Re: Looking for RSS kids with Scoliosis

[Guest guest]

when my daughter was younger I was told she had rss

but they have changed their minds. is 8 years

old and she has a double curved spine, her spine is

like an S she wears a back brace they have considered

surgery for her but we are scared it will do more

harm.

she is the size of a 6 year and she is 9 in June. was

your child premature? mine was 28 weeks and weighed

780g.

I wondered what SGA meant but I was too embarased to

ask anyone so thank you for telling me.

--- sandimasmama wrote:

>

> My 4 yr old son is not RSS, but SGA (small

> gestational age) or small

> stature & has scoliosis from a tethered spinal cord.

> He is doing

> great since having surgery to correct his spinal

> cord in July '03. I

> would love to be in contact with another parent of a

> child with

> scoliosis!

>

>

>

>

>

>

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[Guest guest]

Hi ,

Forgive me, but I don't think I have seen you post before. We have a lot in

common.

was also a 28 weeker, but he weighed only 440 grams. From all the stats

I have

seen on the listserve, I believe he was one of the smallest RSS babies born. He

is 11 now &

weighs 49 lbs. & is 51 " tall. He has kyphosis & scoliosis, and has been wearing

a back

brace since 7/2004. How long has been wearing a brace? Is it helping?

The last

time we went to the orthopedic doctor, 's kyphosis hadn't changed, but

the

scoliosis did. I think he will need to have surgery when he is done growing,

but his doctor

is concerned about the seriousness of the surgery for a child with all his

medical issues.

's kyphosis (c-curve) was always obvious even with clothes on, but I

didn't know

he also had scoliosis until he was evaluated by the orthopedic doctor. Now I

can also see

the scoliosis in his back when he has no shirt on.

Kim C.

> when my daughter was younger I was told she had rss

> but they have changed their minds. is 8 years

> old and she has a double curved spine, her spine is

> like an S she wears a back brace they have considered

> surgery for her but we are scared it will do more

> harm.

> she is the size of a 6 year and she is 9 in June. was

> your child premature? mine was 28 weeks and weighed

> 780g.

> I wondered what SGA meant but I was too embarased to

> ask anyone so thank you for telling me.

> --- sandimasmama <sandimasmama@y...> wrote:

> >

> > My 4 yr old son is not RSS, but SGA (small

> > gestational age) or small

> > stature & has scoliosis from a tethered spinal cord.

> > He is doing

> > great since having surgery to correct his spinal

> > cord in July '03. I

> > would love to be in contact with another parent of a

> > child with

> > scoliosis!

> >

> >

> >

> >

> >

> >

>

>

>

>

>

> ___________________________________________________________

> ALL-NEW Yahoo! Messenger - all new features - even more fun! http://

uk.messenger.yahoo.com