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Dawn

It sure was good to talk to you the other night. Hope you are not so stiff and sore still. Gosh Heidi is going to be so proud of you! You have been such a good nagger! You always add that perfect touch at the end of your post to let us know you really care.

Keep up the good work! Speaking of work...I know that is a bad word but when do the kids go back to school there? It has been so nice to see post from you this summer. You must have needed the rest!LOL

Lots of love

Glenda

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--- Dawn wrote:

, cry and only

> the group your in will ask. so hang in there , love

> ya bunches

>

> dawn

Oh Dawn, sometimes this is way too true! You are so

cute and I have enjoyed your nagging so much. Love

you, squeek

> ---------------------------------

>

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Oh Dawn, maybe you can use the weekend to learn not to

nag. You do it so well though and I'm sure Heidi

appreciates all the help she can get. Have a great

weekend. Love, squeek

--- Dawn wrote:

>

> Ok

>

> Thought I had better let you all know, i'm headed to

> the mountains for the weekend, be back Sunday

> Evening.

>

> Remember to take your vitamins and meds on time to

> keep the RP in the sleeping mood.

>

> Also order your medic alert bracelet and renew your

> info. it could save your life

>

> Excercise every day and send your money to heidi so

> we can help the foundation outr.

>

> Send on your 15.00 to claudia our foundation needs

> lots of help.

>

> remember you can also make a memorial donation to

> help out research and the foundaiton.

>

> oops, sorry i forgot, heidi's home and here i am

> naggin you, sorry heidi, i will gracefully bow out,

> and try not to do it again, your the best.

>

> Remember to count your blessings name them one by

> one.

>

> love you

>

> dawn

>

>

>

> ---------------------------------

>

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Dawn

What would we do without you??? So glad that you let us know you were leaving this weekend. We worried about you all weekend when you were busy wearing yourself out. Sounds like you deserve a restful weekend.

Lots of love

Glenda

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Ah, ha! Now is my chance to nag Dawn! Whining is

always allowed around here. Remember, we are the ones

who will understand you better than anyone else. Hope

you are o.k. Love you, squeek

--- Dawn wrote:

>

> Hi Glenda

> Well it started off ok, the weekend that is. But

> Saturday Morning, I woke up with a headache from you

> know where. By about 10 am my face and nose were

> swelling like you know what, and then both ears

> swelled shut, and the dizziness set in. Had to hold

> on to the furniture just to walk across the room.

> Tell me what is it that when your so dizzy you can

> hardly move, and your body decides you have to go to

> the bathroom 50 times that day, whats the

> connection. well whatever it is I hate it. So I

> finally gave in and started back on pred. Today the

> ears are red but not really swollen, the pred has at

> least relieved the dizziness. Oh well enough of my

> whinning, it just bugs me that about the time you

> think you have this cRaP kicked in the ass, it turns

> around and bites you in the ass. Guess i didn't run

> fast enough, so it caught up with me. I'm doing

> better today, just sort of wiped out.

> sorry , i usually don't whine, but i just feel

> rotten and had to get it out.

> love you guys

> dawn

> Glenda McClennen wrote:Dawn What would we do

> without you??? So glad that you let us know you

> were leaving this weekend. We worried about you all

> weekend when you were busy wearing yourself out.

> Sounds like you deserve a restful weekend.Lots of

> loveGlenda

>

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  • 2 weeks later...

Very funny! squeek

--- Dawn wrote:

> > GOOD QUESTIONS

> >

> > Who was the first person to look at a cow and

> > say, " I think I'll squeeze these dangly things

> > here, and drink whatever comes out " ?

> >

> > Why do toasters always have a setting that

> > burns the toast to a horrible crisp which no

> > decent human being would eat?

> >

> > Why is there a light in the fridge and not in

> > the freezer?

> >

> > If Jimmy cracks corn and no one cares, why is

> > there a song about him?

> >

> > Can a hearse carrying a corpse drive in the

> > carpool lane?

> >

> > If the professor on Gilligan's Island can make

> > a radio out of coconut, why can't he fix a hole

> > in a boat?

