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Re: RSS in Italia?

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Ciao Camilla!

Lei parla Italiano?

Hi..I know there is a family outside of Rome who have a son with RSS,

and there is also a family near Milan. I will find out more info for

you, although Ken might have the contact names for you faster than

me. Have you joined MAGIC? They can also help match you up with

families in Italy!

Katy

>

> Ciao!

>

> We are a swedish family with a 4-year-old boy with Silver-Russel

> syndrome. We are moving to Modena, Italy in april and it would be

> nice to get in contact with RSS children or adults there. Please,

> send us an e-mail at arvidsson@m...

>

> Ken, is it possible for you to give us a hint if there are any

> italian members? They might miss our message, because there are so

> many every day.

>

> Thanks!

>

> Camilla, and Victor (4 years, 10 kg, 89 cm, waiting for

> approval from the authorities to start with GH).

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