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Re: Update on (Ken & Pat)

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Hi Ken & Pat,

Thanks for your comments. Yes, we have been extremely pleased with

's progress and hope she continues at this rate.

We just moved to the Cleveland, OH area and see . He

is a great doctor, but he has been so inundated with his client base

and research that he is not presently taking on new patients. For

those looking for doctors with a similar approach, he recommends

Cowan, MD of San Francisco or Ron Schmid, ND of Middleburry,

CT.

Beth

> >

> >

> > For those of you who missed my prior posts on (age 6),

I

> > can give you some more current information since we just got

back

> > from a visit to her doctor and he continues to feel she is

> > progressing nicely after discontinuing growth hormone a bit more

> > than a year ago. grew 6 inches in the past year to 45

> > inches and 43 lbs.

> >

> > When we discovered had RSS at age two with normal GH

> > levels, we floundered around with a variety of approaches but

this

> > by far has been the most successful and least invasive. The

> > hypoglycemic episodes, periodic seizures, hyperactivity that

pushed

> > her to the point of exhaustion, difficulty concentrating, reflux

> and

> > other gut related issues are now behind us.

> >

> > Hopefully my truncated post did not bend anyone's ear to far

this

> > time.

> >

> > Beth

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Hi Beth,

Pictures ?

You can use your browser and navigate to

http: //photos.groups.yahoo.com/group/RSS-Support/lst

Create a photo album, and upload some recent (or not so recent,

whatever you like) photos.

I'd upload some photos of me, my wife and but my camera is in

the shop. It broke the last time some one took my picture.

Ken M

:)

> > >

> > >

> > > For those of you who missed my prior posts on (age

6),

> I

> > > can give you some more current information since we just got

> back

> > > from a visit to her doctor and he continues to feel she is

> > > progressing nicely after discontinuing growth hormone a bit

more

> > > than a year ago. grew 6 inches in the past year to

45

> > > inches and 43 lbs.

> > >

> > > When we discovered had RSS at age two with normal GH

> > > levels, we floundered around with a variety of approaches but

> this

> > > by far has been the most successful and least invasive. The

> > > hypoglycemic episodes, periodic seizures, hyperactivity that

> pushed

> > > her to the point of exhaustion, difficulty concentrating,

reflux

> > and

> > > other gut related issues are now behind us.

> > >

> > > Hopefully my truncated post did not bend anyone's ear to far

> this

> > > time.

> > >

> > > Beth

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