Guest guest Posted September 16, 2009 Report Share Posted September 16, 2009 For respiratory diseases there is a good write up on the social security site telling how they are suppose to evaluate it. FEV1 and FVC's can show you quickly if you appear to qualify. However, even if they don't automatically qualify you, other health factors might well do so. Now the doctor who expresses the negative sentiment is the same one you'll have problems getting paperwork from. > > > From: Paradis3@... Paradis3@... > Subject: Re:tired > To: Breathe-Support > Date: Wednesday, September 16, 2009, 5:12 AM > > >  > > > > >   You have to be aggressive. I can't believe some of these doctors. My first pulmonologist got the diagnosis of IPF, gave it to me, said it was " very advanced " and sat back in his chair and said basically nothing could be done. I would not qualify for a lung transplant, there was no pulmonary rehab available, nothing could be done. So I went home, read up on it, found out about pulmonary rehab, found out about drug trials to ask him about, found out more about transplants, went back and asked him about these things and he just wasn't interested in helping. And he's a senior doc, has fellowships, great credentials, the whole deal. >  So I changed pulmo dudes. Now I'm approved for a transplant, I've had pulmonary therapy and go to the gym 4 times a week, I'm taking NAC and some other things that might help, and I've lived a year longer already than the first guy thought I would! >   DO NOT HESITATE TO CHANGE DOCTORS!! >  > Bill C. IPF 10/08 > N.E. PA > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2009 Report Share Posted September 17, 2009 dyanne applying for ssdi, was a lot of paper work, but not working, it gave me something to do it was relatively easy ss sent me a packet and i followed directions, filled out the forms and went for the interview the following month the money was in the bank besides wearing o2 at the interview, i didn't wear any make-up they seemed to be "impressed" with all of the paperwork that i brought and made copies of everything Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund.org--- Subject: Re:tired (thank you)To: Breathe-Support Date: Wednesday, September 16, 2009, 11:57 PM Bruce,Thats very true, but how many of the new people to this board come to usscared to death because they have gone t0 the internet and the VERYFIRST THING THEY READ says Death in 3 to 5 years! For once we should beable to use that to our advantage! I know we are all different but Iknow my body and the odds of me getting a lung transplant are betweenslim to none. I'm already on 8lpm. This damn disease is gonna kill melong before I see my youngest granddaughter grow up and at the veryleast I shouldn't have to jump through hoops to prove it to some ass atthe local SS office! I don't mean to be rude but I'm tired of beingtired, tired of being tied to a frigging 40 foot cord, tired of havingto explain and explain and explain...Dyane> > > > >> > > > >> > > > > From: Paradis3 (AT) aol (DOT) com Paradis3 (AT) aol (DOT) com>> > > > > Subject: Re:tired> > > > > To: Breathe-Support@ yahoogroups. com> > > > > Date: Wednesday, September 16, 2009, 5:12 AM> > > > >> > > > >> > > > > Â> > > > >> > > > >> > > > >   You have to be aggressive. I can't believe> > some of> > > these doctors. My first pulmonologist got the diagnosis of> IPF,> > > gave it to me, said it was "very advanced" and sat back in hischair> > and> > > said basically nothing could be done. I would not qualifyfor> a> > > lung transplant, there was no pulmonary rehab available, nothing> could> > > be done. So I went home, read up on it, found out about> > pulmonary> > > rehab, found out about drug trials to ask him about, found outmore> > > about transplants, went back and asked him about these things andhe> > > just wasn't interested in helping. And he's a senior doc,has> > > fellowships, great credentials, the whole deal.Â> > > > >  So I changed pulmo dudes. Now I'm approved for a> > > transplant, I've had pulmonary therapy and go to the gym 4 times a> > week,> > > I'm taking NAC and some other things that might help, and I'velived> a> > > year longer already than the first guy thought I would!> > > > >   DO NOT HESITATE TO CHANGE DOCTORS!!> > > > > Â> > > > > Bill C. IPF 10/08> > > > > N.E. PA> > > > >> > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
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