Re: More questions

[Guest guest]

I ate almost nothing at the hospital. Recall jello and broth then a

plate full of " real " food. I started eating when I got home.

I have never had a protein drink. Not planning on starting.

I take kiddie chewable vitamins.. a generic version. Calcium and a

few others. Not a lot. Cheap stuff that works.

I got out of bed the day of surgery.. started moving around the next

day. Walking-- real walking was limited for me until I was back at

work and then I walked more than I realized I ever did. I walked in

the stores. But never have walked just to walk.

Take a pillow you like for your head. A simple snap robe for modesty

when you wak to the bathroom.. and the most important thing is to

take along someone who will be there, help you, coddle you etc.

And I think there's a list or two of what to take in the files on

several of the WLS lists. I used almost nothing of what I took

except the pillow and robe.

Good luck to you!

/Seattle

> Hi Everyone

>

> For those of you that have had BPD/DS what did they give you at

the

> hospital to eat?

>

[Guest guest]

,

When I had my 1st big panc attack my face was ashen also. I'm not sure what

caused it because the other panc attacks I've had recently I don't remember my

face looking that way.

Sincerely

Patty

> More Questions

>

> Hi all: I know I keep posting with questions and I'm sorry about

> that because I DO feel as though I'm being selfish in my quest to

> know more about this disease. But you guys are literally all I have

> as a support mechanism. The last few days I've been feeling

> extremely weak and absolutely exhausted. I've got circles under my

> eyes, my skin is taking on an ashen tone.....I mean I literally look

> like the walking dead. Does everybody else experience this? Or

> should I be concerned that something " else " is going on?

> thanks in advance

> (the pest)

>

>

>

>

>

>

>

>

>

[Guest guest]

Thanks Patty.....I'm just a little concerned, but I'm thinking it's

probably due to the fact that I am basically not eating anything

(feel better when I don't eat) other than maybe something like a

bagel or toast....I'm probably getting malnourished or something.

This really sucks (pardon my language)!!!

Again thanks for the input - I DO appreciate it!!

P.S. Haven't noticed any posts recently from (?) the

founder of this site......has anyone else heard from her? Is she ok?

When I first suspected I had panc problems prior to the GB surgery

she would post once in awhile....hope she's ok.

> ,

> When I had my 1st big panc attack my face was ashen also. I'm not

sure what caused it because the other panc attacks I've had recently

I don't remember my face looking that way.

> Sincerely

> Patty

>

> > More Questions

> >

> > Hi all: I know I keep posting with questions and I'm sorry

about

> > that because I DO feel as though I'm being selfish in my quest

to

> > know more about this disease. But you guys are literally all I

have

> > as a support mechanism. The last few days I've been feeling

> > extremely weak and absolutely exhausted. I've got circles under

my

> > eyes, my skin is taking on an ashen tone.....I mean I literally

look

> > like the walking dead. Does everybody else experience this? Or

> > should I be concerned that something " else " is going on?

> > thanks in advance

> > (the pest)

> >

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

,

It couldn't hurt to get your iron levels checked. During my

pancreatitis at it's worst stage, I was severely anaemic...not able

to stand without getting dizzy and feeling faint, white as a ghost,

eyes were sunken and black under my eyes, not having energy to do

anything etc. My doctor saw this and immediately admitted me and

gave me an iron transfusion. My level was a 7 where the norm is 12-

14 I believe. I felt immediately better once I had the extra iron

put in.

[Guest guest]

That's probably the case I'm guessing. I feel anemic...should I

just take vitamins w/iron? Or should I get it checked? In other

words what are the possible health ramifications of being anemic?

thanks

> ,

>

> It couldn't hurt to get your iron levels checked. During my

> pancreatitis at it's worst stage, I was severely anaemic...not

able

> to stand without getting dizzy and feeling faint, white as a

ghost,

> eyes were sunken and black under my eyes, not having energy to do

> anything etc. My doctor saw this and immediately admitted me and

> gave me an iron transfusion. My level was a 7 where the norm is 12-

> 14 I believe. I felt immediately better once I had the extra iron

> put in.

