Re: is it normal for RSS kids to have high cholesterol?

[Guest guest]

Signe,

I have worked for the state of Arkansas for 12 Years now and I also do

computer entry. I'm a night owl so I have never gotten much sleep. I'm 4'8.

Yes I was real active as a kid. Since I've gotten older I guess I have become

lazy. Its alot more fun to sit in front of the tv or computer than go

exercise If you will email me I will send you a link to a website I found.

TMshorty75 @ aol. com (take out the spaces)

Teri

[Guest guest]

Teri - what are your two jobs? You must not get much sleep. Ada is

about 4ft 10 and only weighs 76lbs. For awhile she was over 80 lbs

but she lost the weight and never gained it back (she was on Depo

and that helped her gain that weight).

How tall are you? Were you pretty active as a kid or are you just

less active than you were.

It is interesting to see that other RSS folks have this issue. I

really hope to gain a better understanding of what this means for my

daughter and I really appreciate your feedback.

Signe

[Guest guest]

Hi Signe-

To be honest, I have NO idea how or why my cholesterol went down15 points in the

past

year or two. I eat roughly the same way, with little red meat (beef once every 2

weeks,

pork once a week), lots of chicken, and I try to add fish in there but I really

don't LIKE

seafood as much as other foods <wink>. I eat entirely too many sweets and have

been

known to scarf down my share of french fries. Wish I could be more helpful,

but I

honestly don't know why it originally went up, or now down.

-Sharon-

Just an RSS kid who grew up

Orlando FL

[Guest guest]

Hi Ada,

I'm currently in graduate school working on my PhD in neuroscience --

one day I hope to be a college professor...... My life has really

been pretty typical so far. I'm married to a wonderful guy (6'1 " )

and as long as I have stepstools around, being short (4'8 " ) doesn't

affect me most days (although I still hate clothes shopping --

luckily right now I can still wear jeans to work!)

I'll be watching to see where this cholesterol discussion goes!

thanks for bringing it up.

-Ana

[Guest guest]

Hi Signe,

I did a little research and also calle my son's ped. endo. As far as

I can find out, a child with RSS should have the same cholesterol

levels as non RSS children.

Generally, adults should have the following

Cholesterol < 200

LDL < 130

HDL 20 - 71

Triglycerides < 200

I did not get numbers for children but I suspect they should be lower.

With that said, given that many of us feed our kids a high fat diet

in order to get their weight up, I would not be surprised to see a

high cholesterol level in many RSS children.

If you can, I would contact a nutritionist and see if you can find

some foods that will help her gain weight and help reeuce her

cholesterol, LDL, HDL, and Tri g Levels.

If you find this miracle food, please let the rest of us know about

it.

I hope this helps.

Ken M

>

> Hello,

> My daughter is quite a bit older than most of your children but i'm

> hoping that someone can help me with this. Ada recently had some

> blood work done to see what was going on inside.

>

> Her cholesterol came back at 199. I'm really worried about this.

> It's never been checked before so maybe it's 'normal for her' .

She

> does not eat alot of animal protein or fat so i'm quite suprised.

> She no longer sees a endocrinologist and her regular pediatrician

> doesn't know much about RSS.

> She also had an abnormal score on the prealbumin.

>

> Have any of you run across this or heard one way or the other how

> our children's cholesterol tends to be?

>

> Have any of the adults with RSS had their's checked?

>

> thanks in advance for any insight you can give.

> Signe

[Guest guest]

My son nearly 18, has had raised cholesterol levels.

He first started having his cholesterol checked when he was about 10

or 11. He has a pre existing cardiac condition that made this check

necessary.

The first few readings came back elevated. Soon after that, I

changed his diet and tried to follow a modified version of the Heart

Foundations diet as much as possible. For the last 5 years, he has

been able to maintain his cholesterol readings within the normal

range with this diet and exercise. But that may change as he gets

older.

ne

>

> Hello,

> My daughter is quite a bit older than most of your children but

i'm

> hoping that someone can help me with this. Ada recently had some

> blood work done to see what was going on inside.

>

> Her cholesterol came back at 199. I'm really worried about this.

> It's never been checked before so maybe it's 'normal for her' .

She

> does not eat alot of animal protein or fat so i'm quite suprised.

> She no longer sees a endocrinologist and her regular pediatrician

> doesn't know much about RSS.

> She also had an abnormal score on the prealbumin.

>

> Have any of you run across this or heard one way or the other how

> our children's cholesterol tends to be?

>

> Have any of the adults with RSS had their's checked?

>

> thanks in advance for any insight you can give.

> Signe