> >

> > Why do people point to their wrist when asking

> > for the time, but don't point to their crotch

> > when they ask where the bathroom is?

> >

> > Why does your OB-GYN leave the room when you

> > get undressed if they are going to look up

> > there anyway?

> >

> > Why does Goofy stand erect while Pluto remains

> > on all fours? They're both dogs!

> >

> > What do you call male ballerinas?

> >

> > Can blind people see their dreams? Do they

> > dream??

> >

> > Why ARE Trix only for kids?

> >

> > If Wile E. Coyote had enough money to buy all

> > that Acme crap, why didn't he just buy dinner?

> >

> > Why is a person that handles your money called

> > a 'Broker'?

> >

> > If quizzes are quizzical, what are tests?

> >

> > If corn oil is made from corn, and vegetable

> > oil is made from vegetables, then what is baby

> > oil made from?

> >

> > If a man is talking in the forest, and no woman

> > is there to hear him, is he still wrong?

> >

> > Why is it that when someone tells you that

> > there are over a billion stars in the universe,

> > you believe them, but if they tell you there is

> > wet paint somewhere, you have to touch it to

> > make sure?

> >

> > Is Disney World the only people trap operated

> > by a mouse?

> >

> > Why do the Alphabet song and Twinkle, Twinkle

> > Little Star have the same tune?

> >

> > Do illiterate people get the full effect of

> > Alphabet Soup?

> >

> > Why do they call it an asteroid when it's

> > outside the hemisphere, but call it a

> > hemorrhoid when it's in your sphere?

> >

> > Did you ever notice that when you blow in a

> > dog's face, he gets mad at you, but when you

> > take him on a car ride, he sticks his head out

> > the window?

>

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If you don't ...the elastic will break

> and your panty hose will fall down around your

> ankles. :)

>

Oh Dawn, this was so cute....but what the heck are

panty hose???? Gave up on those things years ago!

Love, squeek

=====

__________________________________________________

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You have every right to feel crabby and whiney, Dawn.

Hope the prednisone kicks right in and you start to

feel mcuh better. Darn this stupid cRaP.

Take good care of you! Love, squeek

--- Dawn wrote:

>

> hi

>

> just got done with dr. again. he gave me a shot

> yesterday hoping it would work and not have to go

> back on pred high doses, but today is worse than

> yesterday. couldn't sleep last night for the pain.

> so its back on pred i go, starting at 60 mgs.

> should is swollen and so painful, ribs are swollen

> out to where you can see the cartilege that is

> swollen and left ear is still growing, right ear is

> trying to follow. temp is up to 100 so he said that

> i am really flaring bad this time. breathing is

> starting to follow, so he told me that if i start

> having a hard time with breathing to head to er

> fast. i had almost forgotten how painful this can

> be, i guess is will take a few days to subside.

>

> sorry if i sound whiney, but i fell crabby and

> whinney,

>

> love you guys, thanks for being there

>

> dawn

>

>

>

> ---------------------------------

>

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--- Dawn wrote:

>

> hi

>

> just got done with dr. again. he gave me a shot

> yesterday hoping it would work and not have to go

> back on pred high doses, but today is worse than

> yesterday. couldn't sleep last night for the pain.

> so its back on pred i go, starting at 60 mgs.

> should is swollen and so painful, ribs are swollen

> out to where you can see the cartilege that is

> swollen and left ear is still growing, right ear is

> trying to follow. temp is up to 100 so he said that

> i am really flaring bad this time. breathing is

> starting to follow, so he told me that if i start

> having a hard time with breathing to head to er

> fast. i had almost forgotten how painful this can

> be, i guess is will take a few days to subside.

>

> sorry if i sound whiney, but i fell crabby and

> whinney,

>

> love you guys, thanks for being there

>

> dawn

>

>

Dear Dawn, it's ok, you are allowed to be crabby and

whiney when you feel like that!! Sorry you have to go

on the higher dose of pred, but when I am feeling like

that I am SOOOOO grateful that we have it to take!!!

