. I cooked it with it, but I didn't eat them - I hope that's okay. It just

gave flavor. I made the grape juice jello - it was still thin, but it was a

nice treat!

>

> Is fresh fish good for me during the intro diet? I love fish, well, I love it

deep fried - another time... hee hee

>

> Thanks again! I am glad I found this site! You are the best!

>

> Theresa

>

[Guest guest]

Thanks Theresa! That is so interesting. Well one thing I can definitely think

of- we were using our rice/slow cooker for everything. Now we have a new slow

cooker and will just do the rice in the old one! I sure hope this helps a

little. Fortunately my husband is very " anti-carb " (or gets his fill during the

day at work :)so I don't even bake anymore, let alone make dinners with

illegals.

I will have a new batch of bloodwork this summer when I see my integrative doc

and I hope things will have improved!

-Joanna

>

>

>

> Joanna,

>

> I was told that the gluten can stay on pots and pans - get stuck in the little

chips on the pan, or that line you see around the inside of your pan, it's

gluten. I have my own pots and pans now, I have a few plates and silverware

that is all mine. I have my own storage container, I hand wash all my dishes so

they don't get mixed in with the rest of the family's stuff. I removed all

flours from the house that are not GF, no mixes can be used that are not GF. I

was told that the flours can stay in the air up to 48hrs. My family still eats

gluten, but it's not " flying " around anymore. I wish I had just turned our

family GF! Sometimes I feel so alone, the good part, I don't clean up after

them very often, it's pretty much all theirs.

>