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Re:Re: Decision about meds, was Re: dccc/yeast

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Kat

Being

on an immune-suppressant like Prednisone means that yeast will get out of hand,

so you have to deal with them along with everything else. However you

also want to get your UC under control, which means taking a med. like

Prednisone. It is tricky.

I

wouldn’t take another antifungal for a while, not even a natural one like

garlic or lemon juice. I would just focus on finding foods that are

easy-to-digest but also are lower in carbs and sugars. Or don’t

have a high-carb food more than every other day or every two days. I know

it’s tough, but eventually your body can heal enough that it will

tolerate an antifungal – or not. I can’t take antifungals

(allergic response and mess up my digestion), and with time I got my candida

overgrowth under control just be limiting or avoiding the yeast trigger foods.

It took longer, but had the big advantage of being a lot less stressful on my

body.

I

haven’t had to make the decision whether to take prednisone or not, since

my digestive disorders are functional and not IBD. But perhaps you have

other options to prednisone? Unfortunately I would think that most meds.

for UC will be immune-suppressant, which means candida will be an issue for a

while. However if you can get the bleeding stopped, your digestion will

improve enough that eventually the candida levels will come down as your gut

ecology and immune system stabilize.

It

is terrific that you can still handle a probiotic supplement. That will

help considerably.

You

haven’t been on SCD a very long time, so I’d say you are probably

improving a bit even if you can’t tell yet. You are just getting

through the worst of the detoxing phase, now should come the early healing

stages. Things should get better over the months.

Kim

M.

SCD 6 years

Sphincter of Oddi dysfunction 6+ years

neurological & spinal deterioration 3+ years

>>>>>>>>>>>>>>>>>>>>>>>>>>>>

I

also tried raw garlic, which I think totally screwed things up because I got a

lot more pain and new D after that. Lemon juice seems to be the same. I was on

clotrimazole for thrush, but I read that taking anti-yeast meds can be very

harsh, and I want to heal up more before bringing in the big guns. Not sure if

this is counterproductive since yeasts could be causing the issues that I am

waiting to heal from. People have suggested nystatin too, but I may have had a

reaction to that in the past.

My concern is that the yeasts are contributing to the UC. If they are, it seems

counterproductive to stay on the prednisone, but I don't want to go further

into flare

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I have a question on sugars since we use honey and fruit.  My old doctor used to give the recommended amount of sugar for prednisone then knock those numbers down again.  So even less than the recommended amount.  How do you take that and apply it to the amount of honey/fruit/juice?  Maybe that would make it easier to watch the amounts.

 

thanks,

debbie 40 cd

 

Kat

 

Being on an immune-suppressant like Prednisone means that yeast will get out of hand, so you have to deal with them along with everything else.  However you also want to get your UC under control, which means taking a med. like Prednisone.  It is tricky. 

 

I wouldn’t take another antifungal for a while, not even a natural one like garlic or lemon juice.  I would just focus on finding foods that are easy-to-digest but also are lower in carbs and sugars.  Or don’t have a high-carb food more than every other day or every two days.  I know it’s tough, but eventually your body can heal enough that it will tolerate an antifungal – or not.  I can’t take antifungals (allergic response and mess up my digestion), and with time I got my candida overgrowth under control just be limiting or avoiding the yeast trigger foods.  It took longer, but had the big advantage of being a lot less stressful on my body.

 

I haven’t had to make the decision whether to take prednisone or not, since my digestive disorders are functional and not IBD.  But perhaps you have other options to prednisone?  Unfortunately I would think that most meds. for UC will be immune-suppressant, which means candida will be an issue for a while.  However if you can get the bleeding stopped, your digestion will improve enough that eventually the candida levels will come down as your gut ecology and immune system stabilize.

 

It is terrific that you can still handle a probiotic supplement.  That will help considerably.

 

You haven’t been on SCD a very long time, so I’d say you are probably improving a bit even if you can’t tell yet.  You are just getting through the worst of the detoxing phase, now should come the early healing stages.  Things should get better over the months.

 

Kim M.