I sometimes think how awful it would be to cope with

rp without it!! At least it generally gives relief.

Even before I was dx I was taking pred because mine

always caused breathing problems. Talking of which

listen to your doc, if the breathing gets hard GO

directly to the er (do not pass go; do not collect

$200!!) In my experience if you are having a hard time

breathing they treat it quite quickly. Feel better

soon, you are in my prayers. Love Liz

__________________________________________________

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Dawn, I'm glad that you are starting to feel better, but so sorry you are

going through all of this. Darn!! YOu just get better, you hear me. I don't

know how you made it to work. You should be resting. I hope you are when

you get home. Please know I'm thinking of you all the time and hope this is

over with ASAP.

Love & hugs

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Hi Dawn,

So glad to hear that you are back on the road to

recovery. I worry about you...it's the curse from

living near Glenda. It must be in the air or

something!

Take care and don't work too hard!

Love, squeek

--- Dawn wrote:

>

> Hi

>

> Thought I had better log on let you guys know I'm

> still among the living. WAs really sick most of

> last week and finally gave in and went to dr. on

> thursday. Well he gave me what for , for not

> coming in sooner, but i just hate to go to drs. bp

> was high, had a acute major flare going along with

> fever, and flaring in the ribs, joints, ears, and

> starting into the nose. So i am back on 60 mg of

> pred along with the metho, celebrex and whatever

> else i can find to get rid of the pain. As of

> today i went back to work, really tired to night

> but don't feel to bad. the pred has kicked in so

> hopefully it will be up hill now.

>

> thanks to all for the good wishes and just listening

> to me complain. You know that no one really

> understand unless they have felt it and all of us

> hear have been there and done that.

>

> Again thanks to all

>

> love you guys

>

> dawn

>

>

>

>

>

> ---------------------------------

>

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Dawn

Glad to hear that you are feeling a little better! Gish I wonder if it is all due to a few weeks ago when you over did? Take care and get well soon. I miss your good ole nagging self! :o)

Lots of love

Glenda

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Dawn

You are in my thoughts and prayers. Dog gone it! This darn ole RP needs to go back into hiding and leave you alone.

Lots of love

Glenda

as for my flare, I think its coming back, this morning can't raise my arm again, and now my ribs are starting to hurt AGAIN, My bp is up can't get it down.

Iwould not wish this stupid disease on a kid no way, I don't know how they can deal with it. take care and remember someone in WV love ya

dawn

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Dawn,

You can get shingles. When Shae had them I had to move out of the house until she got better. Darn! I will be sending good thoughts and prayers your way!

Lots of Love

Glenda

GLENDA

YEP I HAVE HAD BUT BECAUSE OF ALL THE IMMUNE SUPPERSENT DRUGS, WHAT CAN HAPPEN, LIKE SHINGLES OR SOMETHING ELSE DAWN

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Dawn

LOL So glad you have it figured out. Doesn't it just drive you crazy when you can't get something to work! Then when you get it fixed it makes you feel like Wonder Woman!

Squeek and her mice started all this! Gish Well this one I thought was pretty cute too.

Hope you are feeling better today!

Lots of love

Glenda

Upgrade Outlook® - Add COLOR to your Emails

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Dawn, I have had a lot of tests on my kidneys. I'm not sure, but I think a

renal scan is like a CT scan and they will probably use dye. If this is the

one there is no pain. I did have one i will refuse to ever do again.... They

filled my bladder up with a cathater til it could hold no more...... made me

walk down to another room and then told me to stand next to the xray machine

( like a lund x ray) and then told me to pee. LOL WHAT... with 3 people in

the room and just let it run down my legs???? Well upon hearing that my

bladder shut down and said " NO Way " ... they did let me go into the bathroom

and relieve myself just a bit, then gave me a towel to put between my legs if

I felt " more comfortable " . LOL After i started, they yelled " STOP, now

hold it " . Well you get the picture..... It was called a voiding cystogram I

believe... Never again. LOL

sorry about getting off track, I'm sorry I don't know about your BP. I think

I would call another dr and get a second opinion just to be sure and if you

have ANY problems that don't seem right, get to the ER.

