Re: praise for the gfcf board, yet saddened at some other boards

[Guest guest]

Don't want to do something that isn't FDA approved?? I almost

chuckled out loud when I read that... here we have vaccines that are

approved, and look at what they have done to [some] of our kids.

That is really sad! I guess we can look at it that change is hard,

and sometimes scary.

W

is not willing to try the diet,

> even knowing that it helps others, because their kids eat nothing

but

> pasta and milk(guess why?) or they dont want to do something not

FDa

> approved. I guess to each their own, but i wish people would be

more

> openminded and willing to explore something which may potentionally

> be very helpful to their child.

[Guest guest]

is not willing to try the diet,

> even knowing that it helps others, because their kids eat nothing

but

> pasta and milk(guess why?) or they dont want to do something not

FDa

> approved. I guess to each their own, but i wish people would be

more

> openminded and willing to explore something which may potentionally

> be very helpful to their child.

The only reason why I tried the diet is because I heard it worked for some

children and I thought ok so what could it hurt? Nothing! He eats stuff with

corn and potatoes anyways, then I found that there are TONS of products out

there made without gluten or casien and I thought hey this is doable and if it

works I am all for it. I will never turn back now. He is so much better with the

diet now then he was 6 months ago. He still only wants to eat cereal and french

fries and crackers but he acts better and sometimes he will try new things,

which he never did before. I just have to keep asking him and see what happens.

Melinda

[Guest guest]

What I have learned.

Chat rooms -- people in chat rooms generally want to do one of three

things. 1. Brag about their child's accomplishments [a very good

thing to do for an AS child!], 2. Get immediate help for an immediate

issue regarding their child, 3. Just chat about non-autism stuff with

other parents who have semi-similar lives.

Yes there are some people in chatrooms who do not know about diet and

other things, but in general those people are on message boards. Most

people in chatrooms are tired of being " preached at " by those who

believe they have found " the cure " for autism. This includes

vaccines, diet, ABA, NAET, and any other intervention out there that

has at any time been touted as a " cure " .

Message boards -- this in my opinion is where you would " discuss " diet

issues. For most of the general autism message boards on which I

participate, the people either 1. don't know about the diet, so you

can post a reply which indicates diet, if you would like to and/or it

might be a solution to the description of the child which is given, or

2. already know about the diet and are tired of the preaching, so they

can skip your message about diet [which they pretty much cannot do if

you are in a chatroom].

So I would say that if your experience is in a chatroom, that I do not

blame the parents for being tired of hearing it. I get tired of

hearing it too, and my children are gfcf and vaccine-injured. I don't

go to chatrooms to talk about that, but to talk about other things.

And if your experience is on a message board, just realize that there

are people out there who are reading your information, even if they

never reply, and even if the only replies you receive are negative.

People lurk on all the message boards and never reply, but they do

read and learn.

Dana

[Guest guest]

As regards the " FDA approved " status of any particular diet...you may

want to mention to your friend that the FDA does not approve diets or

UNapprove diets. So the diet is not unapproved either. This is the

same situation with enzymes, and many other supplements, because they

are regarded as a natural food. The FDA does not approve them or

unapprove them. It is not something they handle.

.

[Guest guest]

As regards the " FDA approved " status of any particular diet...you may

want to mention to your friend that the FDA does not approve diets or

UNapprove diets. So the diet is not unapproved either. This is the

same situation with enzymes, and many other supplements, because they

are regarded as a natural food. The FDA does not approve them or

unapprove them. It is not something they handle.

.