Guest guest Posted November 18, 2003 Report Share Posted November 18, 2003 Wanting another baby and not getting one is hard. I know one of the reasons that Patti's diagnosis hit us so hard was that we did try for 9 years to have a child. This is one of those times when the answer has to be made by you and your spouse. Research your options, find out what your comfortable with and then go for it. If you have your heart set on the " old fashioned " :-) way of conceiving, then relax. It will come (or it won't) in it's own due time and purpose. I know it is hard to hear that...it was hard for me... You have one thing going for you that I did not. You already have a child that you can cherish and love. As hard as it is for us to hear, there are times when we have to look at life and decide if we are going to waste away being wishful of what we don't have, or are we going to take stock of our blessings and be happy with what we've got. Dawn mom of 4, 7 and under, the youngest wcf ps This wasn't intended as the lecture that it looks like. Sometimes a straight forward reply is the only kind I can give. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2003 Report Share Posted November 19, 2003 My daughter and her husband also decided not to have any more children after Abby was diagnosed with CF. I told them that they would be hard pressed to have another baby as perfect as Abby. She REALLY IS perfect. I love Abby's personality. Gale Grandme to Abby (almost 2 wcf) > Wanting another baby and not getting one is hard. I know one of the reasons that Patti's diagnosis hit us so hard was that we did try for 9 years to have a child. This is one of those times when the answer has to be made by you and your spouse. Research your options, find out what your comfortable with and then go for it. If you have your heart set on the " old fashioned " :-) way of conceiving, then relax. It will come (or it won't) in it's own due time and purpose. I know it is hard to hear that...it was hard for me... You have one thing going for you that I did not. You already have a child that you can cherish and love. As hard as it is for us to hear, there are times when we have to look at life and decide if we are going to waste away being wishful of what we don't have, or are we going to take stock of our blessings and be happy with what we've got. > > Dawn mom of 4, 7 and under, the youngest wcf > ps This wasn't intended as the lecture that it looks like. Sometimes a straight forward reply is the only kind I can give. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2003 Report Share Posted December 4, 2003 Natalia, You really need to meet our sweet and dear friend Tammy Baker, she is tops. Tammy is 43 wcf, has 3 kids, right now she is under the weather, but she is an inspiration to me. You really need to join crataegus. There are more people in there over 25 wcf, we learn from them, every day. This is all the information to join, I hope you do. For more information: http://groups.yahoo.com/group/crataegus/ Post message: crataegus Subscribe: crataegus-subscribe Unsubscribe: crataegus-unsubscribe List owner: crataegus-owner > > > Hi everyone! > > > Did I offend anyone else by submitting my eBay address. A few > > people > > > and I were talking about my ALTERNATIVE way of finding a career, > > since > > > I could not do architecture. I am NOT advertising, or trying to > > make a > > > buck here. I was just asked. I am sorry if I did offend any one > > else. > > > i am here for a very honorable reason. My CF.. > > > > > > Natalia > > > 24 w CF > > > > > <image.tiff> > > > > > > ------------------------------------------- > > The opinions and information exchanged on this list should IN NO WAY > > be construed as medical advice. > > > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR > > TREATMENTS. > > > > ------------------------------------ > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2003 Report Share Posted December 4, 2003 , Is Cratageuos a more " technical " site? I have not tried to join it, because I thought that it would be " over my head " . Gale > > > > Hi everyone! > > > > Did I offend anyone else by submitting my eBay address. A few > > > people > > > > and I were talking about my ALTERNATIVE way of finding a career, > > > since > > > > I could not do architecture. I am NOT advertising, or trying to > > > make a > > > > buck here. I was just asked. I am sorry if I did offend any > one > > > else. > > > > i am here for a very honorable reason. My CF.. > > > > > > > > Natalia > > > > 24 w CF > > > > > > > > <image.tiff> > > > > > > > > > ------------------------------------------- > > > The opinions and information exchanged on this list should IN NO > WAY > > > be construed as medical advice. > > > > > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR > > > TREATMENTS. > > > > > > ------------------------------------ > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2003 Report Share Posted December 4, 2003 In the few months that I have known Tammy I can honestly say that she would be humble and delighted. That's just Tammy. I will write to her and let her know. > > > > > Hi everyone! > > > > > Did I offend anyone else by submitting my eBay address. A few > > > > people > > > > > and I were talking about my ALTERNATIVE way of finding a career, > > > > since > > > > > I could not do architecture. I am NOT advertising, or trying to > > > > make a > > > > > buck here. I was just asked. I am sorry if I did offend any > > one > > > > else. > > > > > i am here for a very honorable reason. My CF.. > > > > > > > > > > Natalia > > > > > 24 w CF > > > > > > > > > > > <image.tiff> > > > > > > > > > > > > ------------------------------------------- > > > > The opinions and information exchanged on this list should IN NO > > WAY > > > > be construed as medical advice. > > > > > > > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR > > > > TREATMENTS. > > > > > > > > ------------------------------------ > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2003 Report Share Posted December 4, 2003 , Thanks!! You are sweet and I feel really lucky to have found this list and you guys to talk to. To be honest with you, during the past few months I have been lonely. Due to being sick I have changed my life-style and this has lead to me losing some friends that I don't party with anymore. But I have gained some friends too, like people here, and new people in my life that understanad that I am struggling with things right now. Physically and emotionally. I have been a wreck for quite some time, and am now pulling my life together. But many changes have been made. And I love this list, it gives me such a great means to share and get some boost of spirits. Who knew strangers on the internet could be so family-like after