>

>

[Guest guest]

Iron isn't something that should be fooled around with..by that I

mean too much can be harmful to the body. The nurses stressed to me

when getting the infusion that if I noticed anything that didn't

feel right I was to let them know immediately, and they in turn

checked on me every 20 minutes or so whilst it was being infused.

Taking iron tablets isn't like that to that degree, but I'd be

getting my levels checked first and ask the doctor how many to take.

If it is extremely low, a transfusion might be necessary to get you

back to normal. If it is just a little under it can be remedied with

iron vitamins...

[Guest guest]

Thanks ....if I still feel this poorly tomorrow I will put

in a call to my GP and ask if I can get checked.

thanks again

> Iron isn't something that should be fooled around with..by that I

> mean too much can be harmful to the body. The nurses stressed to

me

> when getting the infusion that if I noticed anything that didn't

> feel right I was to let them know immediately, and they in turn

> checked on me every 20 minutes or so whilst it was being infused.

>

> Taking iron tablets isn't like that to that degree, but I'd be

> getting my levels checked first and ask the doctor how many to

take.

> If it is extremely low, a transfusion might be necessary to get

you

> back to normal. If it is just a little under it can be remedied

with

> iron vitamins...

>

>

[Guest guest]

I can't eat anything either. I have lost 30lbs since Dec. I can't tolerate reg

low fat diet. The only things I can is oatmeal, fruit, cinnamon and brown sugar

poptarts, and re: cereal. I'm like you but my doctor told me to try drinking 4

cans of Boost a day but that even made me sick.

I wanted to check with others about the e-mail I received re: CPPS (Chronic

Pancreatitis Pain Support Group) I went to that group and put in information

about my CP and I was denied by the Site Moderator Hallock membership.

Has anyone else received the e-mail or went to the Yahoo group

ChronicPancreatitisPainSupport (CPPS) and was denied membership? What kind of

pain do you have to have to be accepted?

Patty

Corydon, IN

> More Questions

> > >

> > > Hi all: I know I keep posting with questions and I'm sorry

> about

> > > that because I DO feel as though I'm being selfish in my quest

> to

> > > know more about this disease. But you guys are literally all I

> have

> > > as a support mechanism. The last few days I've been feeling

> > > extremely weak and absolutely exhausted. I've got circles under

> my

> > > eyes, my skin is taking on an ashen tone.....I mean I literally

> look

> > > like the walking dead. Does everybody else experience this? Or

> > > should I be concerned that something " else " is going on?

> > > thanks in advance

> > > (the pest)

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

Patty: The foods you mention are the ONLY ones I can tolerate of

late. I cannot tolerate anything else AT ALL or else I get very

ill. Even the thought of meat makes me nauseous. Heck, even typing

it makes me nauseous, I kid you not!! Isn't that strange? Thinking

back on it now, right after the GB surgery I tried to drink Ensure

because I didn't have much of an appetite and that's probably when I

first noticed the pain coming back w/nausea. I don't know anything

about the support group that you are mentioning.....what is it

some " exclusive " thing? I agree with you....how much pain does a

person have to be in to be granted membership? What were the

reasons they denied you on? Or did they say? That's odd...

> > > ,

> > > When I had my 1st big panc attack my face was ashen also. I'm

not

> > sure what caused it because the other panc attacks I've had

recently

> > I don't remember my face looking that way.

> > > Sincerely

> > > Patty

> > >

> > > > More Questions

> > > >

> > > > Hi all: I know I keep posting with questions and I'm sorry

> > about

> > > > that because I DO feel as though I'm being selfish in my

quest

> > to

> > > > know more about this disease. But you guys are literally

all I

> > have

> > > > as a support mechanism. The last few days I've been feeling

> > > > extremely weak and absolutely exhausted. I've got circles

under

> > my

> > > > eyes, my skin is taking on an ashen tone.....I mean I

literally

> > look

> > > > like the walking dead. Does everybody else experience

this? Or

> > > > should I be concerned that something " else " is going on?

> > > > thanks in advance

> > > > (the pest)

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

[Guest guest]

She didn't say. It just said membership denied. This support group (PAI) is

the only group that I have found that has been helpful and knowledgeable. I

love everyone in this group whether you ARE SHOUTING or depressed or at wits end

this group has been here for me the whole way.