SCD 6 years

Sphincter of Oddi dysfunction 6+ years

neurological & spinal deterioration 3+ years

 

>>>>>>>>>>>>>>>>>>>>>>>>>>>> 

I also tried raw garlic, which I think totally screwed things up because I got a lot more pain and new D after that. Lemon juice seems to be the same. I was on clotrimazole for thrush, but I read that taking anti-yeast meds can be very harsh, and I want to heal up more before bringing in the big guns. Not sure if this is counterproductive since yeasts could be causing the issues that I am waiting to heal from. People have suggested nystatin too, but I may have had a reaction to that in the past.

My concern is that the yeasts are contributing to the UC. If they are, it seems counterproductive to stay on the prednisone, but I don't want to go further into flare

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I just ordered the DVD -- I've been getting into meditation for stress relief.

__________________________________________________________________

CD

SCD 6 months

Lialda, Purinethol

Freeda Vitamins, L. Acidophilus, Cod Liver Oil, S.Boulardii

Symptoms finally improvingSubject: Re:Re: Decision about meds, was Re: dccc/yeastTo: BTVC-SCD Date: Friday, April 9, 2010, 3:47 PM

This looks great. I'll look more into it when I have a minute today. It reminds me that I found some good ones on youtube over the summer too. I just "shut off" from all that when the schizophrenia- type symptoms got their worst and I had to forget I was a spirit and pretend to just be a body for while in order to ground out I guess. Thanks for the reminder!

Kat

>

> I practice mindfulness meditation almost every day and recently found a

> great DVD - Grilley's Chakra

> Meditations<http://www.amazon. com/Chakra- Theory-Meditatio n--Grilley/ dp/B000O7IJ16>.

> After I did the third chakra meditation, I felt a lot of heat in my spine

> in that area and was symptom-free, high energy for a day or so afterwards.

> You can't overdo it, though, and have to balance out the different chakra

> meditations.

>

> I'm starting to gently practice yoga and it helps a lot.

>

> I also find that my mental state has a lot to do with my symptoms. The more

> of a "normal" day I can have mentally, going about my routine, the better I

> feel physically.

>

> --

>

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Emad,

I just take my illegal meds, and try not to worry about it. It's a rather

minuscule amount, not like eating a piece of bread or something. You'll still

heal :-)

Holly

Crohn's

SCD 12/01/08

> >

> >

> > Hi all I'm really hoping someone could answer my question here. I've been

doing the SCD diet seriously for about 4 months. I've been a lot better.BUT I

recently noticed that the maintenance meds that I take (mesalamine pills-

Claversal) has certain binders that contain potato starch, which can only

imagine is illegal. Also, its been recommended that I take pentasa enemas,

because I'm currently taking entrecord enemas (which don't, I believe, have any

illegals). The pentasa enemas actually have sugar- if I understand correctly!

These common meds are used to keep the disease under control, if I stop taking

them I could flare out of control, and yet they go contrary to the disease. I'm

trying to taper my Claversal dosage, but as for finding a replacement for the

entrecort enemas, that is " legal " this is definately a problem.It seems our

maintenance meds are completely inundated with illegals!!!Any insight would be

GREATLY appreciated!Thanks Emad

>

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At 04:58 AM 4/9/2010, you wrote:

It seems our maintenance meds

are completely inundated with illegals!!!

Emad,

Most medications are, and it can get very expensive to have them

compounded without illegals.

Elaine has stated that if you need a medication, to go ahead and take it,

even if it contains illegals.

What she told me about a supplement which I need (for muscle spasm in my

back) was that yes, it would be better if I could do without it, but

since I couldn't, to use it. She said that it would probably take longer

for me to heal because I am continuing to feed the bad bacteria, and she

was right. But I don't have an option. There IS no legal substitute for

the supplement, and my prescribed alternative is CODEINE. With an up and

down and up and down of needing it, and a perpetual risk that something

will set my back off, and there I'll be, throwing up from the pain.

So, if you need your prescribed meds, use them -- but you'll need to be

extra strict on the diet.

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

Babette the Foundling Beagle

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