Re: An update - saw my oncologist yesterday

[Guest guest]

Hi Z, Oh I do hope this works quickly for you. You and your family will always be in my thoughts and prayers.Thanks for taking the time to post to us. Love & Prayers, PeggyFlorida, IPF/UIP 2004"I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly." and discussed my treatment. I'm going to have both radiotherapy and a low dose chemotherapy for 4 weeks. They will then check on the size of the tumour and decide whether to operate or continue for a further 2 weeks. The radiotherapy will be everyday (not saturday and sunday) but apparently it will take me longer to find a parking spot than it will to actually be zapped!I have to see the medical oncologist on wednesday so that she can work out exactly what chemo is right for me.It looks like the treatment is going to start on monday week.I am currently on opiates! Wayhay! I'm not allowed to take my normal approach to painkillers and take them only when I'm in pain, I'm to take them 4 times a day to stop me being in pain. (I was finding that the tramadol wasn't working, but it's because it's a build up effect)Because of where the cancer is, and where they're going to do the radiotherapy, this will bring on the menopause, she said that it's 13 years earlier than expected, but I don't know if that's an average or if she's got that from my personal information. She was terribly worried that I'd be upset that I wouldn't be able to have anymore children! Hahahahaha! Yeah right, cos one isn't enough with all my other problems! I'm still absolutely exhausted, which is why I haven't been around a lot.There is every possibility that after this round of treatment the cancer will be gone gone gone So that bit of string is turning into a rope now Thank you all for your good wishes.Love Ze xx

[Guest guest]

Zena Warrior

I've been trying to keep up between here and facebook and just so happy

to see you with hope in spite of what's shown up in your path. It does

sound like your doctors believe they can get it, just figuring out

exactly what dosage and combination and how long is the task.

Opiates, oh my......now don't do anything too wild or crazy.

We are thinking of you even when you're not posting much.

>

>

> and discussed my treatment.

>

> I'm going to have both radiotherapy and a low dose chemotherapy for 4

> weeks. They will then check on the size of the tumour and decide

> whether to operate or continue for a further 2 weeks. The

radiotherapy

> will be everyday (not saturday and sunday) but apparently it will take

> me longer to find a parking spot than it will to actually be zapped!

>

> I have to see the medical oncologist on wednesday so that she can work

> out exactly what chemo is right for me.

>

> It looks like the treatment is going to start on monday week.

>

> I am currently on opiates! Wayhay! I'm not allowed to take my normal

> approach to painkillers and take them only when I'm in pain, I'm to

take

> them 4 times a day to stop me being in pain. (I was finding that the

> tramadol wasn't working, but it's because it's a build up effect)

>

> Because of where the cancer is, and where they're going to do the

> radiotherapy, this will bring on the menopause, she said that it's 13

> years earlier than expected, but I don't know if that's an average or

if

> she's got that from my personal information. She was terribly

worried

> that I'd be upset that I wouldn't be able to have anymore children!

> Hahahahaha! Yeah right, cos one isn't enough with all my other

> problems!

>

> I'm still absolutely exhausted, which is why I haven't been around a

> lot.

>

> There is every possibility that after this round of treatment the

cancer

> will be gone gone gone []

>

> So that bit of string is turning into a rope now []

>

> Thank you all for your good wishes.

>

> Love Ze xx

>

[Guest guest]

Zena, Keep staying strong as you have been doing. Let us know how it

goes for you. Toodles! Jane UIP/IPF 12/1998 Dalton, Georgia aka

pianolady_musicgirl and also your fellow farmer/neighbor.

>

>

> and discussed my treatment.

>

> I'm going to have both radiotherapy and a low dose chemotherapy for 4

> weeks. They will then check on the size of the tumour and decide

> whether to operate or continue for a further 2 weeks. The

> radiotherapy will be everyday (not saturday and sunday) but

> apparently it will take me longer to find a parking spot than it will

> to actually be zapped!

