Guest guest Posted December 31, 2003 Report Share Posted December 31, 2003 Torsten, I'm glad the old year has been so good to you and your family. You deserve every bit of good fortune that comes your way. Cheers! Here's to an even better 2004! Kim Mom of (24 with CF) and (21 without) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2003 Report Share Posted December 31, 2003 What a great year for you. I too have had a good year. I have a wonderful husband of almost 28years and two wonderful daughters 26(nocf) and 18(wcf) and a son-in-law who takes very good care of my 26year old. Maybe I will be a grandma in 2004. That would be wonderful. Our health is not perfect but we are doing good. Happy New Year to all in this group and may this be the year of the CURE!!! Tina W. Happy New Year Hi all, there's only one hour left in the old year here and since my family is already almost asleep I have time drink a last glass of grappa and to read my mails. If your 2003 was half as good as it was for me, then you had a great year :-)) Fiona has been healthy throughout the year and during the last two months she has gained three pounds. Sebastian is such a sweet and easy going baby boy. And thanks to Mr. Bush I have earned so much money that I can retire a few years earlier. You just have to bet your money on a weak dollar and a strong silver price and Georgie Boy does the rest. I hope that 2004 will be a successful year for everybody and that we all and our kids stay as healthy as can be. Peace Torsten, dad of Fiona 6wcf and Sebastian 7months wocf e-mail: torstenkrafft@... ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. ------------------------------------ _____ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2003 Report Share Posted December 31, 2003 Happy New Year back at ya Torsten. Thanks for all you do to run this list. May 2004 be as good to you as 2003 has been. so happy to hear Fiona and Sebastian are doing well. love, M Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2004 Report Share Posted December 31, 2004 Happy New Year Everyone! It's 1.30am and I'm at work celebrating with my friends and our mini patients. At exactly midnight I was doing chest compressions on a baby. The year just sneaked in around us! Hope your night is imminently more fun or restful. (Mom to Ethan age 5 - 50 inches and 58 pounds, no meds and Jillie (RSS) age 2 1/2 - 33.5 inches and 24 pounds, GT/fundo/GH/miralax/prilosec/zantac/periactin/singulair/atrovent nebs and pulmicort nebs, currently battling tonsillitis and pneumonia!) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2010 Report Share Posted December 31, 2010 Tracie, I will continue to keep you in my prayers that all goes well for you. When I found this group about a year and a half ago you were most helpful. I have gained a lot of information and support form this group including you. Take care of yourself. Be well. Matt As some of you know, I joined this group back in 2001. Ten years has gone by, and many wonderful- and trying hours of study, learning, reading, investigating, searching, hoping, praying, crying, laughing and most of all-- learning to reframe my life to LIVE with systemic sarcoidosis has been my path. I have been blessed to spend these years with all of you-- I took over partial ownership shared with Darlene several years ago. It was an incredible time of developing a library of articles that all of you can utilize to learn about your disease. Countless hours were dedicated to figuring out how to LIVE with sarcoidosis. All of that information is at your fingertips. This last year, I found that I had to take time off, away from the group and work on my health. I have managed to change a large portion of the direction my health was going by changing my diet and discovering what food sensitivities (not the same as food allergies) and have eliminated wheat, oats and dairy from my diet. I started on a Liver Cleanse back in April, after being told to "get my affairs in order" by my cardiologist. I was having heart attacks nightly, and am not a candidate for heart lung transplant. Since the change in diet, and the fantastic help with my health regime, I was able to get off my Remicade, Plaquenil, Methotrexate, Prednisone, Effexor, Motrin, Flexeril, Insulin and glucophage and am no longer diabetic. I've lost 65 lbs-- and the heart attacks have stopped. I still have sarcoidosis, always will-- but the neuropathy, the systemic "inside" the bone pain, the joint and ligament pain have gone from a 8-12 on a 1-10 scale, down to a 3-4. I am still on oxygen, and will need to continue it-- as my heart and lungs have developed pulmonary hypertension due to the damage of the sarcoidosis. Today, I take a thyroid pill and a blood pressure medication-- and ten different whole food supplements that are taylored for my particular needs. I cannot tell you that the biological drugs will work-- after almost 5 years on Remicade at an extremely (maximum) dose of 10mg/kg every 28 days, my body decided to revolt. I developed cellulitis, and lymphedema from the last infusion I had in April-- and knew that to continue it would kill me. It was killing me. Guys, it worked for a long time-- and i'm grateful for that. It gave me the time to find what has been my saving grace-- and it isn't in traditional medicine. A few weeks back, I had an online conversation with Rose, and told her that I felt that it was time I move on. I have spent again, numerous hours in thought and prayer- and feel that what is best for me is to leave the group, focus on my health and recovery, and I can do that knowing that Rose, Darlene, Marla, Debbie, and will carry on. I leave you in their compentent, loving hands and hearts, and know you will be in my prayers. I hope that each of you finds a path that you are comfortable with and that you continue to research your disease. Knowledge is power-- and as we keep learning, we give ourself the best gift possible-- Quality of life. My blessings to all of you, Sincerely, with love, Tracie Feldhaus Neurosarcoidosis co-owner/moderator Quote Link to comment Share on other sites More sharing options...
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