You are in my thoughts and prayers

hugs

GET WeLL all of you out there!!!!!

Dawn wrote:

ok to all of my lifeline buddies

Has anyone in the group ever had a renal scan and whats it like????

Also I can't take my Blood Pressure medicien for the next 72 hours until the

scan is over, so at what point should I be concerned about my BP going up.

Believe me I know it will. Thurs when I was at Dr.'s it was 172/118, so at

what point should I be concerned and head back to dr.'s. I had a horrible

headache when it was that high. The blood pressure specialist said he didn't

worry about it to much till the bottom hit 150 to me that sounds way to close

to stroking out. So i wanted you all's opinion. then they up and told me Not

to take my BP meds becasue they want it high when the do the scan. The dr,

is aware of all of this.

thanks

dawn >>

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WAY TO GO CLAUDIA!!!!!!!!!!!!!!!! I'LL RESCUE YOU.SEE I'M EVEN SENDING YOU A

SIGN TO HOLLAR WITH

DAWN >>

Dawn, thanks, think I will need all the help I can get!!!! LOL

hugs

HOw is your flare????? Please tell me you are doing better!! :)

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Hi Dawn,

Don't ya' just love the hurry up and wait routine? NOT! Are you feeling any better?

O.K. I'll try not to worry until Tuesday, but after that all bets are off.

Love, squeek

Dawn wrote:

Squeek Sorry, but I haven't heard anything yet. I called on Friday, and he didn't have the report yet. Like I said Hurry Up and Wait. Dr. will not be back in till tues. so i guess i have to wait at least till then. Don't worry, be happy. dawn Sharon King wrote:

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  • 2 weeks later...

Dawn, sorry if I sent the UTI your way! How about using Heidi's pain

reliever.LOL Heard you have some now.LOL Sorry, had to bring it up.

I'm so sorry you had to get this. If you find something for the pain, let me

know. I'm using Pyridium and Vicodin for the spasms and pain.

The urologist today said he thought I had a yeast infection in my urthethra

and gave me 2 pills, (I'm sure you all know the name, but don't remember them

now... start with a D) LOL I am to take them both in the morning and he

feels I will be 100 % by Sunday. Gosh I hope he is soooo right. I am to

call him on Monday either way. Doesn't think it is the cystitis. That is

GREAT news.

Just rest and float with the fluids. I don't know what else to tell you.

I would take something for the pain until the antibiotics kick in which could

be 3 days. Call your dr today and get something for relief.

I'm going to go soak in a hot tub and take a short nap. A birthday nap. LOL

Haven't done that in a long time.

Rest Dawn and know I'm thinking of you. Wish I was there to recoup with you.

Boy we could sure have fun.

I'm thinking of you

hugs

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Dawn, gosh I hope you are feeling better today. The urologist I saw

yesterday didnt' think I had I. Cystitis. YIPPEE!! That was the good news.

He thought that because i have been on so many antibiotics that I have a

yeast infection that went into my urethra and bladder. So he gave me the 2

pills to take today for that and said I should be back to nomal by Monday.

I am to call him either way. He was a keeper. Sure wish he could give the

infection specialist a few pointers. LOL

I'm hoping I'm 100% by tomorrow or monday. So watch out. I will be back

full time. lOL

Take care and get lots of rest.

hugs

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Dawn, well, i guess I did one or your tricks and jinxed myself. I had such a

great day yesterday and this morning I woke up with the same burning and pain

I have had for weeks. Maybe I'll just need another dose of the anti yeast

med. Geez... I don't know. Getting pretty old, this being sick thing. lOL

How are you doing.??? I hope you are feeling back to your old self... You

know I'm thinking of you.

hugs

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Dawn, I'm so happy to hear that. You just keep taking that medicine and it

will go away for good.

I put a call into the urologist this morning and am waiting to hear what to

do. I'm fine as long as I take the pain meds and the pyridium for the

spasms. But don't want to live this way and keep hiding whatever it is. I

hope to hear soon. Will keep you updated.

hugs

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