>

> I have to see the medical oncologist on wednesday so that she can

> work out exactly what chemo is right for me.

>

> It looks like the treatment is going to start on monday week.

>

> I am currently on opiates! Wayhay! I'm not allowed to take my

> normal approach to painkillers and take them only when I'm in pain,

> I'm to take them 4 times a day to stop me being in pain. (I was

> finding that the tramadol wasn't working, but it's because it's a

> build up effect)

>

> Because of where the cancer is, and where they're going to do the

> radiotherapy, this will bring on the menopause, she said that it's 13

> years earlier than expected, but I don't know if that's an average or

> if she's got that from my personal information. She was terribly

> worried that I'd be upset that I wouldn't be able to have anymore

> children! Hahahahaha! Yeah right, cos one isn't enough with all my

> other problems!

>

> I'm still absolutely exhausted, which is why I haven't been around a

> lot.

>

> There is every possibility that after this round of treatment the

> cancer will be gone gone gone

>

> So that bit of string is turning into a rope now

>

> Thank you all for your good wishes.

>

> Love Ze xx

>

[Guest guest]

Ze... I caught your post by reading Peggy's...I do so love what you wrote; 'a piece of string turning into rope'. I'm going to remember that.

I pray the chemo or whatever treatment you have to work quickly and thoroughly.

MamaSher; 71, IPF 3-2006, OR.Don't fret about tomorrow, God is already there!

Re: An update - saw my oncologist yesterday

Zena, Keep staying strong as you have been doing. Let us know how itgoes for you. Toodles! Jane UIP/IPF 12/1998 Dalton, Georgia akapianolady_musicgirl and also your fellow farmer/neighbor.>>> and discussed my treatment.>> I'm going to have both radiotherapy and a low dose chemotherapy for 4> weeks. They will then check on the size of the tumour and decide> whether to operate or continue for a further 2 weeks. The> radiotherapy will be everyday (not saturday and sunday) but> apparently it will take me longer to find a parking spot than it will> to actually be zapped!>> I have to see the medical oncologist on wednesday so that she can> work out exactly what chemo is right for me.>> It looks like the treatment is going to start on monday week.>> I am currently on opiates! Wayhay! I'm not allowed to take my> normal approach to painkillers and take them only when I'm in pain,> I'm to take them 4 times a day to stop me being in pain. (I was> finding that the tramadol wasn't working, but it's because it's a> build up effect)>> Because of where the cancer is, and where they're going to do the> radiotherapy, this will bring on the menopause, she said that it's 13> years earlier than expected, but I don't know if that's an average or> if she's got that from my personal information. She was terribly> worried that I'd be upset that I wouldn't be able to have anymore> children! Hahahahaha! Yeah right, cos one isn't enough with all my> other problems!>> I'm still absolutely exhausted, which is why I haven't been around a> lot.>> There is every possibility that after this round of treatment the> cancer will be gone gone gone>> So that bit of string is turning into a rope now>> Thank you all for your good wishes.>> Love Ze xx>

[Guest guest]

Ze, I hope that all goes well

with all the radiation and chemo..

remember to rest and take care of YOU!

You are the Warrior Princess!!

Sending (((HUGS))) (((HUGS))) (((HUGS)))

Z fibriotic NSIP/05

Z 65, fibriotic NSIP/05/PA

And

“mild” PH/10/07

No,

NSIP was not self-inflicted…I never smoked!

Potter,

reader,carousel lover and MomMom to Darah and Sara

“I’m

gonna be iron like a lion in Zion” Bob Marley

Vinca

Minor-periwinkle is my flower

bty12827590 wrote:

and discussed my

treatment.

I'm going to have both

radiotherapy and a low dose chemotherapy for 4 weeks. They will then

check on the size of the tumour and decide whether to operate or

continue for a further 2 weeks. The radiotherapy will be everyday (not

saturday and sunday) but apparently it will take me longer to find a

parking spot than it will to actually be zapped!

