Guest guest Posted December 3, 2009 Report Share Posted December 3, 2009 Thanks Dyane Geeta > > > > > > > > > > > > From: Beth mbmurtha@ > > > > Subject: Re: new to the group > > > > To: Breathe-Support > > > > Date: Wednesday, December 2, 2009, 8:26 AM > > > > > > > > > > > >  > > > > > > > > > > > > > > > > > > > > > > > > > > > > Patti, > > > > Welcome to Breathe Support!! It's lousy that you have reason > to > > > look for a group like this but I hope that you find it as > helpful > > > as I have over the last 3 and a half years. > > > > It sounds like you are doing all the right stuff. I'm so happy to > hear > > > you are going to the University of Chicago. They have a great > reputation > > > and I'm certain you will learn a ton regarding your own situation > and > > > how to approach the new realities. > > > > Take things one step at a time and please don't panic about what > you > > > read on the internet. I was diagnosed 3 and a half years ago and I'm > in > > > EXACTLY the same condition I was at that time. I've been stable for > 3 > > > and a half years. We have a member who is I think ten or twelve > years > > > out from diagnosis and is stable. So the moral of the story is, > there is > > > no expiration date tatooed on your fanny! > > > > Please continue to read and ask whatever questions you have. We're > > > here to help! > > > > > > > >  > > > > Beth > > > > Moderator > > > > Fibrotic NSIP 06/06 Dermatomyositis 11/08 > > > >  > > > >  > > > > > > > > > > > > > > > > > > > > > > > > > > > > From: emma0850 napa73 (AT) comcast (DOT) net> > > > > To: Breathe-Support@ yahoogroups. com > > > > Sent: Tue, December 1, 2009 10:35:47 PM > > > > Subject: new to the group > > > > > > > >  > > > > > > > > Hello everyone.... .I just found this group today and I couldn't > be > > > happier to find all of you! My name is Patti.....I am 59 yrs old and > was > > > told three years ago that I had pulmonary fibrosis in my lung bases. > I > > > went through the entire ordeal of test after test and was told it > was so > > > mild that they thought it may have been there for years. I continued > to > > > do all the follow up tests each year and until now it had remained > > > unchanged. This past month the tests showed it has now progressed to > the > > > entire lung area. My PFT had dropped from 79 to 60 in two years. I > still > > > feel just fine but the doctor says it is time for Prednisone. I have > an > > > appt in Chicago this month with a new doctor. I have read volumes of > > > information on the internet and most of the info I read just scares > me. > > > They make it sound like a death sentence. Again I am so happy to > find > > > this group!! > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2010 Report Share Posted July 7, 2010 > > I have been 10 years with UC, and was just given this book 2 weeks ago, I read it and I am diving in......I usually go 2-3 yrs without a flare up and then they last 2 months or so and all is well. BUT this time for what ever reason, I flared and I cannot get it to go back I have been 7 months now bleeding, which also makes this odd, because I am having normal bowel movements 1-2 time a day only bleeding a few other times a day. Very annoying, I am a mother of 4 young children who works and is busy like every other mom out there. I have lost some weight not alot maybe 10lbs in total, and have continued to do my workout routine. I have never been a betting kind a girl...but I am betting it all on this SCD Diet!!! Fingers crossed! > Hi , welcome to SCD! this is a great group of helpful, encouraging people. You dont say if your on any meds. I have been on SCD for a little over a year and blood has always been an issue with my UC. Whenever i had a flare it is was the worst symptom. someone in the group told me that the blood is the last symptom to go on SCD. and ya know what? it stopped at about 6 months on the diet. keep asking questions and follow the diet 100 percent. Also, i have found that while on the diet.... i had a 3 month flare and a 1 year flare which apparently Elaine mentions in the book. the 3 month flare was under control in literally 4 days (never have i had that before) but the 1 year flare....i had to go on 60mg of Prednisone and an antibiotic. Sometimes we just need a little help to get through. it was the worst ever... in 14 years. no real explanation??? i was discouraged. but it is past and i am back on track with the diet and feeling great again. i hope the best for you. lisa UC 14+ SCd 1 year+ currently weaning off pred 15 mg/daily from a most serious flare Quote Link to comment Share on other sites More sharing options...
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