You mentioned your gallbladder being removed. I had my gall bladder removed two

months before my 1st panc attack. My first GI doctor told me it (CP) was caused

by alcohol abuse. I believe it was my gall bladder removal that caused it. I

have heard so many stories, especially this group, of being diagnosed with CP

after gall bladder removal. I think everyone in this group gives more

information re: this disease than any doctor I have seen.

Thanks everyone

Patty

Corydon, IN

> More Questions

> > > > >

> > > > > Hi all: I know I keep posting with questions and I'm sorry

> > > about

> > > > > that because I DO feel as though I'm being selfish in my

> quest

> > > to

> > > > > know more about this disease. But you guys are literally

> all I

> > > have

> > > > > as a support mechanism. The last few days I've been feeling

> > > > > extremely weak and absolutely exhausted. I've got circles

> under

> > > my

> > > > > eyes, my skin is taking on an ashen tone.....I mean I

> literally

> > > look

> > > > > like the walking dead. Does everybody else experience

> this? Or

> > > > > should I be concerned that something " else " is going on?

> > > > > thanks in advance

> > > > > (the pest)

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

[Guest guest]

Hi Gloria,

Welcome to the group. My doctor (and every dr. and dietician is different)

tells me no carbonated beverages ever again. Also, I was told if I want to

have tea of any sort I can, but not often. I do crystal light peach tea, once

in

a great while and I'm sure in the winter I will want a cup of hot tea here

and there, but again, not often. Apparently, tea has certain things in it that

prevent the absorption of vitamins and nutrients into your system.

Does any one in the group know if coffee is the same?

It was not hard to give these things up. I still want a soda once in a

while, but I just get something else and is passes. I use to drink regular soda

all day long and I haven't had any issues giving it up. I was mentally and

physically ready for this surgery. I doubted myself a little before the

surgery,

but I knew this was the only way for me to go at the point I was at.

Good luck and keep us updated.

in Delaware

Lap RNY 3/10/04

261/179/125

[Guest guest]

My surgeon told me my diet pops were ok as long as i let them sit out for

about 10 minutes for the carbonation to settle. i usually drink diet uncolas

now

mixed with some S/F fruit juices. I used to be a Diet Coke junkie but since

surgery I think I might have had the total amount of one can. I was also told

no caffeine and coffee was ok but decafenated. They even gave me decafe

coffee in the hospital along with decafe hot tea. Just check with ones doc

before

doing to make sure.

Laurette

4/23/04 open rny

309/290/245/150

St. Charity

Cleveland, Ohio

[Guest guest]

First of all, every doctor has different recommendations for their

patients. You'll see frequently here where members all cite the

different things they were told. So you have to follow your own

doctor's advice.

But some things are pretty universal. Most everyone has to go off

caffeine, at least initially. I was told to give up caffeine, but many

others were told one cup of coffee a day would not hurt them.

The carbonation is deleterious to your pouch. You really don't want to

damage that surgery you waited so long for. Once you're on the other

side of the surgery, you'll see why we are all so very careful. It's

just not worth the risk.

I too drink that flavored water. But what I do (and did even pre-op)

is to mix it half and half with water. This reduces the carbonation to

almost nothing, makes the water less sweet and more refreshing, and

helps me get in my daily water allowance.

As for mentally giving up the things you love now, for me it was like

starting from scratch. You come home from the hospital not able to do

much of anything. You gradually get to add things back into your diet.

So it's not like the withdrawal of a usual diet where you just have to

give something up and then deal with the cravings. Many people find it

difficult to enjoy much af anything for a while.

> Hi again,

>

> I realize that the surgery requires life changes in regard to food

but some

> of the things I'm thinking (one this morning as I was sitting in

Starbucks

> sipping on my Skim Mocha Valencia Cappacino). I enjoy my once or

twice a

> week treat at Starbucks with a coffee or frappacino. I enjoy

drinking my

> Diet Pepsi and flavored waters. I know that I have to make changes

but I

> guess I'm concerned about being able to give these things up. I

have read

> you should stay away from carbonated drinks. Haven't read anything

about

> coffee. Bottom line what do you do mentally to give up the things you

> really enjoy I know it's not a button that you just turn on or off.