I have to see the

medical oncologist on wednesday so that she can work out exactly what

chemo is right for me.

It looks like the

treatment is going to start on monday week.

I am currently on

opiates! Wayhay! I'm not allowed to take my normal approach to

painkillers and take them only when I'm in pain, I'm to take them 4

times a day to stop me being in pain. (I was finding that the tramadol

wasn't working, but it's because it's a build up effect)

Because of where the

cancer is, and where they're going to do the radiotherapy, this will

bring on the menopause, she said that it's 13 years earlier than

expected, but I don't know if that's an average or if she's got that

from my personal information. She was terribly worried that I'd be

upset that I wouldn't be able to have anymore children! Hahahahaha!

Yeah right, cos one isn't enough with all my other problems!

I'm still absolutely

exhausted, which is why I haven't been around a lot.

There is every

possibility that after this round of treatment the cancer will be gone

gone gone

So that bit of string

is turning into a rope now

Thank you all for your

good wishes.

Love Ze xx

[Guest guest]

Just wanted to let you know that I'm thinking of you and hoping and praying for the absolute best outcome.PJ in OH, 54, IPF'09,Sjogren's|'95 An update - saw my oncologist yesterday

and discussed my treatment.

I'm going to have both radiotherapy and a low dose chemotherapy for 4 weeks. They will then check on the size of the tumour and decide whether to operate or continue for a further 2 weeks. The radiotherapy will be everyday (not saturday and sunday) but apparently it will take me longer to find a parking spot than it will to actually be zapped!

I have to see the medical oncologist on wednesday so that she can work out exactly what chemo is right for me.

It looks like the treatment is going to start on monday week.

I am currently on opiates! Wayhay! I'm not allowed to take my normal approach to painkillers and take them only when I'm in pain, I'm to take them 4 times a day to stop me being in pain. (I was finding that the tramadol wasn't working, but it's because it's a build up effect)

Because of where the cancer is, and where they're going to do the radiotherapy, this will bring on the menopause, she said that it's 13 years earlier than expected, but I don't know if that's an average or if she's got that from my personal information. She was terribly worried that I'd be upset that I wouldn't be able to have anymore children! Hahahahaha! Yeah right, cos one isn't enough with all my other problems!

I'm still absolutely exhausted, which is why I haven't been around a lot.

There is every possibility that after this round of treatment the cancer will be gone gone gone

So that bit of string is turning into a rope now

Thank you all for your good wishes.

Love Ze xx

[Guest guest]

So, more waiting! I have to have a scan in the position that I will be for the radiotherapy (surprisingly NOT legs akimbo) and they are going to TATOO me to make sure they line me up right each time Hopefully this will be friday. I will be getting i/v chemo once a week, hopefully my veins will be up to that without needing a port. I have been given a prescription for liquid morphine, and instructions to make a note of how much I'm using so that they can adjust if necessary. I will be going on clexane, it's more to do with clexane being more stable and not affected by any chemo. I should be starting them on friday. I'll be having the full six weeks of treatment and then they'll see how it's doing. She did say that she would expect the tumor to be reduced enough in 2 weeks to make a considerable difference to my comfort levels. The radiotherapy will cause burning. The skin in that area being more sensitive and not exposed to the elements like other skin it's very likely to break down. If this happens then I'll be hauled in to hospital to get that sorted. I've been told to get my flu jab sorted before the treatment starts. Dunno why I told you that, more to remind me to get it sorted >> Just wanted to let you know that I'm thinking of you and hoping and praying for the absolute best outcome.> PJ in OH, 54, IPF'09,Sjogren's|'95> > An update - saw my oncologist yesterday> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > and discussed my treatment. > > > I'm going to have both radiotherapy and a low dose chemotherapy for 4 weeks. They will then check on the size of the tumour and decide whether to operate or continue for a further 2 weeks. The radiotherapy will be everyday (not saturday and sunday) but apparently it will take me longer to find a parking spot than it will to actually be zapped!> > > I have to see the medical oncologist on wednesday so that she can work out exactly what chemo is right for me.> > > It looks like the treatment is going to start on monday week.> > > I am currently on opiates! Wayhay! I'm not allowed to take my normal approach to painkillers and take them only when I'm in pain, I'm to take them 4 times a day to stop me being in pain. (I was finding that the tramadol wasn't working, but it's because it's a build up effect)> > > Because of where the cancer is, and where they're going to do the radiotherapy, this will bring on the menopause, she said that it's 13 years earlier than expected, but I don't know if that's an average or if she's got that from my personal information. She was terribly worried that I'd be upset that I wouldn't be able to have anymore children! Hahahahaha! Yeah right, cos one isn't enough with all my other problems! > > > I'm still absolutely exhausted, which is why I haven't been around a lot.> > > There is every possibility that after this round of treatment the cancer will be gone gone gone > > > So that bit of string is turning into a rope now > > > Thank you all for your good wishes.> > > Love Ze xx>

