Guest guest Posted February 1, 2005 Report Share Posted February 1, 2005 Hi Jody, You said, >Firstly I think generally our kids sweat alot more than other kids, >I think most parents would agree, this could be the reason >wants to drink so much when she is active. It is summer in Australia >now and Liam is constantly asking for water, I have to keep him >inside and some days with the air conditioner on to control the >fluid he looses in sweat. I agree 100%. >The second thing is, from my experience with Liam who is just toilet >trained, if he is constipated he pees alot more often and smaller >amounts, because his bowel is pushing on his bladder and it doesnt >hold as much. constipation being another RSS trait. Interesting thought, perhaps 's lessened need to pee had to due to a combination of events. This was the time when we implemented the higher fat and protein diet plus the Celtic Sea Salt, lemon and water mixture. Initially the constipation worsened as her bowel system readjusted to the higher intake of fat and protein, but our doctor successfully offset that with other treatments. Once the constipation cleared she stopped peeing as much. On slightly different tangent, the bowel muscles just like other muscles in RSS kids are not very strong due to the lack of protein. So as you introduce more fat and protein then the bowel muscles need to work harder and develop more strength. Unfortunately, you go through this, lets say two months where the constipation gets worse because of the weak state of the muscles, but this phase can be minimized with the correct supplements. This is covered in Life Without Bread. >I personally would not think added salt would stop feelings of >thirst, it may stop needing to pee because she is >retaining more fluid. I dont know to much about celtic salt though. From personal experience I know that the Celtic Sea Salt has reduced both my husband's and my thirst levels substantially. Not sure about the pee part. Beth > > > > I'm curious if other parents have experienced the same problem > > with sports. > > > > Almost two years ago wanted desperately to play > organized > > soccer. With much trepidation we agreed and we watched as our > > little peanut tried keeping up with her teammates. She was > > determined not to let her size be a deterrent and made it through > > the season unscathed. > > > > My question for everyone, during sport activities does your child > > have to take multiple pee breaks and drink lots of fluids? > > as compared to her teammates was like a peeing machine, > > but not with much in the way of volume. > > > > This past season we noted a dramatic change to where she takes no > > pee breaks. We analyzed it and can only attribute it to her > > drinking the Celtic Sea Salt and lemon mix I posted earlier. > > > > Beth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2005 Report Share Posted February 1, 2005 Hi Beth Would you mind teling me how much protein has a day. I find your comment 'the bowel muscles just like other muscles in RSS kids are not very strong due to the lack of protein', this comment as far as I have read anywhere, is wrong, I have never been told by any medical proffesional that Liam is lacking in protein. I have just worked out that Liam has, through his g tube approx 29gms of protein a day, liam is 10.5kg, this is well over the recommended daily needs of a child (1 - 1.2 gms a day). As this is the formula Liams gastroenterologist, paediatrician and dietician have all agreed upon, I am happy that Liam is not getting to much protein. i would also like to point out that Liam has slightly low muscle tone, quite severe reflux, has had slow stomach emptying and has always suffered from constipation. Even with the higher protein diet. I have worked as a registered nurse for over 15 yrs most of that time in Renal/ haemodialysis units. I know that to much protein can strain/ damage the kidneys and liver and prompt excessive loss of calcium. This is well documented, our children have very small kidneys and livers some even have problems with there kidneys, I hope that before any parent increases the amount of protein in there childs diet, they will consider this and consult there dieticians and medical team. I realise you are doing the best for your daughter as you possibly can, since Liam was a baby it has been our goal to do this for him.I would try anything to make his life easier, however I have to be convinced that it is not going to be detrimental to his health long or short term. > > > > > > I'm curious if other parents have experienced the same problem > > > with sports. > > > > > > Almost two years ago wanted desperately to play > > organized > > > soccer. With much trepidation we agreed and we watched as our > > > little peanut tried keeping up with her teammates. She was > > > determined not to let her size be a deterrent and made it > through > > > the season unscathed. > > > > > > My question for everyone, during sport activities does your > child > > > have to take multiple pee breaks and drink lots of fluids? > > > as compared to her teammates was like a peeing > machine, > > > but not with much in the way of volume. > > > > > > This past season we noted a dramatic change to where she takes > no > > > pee breaks. We analyzed it and can only attribute it to her > > > drinking the Celtic Sea Salt and lemon mix I posted earlier. > > > > > > Beth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2005 Report Share Posted February 1, 2005 Debby This is my point exactly, please speak to your dietician, who will tell you how much is to much. my guess is that you havent given Adam to much protein. As I pointed out from my calculations, Liam is getting twice the amount of recommended protein for a child with no detrimental effect, but no changes to his low muscle tone, which is a trait of RSS. I am very intrested to see how much protein Beths daughter is having, to see these amazing changes in her muscle mass. knowbody is wrong here, we just have to ensure that our childrens health is not endangered by giving to much. Our bodys need protein, please dont stop giving Adam protein. Just talk to your dietician or doctors before changing his diet. Jody(mum to Liam 3.5yrs 10.5kg and Cameron) > > > > > > > > > > I'm curious if other parents have experienced the same problem > > > > > with sports. > > > > > > > > > > Almost two years ago wanted desperately to play > > > > organized > > > > > soccer. With much trepidation we agreed and we watched as our > > > > > little peanut tried keeping up