>

> glo

[Guest guest]

Glo... you would not beleive how your taste will change. I myself would drink

a least (if not more) a 6 pack od diet pepsi a day. I even drank it the day

before surgery. I am almost 4 weeks post and I drink a sip here and there but

it is so sickening I cant stand it. I myself never thought I would be able to

drink water cuz I HATED IT !!!!! But here I sit with a bottle in front of me

and have one by my side all the time. Its funny because peps notice me drinking

water more then me losing weight. I have lost 40 lbs since 6/23/04 and

tomorrow is weigh in day and I am looking forward to it. Good Luck Girl, if I

can do

it I know you can too!!!!!

Tammy In PA

[Guest guest]

Gloria,

I was a Starbucks lover also. At about 4 weeks post op I had a sugar free

vanilla latte and it set well with me.

Vickie

224/191.5/130 ish

6-7-04 open RNY

Dr. Daryl in Denton, Texas

More questions

Hi again,

I realize that the surgery requires life changes in regard to food but

some

of the things I'm thinking (one this morning as I was sitting in Starbucks

sipping on my Skim Mocha Valencia Cappacino). I enjoy my once or twice a

week treat at Starbucks with a coffee or frappacino. I enjoy drinking my

Diet Pepsi and flavored waters. I know that I have to make changes but I

guess I'm concerned about being able to give these things up. I have read

you should stay away from carbonated drinks. Haven't read anything about

coffee. Bottom line what do you do mentally to give up the things you

really enjoy I know it's not a button that you just turn on or off.

glo

[Guest guest]

Because milk is so good for me I tend to have at least 1 latte a day,

sometimes caff, sometimes decaf, if I have the caff I up my water, but

everything sits fine and I either have sf syrup or splenda added.

Lap RNY April 9, 2004

348/282/140 (begin/current/goal)

www.carrieburns.net

> Gloria,

> I was a Starbucks lover also.  At about 4 weeks post op I had a sugar

> free

> vanilla latte and it set well with me.

>

> Vickie

> 224/191.5/130 ish

> 6-7-04 open RNY

> Dr. Daryl in Denton, Texas

>

>   More questions

>

>

>   Hi again,

>

>   I realize that the surgery requires life changes in regard to food

> but

> some

>   of the things I'm thinking (one this morning as I was sitting in

> Starbucks

>   sipping on my Skim Mocha Valencia Cappacino).  I enjoy my once or

> twice a

>   week treat at Starbucks with a coffee or frappacino.  I enjoy

> drinking my

>   Diet Pepsi and flavored waters.  I know that I have to make changes

> but I

>   guess I'm concerned about being able to give these things up.  I

> have read

>   you should stay away from carbonated drinks.  Haven't read anything

> about

>   coffee.  Bottom line what do you do mentally to give up the things

> you

>   really enjoy I know it's not a button that you just turn on or off.

>

>   glo

>

>

>

>        

[Guest guest]

Congrats Tammy hope it goes well tomorrow.

Glo

>From: Tryin2Smile720@...

>Reply-To: Gastric_Bypass_Family

>To: Gastric_Bypass_Family

>Subject: Re: More questions

>Date: Wed, 21 Jul 2004 21:15:11 EDT

>

[Guest guest]

tomorrow is weigh in day and I am looking forward to it. Good Luck Girl, if I

can do

it I know you can too!!!!!

Tammy In PA

____________________________

How long has it been since you heard any one of us say that we looked forward to

weigh in day? That is awesome!!!!! Good luck on the scales

Dora in Tennessee

Lap/Open RNY (date?)