[Guest guest]

Zena,

Please know that I'm sending love and positive thoughts and prayers to you. Hopefully you make it through this with as little discomfort as possible. It sounds so overwhelming and if it sounds that way to me I can only imagine how it sounds to you.

Hugs from across the Atlantic!

Love,

MB

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

To: Breathe-Support Sent: Wednesday, September 30, 2009 3:49:14 PMSubject: Re: An update - saw my oncologist yesterday

So, more waiting! I have to have a scan in the position that I will be for the radiotherapy (surprisingly NOT legs akimbo) and they are going to TATOO me to make sure they line me up right each time Hopefully this will be friday. I will be getting i/v chemo once a week, hopefully my veins will be up to that without needing a port. I have been given a prescription for liquid morphine, and instructions to make a note of how much I'm using so that they can adjust if necessary. I will be going on clexane, it's more to do with clexane being more stable and not affected by any chemo. I should be starting them on friday. I'll be having the full six weeks of treatment and then they'll see how it's doing. She did say that she would expect the

tumor to be reduced enough in 2 weeks to make a considerable difference to my comfort levels. The radiotherapy will cause burning. The skin in that area being more sensitive and not exposed to the elements like other skin it's very likely to break down. If this happens then I'll be hauled in to hospital to get that sorted. I've been told to get my flu jab sorted before the treatment starts. Dunno why I told you that, more to remind me to get it sorted >> Just wanted to let you know that I'm thinking of you and hoping and praying for the absolute best outcome.> PJ in OH, 54, IPF'09,Sjogren' s|'95> > An update - saw my oncologist yesterday> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > and discussed my treatment. > > > I'm going to have both radiotherapy and a low dose chemotherapy for 4 weeks. They will then check on the size of the tumour and decide whether to operate or continue for a further 2 weeks. The radiotherapy will be everyday (not saturday and sunday) but apparently it will take me longer to find a parking spot than it will to

actually be zapped!> > > I have to see the medical oncologist on wednesday so that she can work out exactly what chemo is right for me.> > > It looks like the treatment is going to start on monday week.> > > I am currently on opiates! Wayhay! I'm not allowed to take my normal approach to painkillers and take them only when I'm in pain, I'm to take them 4 times a day to stop me being in pain. (I was finding that the tramadol wasn't working, but it's because it's a build up effect)> > > Because of where the cancer is, and where they're going to do the radiotherapy, this will bring on the menopause, she said that it's 13 years earlier than expected, but I don't know if that's an average or if she's got that from my personal information. She was terribly worried that I'd be upset that I wouldn't be able to have anymore children! Hahahahaha! Yeah right, cos one isn't enough

with all my other problems! > > > I'm still absolutely exhausted, which is why I haven't been around a lot.> > > There is every possibility that after this round of treatment the cancer will be gone gone gone > > > So that bit of string is turning into a rope now > > > Thank you all for your good wishes.> > > Love Ze xx>