with her teammates. She was > > > > > determined not to let her size be a deterrent and made it > > > through > > > > > the season unscathed. > > > > > > > > > > My question for everyone, during sport activities does your > > > child > > > > > have to take multiple pee breaks and drink lots of fluids? > > > > > as compared to her teammates was like a peeing > > > machine, > > > > > but not with much in the way of volume. > > > > > > > > > > This past season we noted a dramatic change to where she takes > > > no > > > > > pee breaks. We analyzed it and can only attribute it to her > > > > > drinking the Celtic Sea Salt and lemon mix I posted earlier. > > > > > > > > > > Beth > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2005 Report Share Posted February 2, 2005 Hi Jody, I can see that I need to communicate better. There are a few misunderstandings, and I see that the best way to clarify them is to have you read Life Without Bread. To convey every thought and step I have taken is very difficult in this forum and that is why I refer you to the experts in the book. I must say that generally when I talk about treatments it is solely from the perspective of what we have done for our daughter who is age six, and not from someone who has a g-tube or is an infant, for instance. I am definitely not a doctor or a nurse, but a fairly well educated individual who does her homework. Please keep in mind that now I deal with mostly alternative doctors, I have found that in certain key areas that conventional medicine is lacking. As an example the Food Pyramid is total garbage and much of conventional medicine nutrition to a high degree is based off this faulty model. I would like to add that everything I recommend should be passed by your doctor, preferably one that is trained in alternative medicine that focuses on nutrition. My doctor told me about an organization the other day that does a great job of making referrals for finding these types of alternative doctors. I can¡¦t put my fingers on the group but I will find it and post it. I am going to tell you something that you will probably think is heresy, the consumption of saturated fats are good for you, SO LONG, as you eat the correct type of saturated fats. Why would I make a comment like this? Well, the brain needs saturated fats for premium functionality. I am not going to go into too much more explanation because the book does such a much better job. Additionally, I will also highly recommend that you read Cowan MD's book, " Fourfold Path to Healing " where he will, I hope, turn some of your conventional medicine training upside down. This is especially true to when it comes to the importance of fats in the diet, how it relates to the brain and the heart in particular. Much too complicated to go into here. Now that I have run off at the mouth, to address your question about how much protein eats, let¡¦s clear up a misstatement I made, instead of saying solely protein, more importantly I should have said fats and protein. And the emphasis should be on the fats portion of this statement, since this a key component. She eats a ton of saturated fats such as butter and coconut butter/oil to mention a few good ones. Possibly you are thinking, oh no, saturated fats have been proven to be bad. This is a result of poor research data and the past several years this is starting to be corrected by the likes of individuals from Harvard, for instance. My husband is a perfect example, he eats a ton of saturated fats for the past year and he is so much healthier for it today. Cholesterol is down, blood pressure down, C-reactive protein down, along with other key indicators. The other key for is the restriction of carbohydrates to a certain level, which again is much better explained in the book. The following quote comes from Life Without Bread and it would be best to read it in its full context to understand it better. " One of the best kept secrets is that the heart uses fatty acids almost exclusively for energy, and these are saturated fats. This is truly an important point, and we think you can see why. How can people say that most foods for the heart are low in fat, when the heart muscle is known to require fat in order to beat? footnotes--> Lawson, L D and F Kummerow. " Lipids " 14(1979): 501-503....K K.Garg, M L " Lipids " 24(1989): 334-339 As to my comments about the digestion track having low muscle tone due to the lack of protein, again misstatement on my part, it really should have the emphasis placed on fats and not as much on protein. Again, this is an area where conventional medicine and my alternative doctors apparently do not agree. But it works for , maybe she is an unusual RSS kid but I do not think this is the case. Beth > > Hi Beth > Would you mind teling me how much protein has a day. > > I find your comment 'the bowel muscles just like other muscles in > RSS kids are not very strong due to the lack of protein', this > comment as far as I have read anywhere, is wrong, I have never been > told by any medical proffesional that Liam is lacking in protein. > > I have just worked out that Liam has, through his g tube approx > 29gms of protein a day, liam is 10.5kg, this is well over the > recommended daily needs of a child (1 - 1.2 gms a day). > > As this is the formula Liams gastroenterologist, paediatrician and > dietician have all agreed upon, I am happy that Liam is not getting > to much protein. i would also like to point out that Liam has > slightly low muscle tone, quite severe reflux, has had slow stomach > emptying and has always suffered from constipation. Even with the > higher protein diet. > > I have worked as a registered nurse for over 15 yrs most of that > time in Renal/ haemodialysis units. I know that to much protein can > strain/ damage the kidneys and liver and prompt excessive loss of > calcium. This is well documented, our children have very small > kidneys and livers some even have problems with there kidneys, I > hope that before any parent increases the amount of protein in there > childs diet, they will consider this and consult there dieticians > and medical team. > > I realise you are doing the best for your daughter as you possibly > can, since Liam was a baby it has been our goal to do this for him.I > would try anything to make his life easier, however I have to be > convinced that it is not going to be detrimental to his health long > or short term. > > Quote Link to comment Share on other sites More sharing options...
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