Vanderbilt Hospital

451/445.6/150

[Guest guest]

Hi Mike, I can sit for half hour or so w/out 02 was an hour or two but things change.. Anyhow YES we should all be sleeping with 02. while we sleep our respiratory slows and we breathe very shallow so our 02 drops more that during the day. I have used 02 at night for at least the past four years. You will also feel more rested and not so tired in the AM.I do try to keep my 02 in the mid 90's sitting without it is becoming a problem so I think I am about to have to glue a tube in. I keep taking it off.. NOT GOOD. Love & Prayers, PeggyFlorida, IPF/UIP 2004"I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly." Hi all, I have a couple more questions to which I hope some of you can take time to give your input. I have read that many on this forum take NAC in the liquid state by way of a nebulizer. When first diagnosed a couple of years ago at UW Seattle, I was told there were NAC tablets now available. I never thought twice in that I'd rather take the tablet form if it was as effective. I was told to take the 600 mg 3-4 times daily. I researched and found there was a time release form which provided a more constant level of treatment. That is the form I have been using and it seems to do a good job at keeping the mucous down. Did I make a false assumption? Is the liquid more effective? Secondly, I have been told by many pulmonologists (including those at the IPF centers) that I should use oxygen when sleeping, being active and even sitting (my resting oxygen is 94-95) should it make me feel better. What is your take on this? Are you happy sitting without oxygen as long as it is 90 or above or are you one to try to keep your oxygen in the mid 90's (if you can) as much as you can? Mike

[Guest guest]

Mike, I forgot to say I am waiting for the UPS guy to bring the little machine to do an overnight saturation test..My Apria office is across town and they are sending it UPS.. How crazy is that. Then I send it back UPS ( they are sending a return label) then they download the data and send it to my DR.. I am thinking will probably take it back over to them, He has plenty of time.. Ask your Dr for an overnight oximeter test.. not a big deal.. unless you need it and don't do it. Love & Prayers, PeggyFlorida, IPF/UIP 2004"I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly." Hi Mike, I can sit for half hour or so w/out 02 was an hour or two but things change.. Anyhow YES we should all be sleeping with 02. while we sleep our respiratory slows and we breathe very shallow so our 02 drops more that during the day. I have used 02 at night for at least the past four years. You will also feel more rested and not so tired in the AM.I do try to keep my 02 in the mid 90's sitting without it is becoming a problem so I think I am about to have to glue a tube in. I keep taking it off.. NOT GOOD. Love & Prayers, PeggyFlorida, IPF/UIP 2004"I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly." Hi all, I have a couple more questions to which I hope some of you can take time to give your input. I have read that many on this forum take NAC in the liquid state by way of a nebulizer. When first diagnosed a couple of years ago at UW Seattle, I was told there were NAC tablets now available. I never thought twice in that I'd rather take the tablet form if it was as effective. I was told to take the 600 mg 3-4 times daily. I researched and found there was a time release form which provided a more constant level of treatment. That is the form I have been using and it seems to do a good job at keeping the mucous down. Did I make a false assumption? Is the liquid more effective? Secondly, I have been told by many pulmonologists (including those at the IPF centers) that I should use oxygen when sleeping, being active and even sitting (my resting oxygen is 94-95) should it make me feel better. What is your take on this? Are you happy sitting without oxygen as long as it is 90 or above or are you one to try to keep your oxygen in the mid 90's (if you can) as much as you can? Mike

[Guest guest]

Peggy

So glad you're having the overnight oximeter. It's so simple and the

only way we can know. We sometimes overlook it as our needs increase. To

me its far more important than the PFT's you just did. Anyone who has

had an increase in daytime oxygen requirements since you were told what

to use at night, get tested. Wouldn't it be bad to find out you're

making so much effort during the day but 2 hours each night you're

undersaturated.

>

>

> Hi all,

> I have a couple more questions to which I hope some of you can take

> time to give your input. I have read that many on this forum take NAC

> in the liquid state by way of a nebulizer. When first diagnosed a

> couple of years ago at UW Seattle, I was told there were NAC tablets

> now available. I never thought twice in that I'd rather take the

> tablet form if it was as effective. I was told to take the 600 mg 3-4

> times daily. I researched and found there was a time release form

> which provided a more constant level of treatment. That is the form I

> have been using and it seems to do a good job at keeping the mucous

> down. Did I make a false assumption? Is the liquid more effective?

> Secondly, I have been told by many pulmonologists (including those at

> the IPF centers) that I should use oxygen when sleeping, being active

> and even sitting (my resting oxygen is 94-95) should it make me feel

> better. What is your take on this? Are you happy sitting without

> oxygen as long as it is 90 or above or are you one to try to keep

> your oxygen in the mid 90's (if you can) as much as you can?

>

> Mike

>