Guest guest Posted April 6, 2010 Report Share Posted April 6, 2010 I would like to start ldn for my mum could our family GP perscribe it or if not where could we obtain it from and how much dose should be enough if somebody can point us in the right direction we would be thankfull. we live in calgary canada LDN can be ordered from Skip's Pharmacy -- it has to be compounded. My understanding is that the recommended prescription is: 1.5 mg po X 30 days, (po= by mouth) 3.0 mg po X 30 days , then 4.5 po thereafter with PRN in the refill space. The shipping is approx $5 no matter how many month supply you get. 3 months of 4.5mg w/ shipping runs around $60. — Marilyn New Orleans, Louisiana, USA Undiagnosed IBS since 1976, SCD since 2001 Darn Good SCD Cook No Human Children Shadow & Sunny Longhair Dachshund Babette the Foundling Beagle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2010 Report Share Posted April 7, 2010 Hi Kuljit, To locate a doctor to prescribe LDN email Crystal at angelindisguiseldn@... Let her know what city you are in as she keeps a list of prescribing doctors worldwide. Carol CD 22 yrs SCD 5 yrs From: BTVC-SCD [mailto:BTVC-SCD ] On Behalf Of kuljitmann I would like to start ldn for my mum could our family GP perscribe it or if not where could we obtain it from and how much dose should be enough if somebody can point us in the right direction we would be thankfull. we live in calgary canada _,_._,___ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2010 Report Share Posted April 10, 2010 I wonder if it can do something to your liver enzymes? After almost 3 months of LDN, my liver enzymes are sky high. I had to have an abdominal ultrasound, and my doc has ordered about every liver related blood test known to man. Holly Crohn's SCD 12/01/08 > > > > The clinical study at Penn State > > >was using 4.5mg right from the start. Where is the recommendation for the > > >slow introduction coming from? Is it to check for side effects or to find > > >if a lower dosage does the work? > > Some people get very vivid dreams as a result of regulating their systems > > with the LDN. Others find that they have a bit of trouble sleeping > > initially. > > > > By starting with the 1.5, you give the system a chance to accustom > > itself. > > > > Plus, if you take it for a week, and don't have the dreams or sleep > > issues, you can move to 3.0 for a week, lthen combine the 1.5 and the 3.0 > > for 4.5, and not have wasted meds. > > > > It's a classic " start low and slow, " kind of like the way we > > introduce yogurt or even new foods, and generally works well for most > > people. > > > > Mind you, some can dive into the 4.5 right away. > > > > > > †" Marilyn > > New > > Orleans, Louisiana, USA > > Undiagnosed IBS since 1976, SCD since 2001 > > Darn Good SCD Cook > > No Human Children > > Shadow & Sunny Longhair Dachshund > > Babette the Foundling Beagle > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2010 Report Share Posted April 11, 2010 Thanks Sky! My bundle of blood tests that are ordered should rule in/out a lot of those conditions. My GI even ordered the celiac panel again, even though I told her I haven't eaten gluten in more then a year. I still haven't got any docs to finish the thyroid panel though. I've got two more shots, Tuesday and then the following Monday. If I can't get either of those docs to do it, I guess I'll have to pay out of pocket. Oh, and I got my saliva test in the mail. I had planned to do it today, but since I haven't been well the past couple days, I thought I better hold off until later in the week. Holly Crohn's SCD 12/01/08 > > Hi Holly > > Glad the ultrasound was good. Read this > > http://www.medhelp.org/posts/Gastroenterology/elevated-liver-enzymes/show/233780 > > It is very unlikely that it is the LDN. > > Sky > > > > > ________________________________ > > To: BTVC-SCD > Sent: Sun, 11 April, 2010 4:08:47 PM > Subject: Re: LDN > >  > That's really interesting Caroline! I just found out my ultrasound was normal too, and will have more blood work Monday. I've had a lot of immunosuppressants too, and worry they may have mucked up my liver. > > > Visit Your Group > MARKETPLACE > Do More for Dogs Group. Connect with other dog owners who do more. > > ________________________________ > > Welcome to Mom Connection! Share stories, news and more with moms like you. > > ________________________________ > > Hobbies & Activities Zone: Find others who share your passions! Explore new interests. > > Switch to: Text-Only, Daily Digest • Unsubscribe • Terms of Use > . > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2010 Report Share Posted April 11, 2010 On Sun, 11 Apr 2010 13:00:44 -0300, Amelia Bhide wrote: > n > > > Thank you so much for that response! It was just what I was looking > for. I think the info will reassure him in some respects. Could you > tell me about how long it took you to recover from the first rash? This > has actually been building since about early Jan. It became pretty bad > and then seemed to stabilize to a lesser level and remained fairly > constant and mostly manageable since then with only small, mostly short > lived increases in severity. It hasn't kept him in the house/away from > work, but it has made him feel a bit conspicuous. > > Amelia > You're welcome. I had the rash for quite a few weeks before somebody told me to try the coconut oil. Then, though it did feel somewhat better almost immediately, it took a good week or 10 days to be totally gone and totally itch-free and dry-skin-free. I know what you mean about feeling conspicuous with such a thing! n P.S. I won't be reading/writing much email in the next while, including this list, sad to say. Tomorrow I'm starting a full-time job (though only for a couple of months) as a Census supervisor. I haven't been able to work full time in 10 years, so I'm a little apprehensive about this. But am feeling so much better in the last year most of the time on SCD and LDN. We'll see how it goes. I wouldn't have considered it if it were a permanent full-time job, but seeing as it's projected to be a few months, that's perfect to allow me to see how much I can handel. -- Now available. A fine gift for cat lovers: Confessions of a Cataholic: My Life With the 10 Cats Who Caused My Addiction by n Van Til www.wordpowerpublishing.com ; signed copies; free shipping in U.S., reduced shipping elsewhere Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2010 Report Share Posted April 11, 2010 Hi What a waste of time that celiac panel will be it is just going to be negative. Good idea holding off the saliva test until you are well. It is pathetic these days that we have do our own tests to learn something. Sky To: BTVC-SCD Sent: Mon, 12 April, 2010 6:44:43 AMSubject: Re: LDN Thanks Sky! My bundle of blood tests that are ordered should rule in/out a lot of those conditions. My GI even ordered the celiac panel again, even though I told her I haven't eaten gluten in more then a year. I still haven't got any docs to finish the thyroid panel though. I've got two more shots, Tuesday and then the following Monday. If I can't get either of those docs to do it, I guess I'll have to pay out of pocket.Oh, and I got my saliva test in the mail. I had planned to do it today, but since I haven't been well the past couple days, I thought I better hold off until later in the week.HollyCrohn'sSCD 12/01/08 Quote Link to comment Share on other sites More sharing options...
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