Guest guest Posted February 25, 2005 Report Share Posted February 25, 2005 , I agree that 72cc/hour will be too high for a 19 lb. kiddo. When was that weight, he was about 28-29 months old and he was getting 60 cc/hour, but he had already had the g-tube for almost 2 years. When he was younger, we always had trouble with him tolerating large volume boluses and higher rates on the feeding pump. Kim C. > Hi All! > > Tomorrow (10:30 EST), Connor will have a g-tube put in to assist in > catch up calories at night. Our family would covet any praeyrs or > warm feelings sent his way. > > Thank you to all who responded or called me regarding " The ABC's of > a g-tube. " I appreciate the time and effort you put into each post. > The freinds we have made on this list serve and at convention are > what keep my sanity intact when faced with yet another, RSS curve > ball. > > I have to admit, two days ago I was getting cold feet regarding his > surgery. I thought that I was yet again, over reacting to his > syndrome. Well, we took him in for another weight in. He's down > another pound to just about 19. As much as I pour into that little > guy, it's just not registering in him. At this point, the > nutritionist want's to get 72 cc's an hour into Connor at night. Is > that realistic? I'm so new at this I simply don't know. The > equivalent would be 3 cans of Pediasure in one night. Presently, he > takes 3 cans over a 24 hour period plus his oral feeds. He's on a > vanilla pudding kick right now and I've been adding a teaspoon of > flax seed oil to boost calories. As more teeth come in, the > malocclusion of the jaw becomes more of a problem. It's just to > painful for him to chew. So, when do we take him to see the > Orthofacial specialist? Can you do anything with the jaw when they > are this young? > > Ugh. I need to go pack. All the Teletubbies will be assisting us > in the hospital and God help me if I forget Barney!!!! > > > Mom to Graham 8 ADD; Cameron 5; Connor IUGR RSS Kyphosis G-Tube > Periactin, Prevacid, Zantac, GH in two weeks. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2005 Report Share Posted February 25, 2005 I'll keep you guys in my prayers. Good luck and let us know how your doing. Marcy nas mom Kearns wrote: Hi All! Tomorrow (10:30 EST), Connor will have a g-tube put in to assist in catch up calories at night. Our family would covet any praeyrs or warm feelings sent his way. Thank you to all who responded or called me regarding " The ABC's of a g-tube. " I appreciate the time and effort you put into each post. The freinds we have made on this list serve and at convention are what keep my sanity intact when faced with yet another, RSS curve ball. I have to admit, two days ago I was getting cold feet regarding his surgery. I thought that I was yet again, over reacting to his syndrome. Well, we took him in for another weight in. He's down another pound to just about 19. As much as I pour into that little guy, it's just not registering in him. At this point, the nutritionist want's to get 72 cc's an hour into Connor at night. Is that realistic? I'm so new at this I simply don't know. The equivalent would be 3 cans of Pediasure in one night. Presently, he takes 3 cans over a 24 hour period plus his oral feeds. He's on a vanilla pudding kick right now and I've been adding a teaspoon of flax seed oil to boost calories. As more teeth come in, the malocclusion of the jaw becomes more of a problem. It's just to painful for him to chew. So, when do we take him to see the Orthofacial specialist? Can you do anything with the jaw when they are this young? Ugh. I need to go pack. All the Teletubbies will be assisting us in the hospital and God help me if I forget Barney!!!! Mom to Graham 8 ADD; Cameron 5; Connor IUGR RSS Kyphosis G-Tube Periactin, Prevacid, Zantac, GH in two weeks. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2005 Report Share Posted February 25, 2005 hi mary!! connor will be in my thoughts and prayers as he goes through his surgery and recovery!!! good luck!! jodie c > > Hi All! > > Tomorrow (10:30 EST), Connor will have a g-tube put in to assist in > catch up calories at night. Our family would covet any praeyrs or > warm feelings sent his way. > > Thank you to all who responded or called me regarding " The ABC's of > a g-tube. " I appreciate the time and effort you put into each post. > The freinds we have made on this list serve and at convention are > what keep my sanity intact when faced with yet another, RSS curve > ball. > > I have to admit, two days ago I was getting cold feet regarding his > surgery. I thought that I was yet again, over reacting to his > syndrome. Well, we took him in for another weight in. He's down > another pound to just about 19. As much as I pour into that little > guy, it's just not registering in him. At this point, the > nutritionist want's to get 72 cc's an hour into Connor at night. Is > that realistic? I'm so new at this I simply don't know. The > equivalent would be 3 cans of Pediasure in one night. Presently, he > takes 3 cans over a 24 hour period plus his oral feeds. He's on a > vanilla pudding kick right now and I've been adding a teaspoon of > flax seed oil to boost calories. As more teeth come in, the > malocclusion of the jaw becomes more of a problem. It's just to > painful for him to chew. So, when do we take him to see the > Orthofacial specialist? Can you do anything with the jaw when they > are this young? > > Ugh. I need to go pack. All the Teletubbies will be assisting us > in the hospital and God help me if I forget Barney!!!! > > > Mom to Graham 8 ADD; Cameron 5; Connor IUGR RSS Kyphosis G-Tube > Periactin, Prevacid, Zantac, GH in two weeks. Quote Link to comment Share on other sites More sharing options...
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