Re: Sudden leakage around Mickey Button??

[Guest guest]

Hi There

Just wanted to let you know that this happened to Finlay about a year

ago. We had to change the size of the micKey - from 14Fr to 16 Fr -

I was surprised that it could happen so suddenly as I thought a

problem like this would happen more gradually - anyway after doing

the sort of trouble shooting you are doing ( changing the mikKey -

for one the same size and filling the balloon with an extra 2ccs of

water) we found going up a size (in Fr)- and possibly (I can't

remember now) down a size in length was the solution. There are

measurment guages you can use to determine the correct length of the

micKey - but the important size to change is the Fr size.

Hope this helps

Best wishes

:

>

> Season's Greetings to all- I hope everybody had a

> safe, healthy, happy & blessed holiday.

>

> Trying to keep sick children happy at Team Lapish

> It seems we keep passing it around...

>

> Suddenly Pippin has terrible leakage at her Mickey button?

> I changed it yesterday thinking that was the problem but still

> leaking... She is not on continual feeds so we remove the connector

> tube after each bolus feed sometimes the leakage is worse...

> can't seem to tell a difference when the connector tube is in place.

> Sometimes I notice the leakage hours after a bolus.

> Any advice from the GT pros out there? I've checked the water in

> the balloon and even added an additional 2 cc's of water into the

> balloon but still leaking? She has NEVER had any leakage from her

> site. We've never had any problems with her site before...

>

> We've got a DR appt tomorrow as Tully's virus turned bacterial

> on Friday, and it seems Pippin has also turned bacterial, i.e. the

> fever she's been fighting since Christmas day It's been a lay-

low

> holiday for us. The first ever!

>

> TIA for all your help.

> Jenyfer & the Team

[Guest guest]

--Hi Jenyfer,

It is difficult when you have tried all of the little tricks that

you know of and the problem still exists. Mollie has had her tube

for almost three years now, and we too seem to have more problems

with leaking when she is sick. In fact we have been dealing with it

all week. I know that her stomach seems to empty much more slowly

when she is ill.She is only gtube fed for 12 hours overnight, but

she will continue leaking throughout the day as well. I agree with

Jodi though, anything that is out of the norm, you should contact

your physician. I know that this is not an answer for you. But you

are not alone.

Debbie (mom to Mollie 35mos. 23# 34 inches gtube,

reglan,prilosec,nutropin)

Shoveling snow!!!!!!!!

- In RSS-Support , " djlapish " <teamlapish@c...> wrote:

>

> Season's Greetings to all- I hope everybody had a

> safe, healthy, happy & blessed holiday.

>

> Trying to keep sick children happy at Team Lapish

> It seems we keep passing it around...

>

> Suddenly Pippin has terrible leakage at her Mickey button?

> I changed it yesterday thinking that was the problem but still

> leaking... She is not on continual feeds so we remove the

connector

> tube after each bolus feed sometimes the leakage is worse...

> can't seem to tell a difference when the connector tube is in

place.

> Sometimes I notice the leakage hours after a bolus.

> Any advice from the GT pros out there? I've checked the water in

> the balloon and even added an additional 2 cc's of water into the

> balloon but still leaking? She has NEVER had any leakage from her

> site. We've never had any problems with her site before...

>

> We've got a DR appt tomorrow as Tully's virus turned bacterial

> on Friday, and it seems Pippin has also turned bacterial, i.e. the

> fever she's been fighting since Christmas day It's been a lay-

low

> holiday for us. The first ever!

>

> TIA for all your help.

> Jenyfer & the Team