such a short time. It's the coolest thing I think. Natalia On Thursday, December 4, 2003, at 11:21 PM, Palazola wrote: > Natalia, > > We are all parents of children of CF. Not only do I think you are > very creative and a good artisan but you are also a business person. > On the other hand, had you not been a CF patient, I for one would > have been highly offended. I know where Sheila is coming from, I > have been approached by vendors who take advantage of our situation > and this list. But, my dear, this is your livelihood and you should > promote yourself through this list. This is part of the support that > we give and we get. One of our members, Tucker, does the same > thing and some of her proceeds do go to a noble cause, The Milan > Foundation, her little girl's name is Milan and has CF. She hopes > one day have enough funding to help CF people in need. For profit > she does candles, she is also an artisan and a business woman. > Whenever I buy something from Amazon.com I go through her website > milanfoundation.org so she can get the foundation gets credit. I hope > to get something from your website, soon. > Lots of love, > > > > > > > > > > Hi everyone! > > Did I offend anyone else by submitting my eBay address. A few > people > > and I were talking about my ALTERNATIVE way of finding a career, > since > > I could not do architecture. I am NOT advertising, or trying to > make a > > buck here. I was just asked. I am sorry if I did offend any one > else. > > i am here for a very honorable reason. My CF.. > > > > Natalia > > 24 w CF > > <image.tiff> > > > ------------------------------------------- > The opinions and information exchanged on this list should IN NO WAY > be construed as medical advice. > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR > TREATMENTS. > > ------------------------------------ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2003 Report Share Posted December 4, 2003 Gale, Sharktank is very technical not crataegus. Crataegus is a place to learn about alternative medicine and what it has done to some of the patients w/CF. I really like Crataegus and the people there. > > > > > Hi everyone! > > > > > Did I offend anyone else by submitting my eBay address. A few > > > > people > > > > > and I were talking about my ALTERNATIVE way of finding a > career, > > > > since > > > > > I could not do architecture. I am NOT advertising, or trying > to > > > > make a > > > > > buck here. I was just asked. I am sorry if I did offend any > > one > > > > else. > > > > > i am here for a very honorable reason. My CF.. > > > > > > > > > > Natalia > > > > > 24 w CF > > > > > > > > > > > <image.tiff> > > > > > > > > > > > > ------------------------------------------- > > > > The opinions and information exchanged on this list should IN > NO > > WAY > > > > be construed as medical advice. > > > > > > > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS > OR > > > > TREATMENTS. > > > > > > > > ------------------------------------ > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2003 Report Share Posted December 4, 2003 thanks Gale. On Thursday, December 4, 2003, at 11:10 PM, danieleverettharris wrote: > You did not offend me. I am glad to see that you are making good use > of your talent. I checked your site out. You have designed some > really nice pieces. > > Gale > > > > Hi everyone! > > Did I offend anyone else by submitting my eBay address. A few > people > > and I were talking about my ALTERNATIVE way of finding a career, > since > > I could not do architecture. I am NOT advertising, or trying to > make a > > buck here. I was just asked. I am sorry if I did offend any one > else. > > i am here for a very honorable reason. My CF.. > > > > Natalia > > 24 w CF > > <image.tiff> > > > ------------------------------------------- > The opinions and information exchanged on this list should IN NO WAY > be construed as medical advice. > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR > TREATMENTS. > > ------------------------------------ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2003 Report Share Posted December 4, 2003 Perfect, thanks. I will join for sure. And I do want to meet Tammy. Let her know if you contact her outside this list, that I really want to write with her. Natalia On Thursday, December 4, 2003, at 11:34 PM, Palazola wrote: > > Natalia, > > You really need to meet our sweet and dear friend Tammy Baker, she is > tops. Tammy is 43 wcf, has 3 kids, right now she is under the > weather, but she is an inspiration to me. You really need to join > crataegus. There are more people in there over 25 wcf, we learn from > them, every day. This is all the information to join, I hope you do. > > For more information: http://groups.yahoo.com/group/crataegus/ > Post message: crataegus > Subscribe: crataegus-subscribe > Unsubscribe: crataegus-unsubscribe > List owner: crataegus-owner > > > > > > > > > > > > > > > > > > > > > Hi everyone! > > > > Did I offend anyone else by submitting my eBay address. A few > > > people > > > > and I were talking about my ALTERNATIVE way of finding a career, > > > since > > > > I could not do architecture. I am NOT advertising, or trying to > > > make a > > > > buck here. I was just asked. I am sorry if I did offend any > one > > > else. > > > > i am here for a very honorable reason. My CF.. > > > > > > > > Natalia > > > > 24 w CF > > > > > > > > <image.tiff> > > > > > > > > > ------------------------------------------- > > > The opinions and information exchanged on this list should IN NO > WAY > > > be construed as medical advice. > > > > > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR > > > TREATMENTS. > > > > > > ------------------------------------ > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2003 Report Share Posted December 4, 2003 I'm in Ohio, Eastern Standard Time. It's 11:54pm here. I'll scan the chanels for it. Thanks! P.S. I found it! Gale > > > Just for your INFO, Lance Armstrong is on Letterman tonight, and > > he's > > > my hero. I just read his two books, and they inspire!!! Give > > those > > > books to your kids for the holidays this season, especially the > > first > > > one. It's amazing and will make you want to fight CF. > > > > > <image.tiff> > > > > > > ------------------------------------------- > > The opinions and information exchanged on this list should IN NO WAY > > be construed as medical advice. > > > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR > > TREATMENTS. > > > > ------------------------------------ > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2003 Report Share Posted December 4, 2003 Where are you?? In Toronto its on at 11:30. It's on as we speak. Lance will be on within the next 45 minutes. On Thursday, December 4, 2003, at 11:40 PM, danieleverettharris wrote: > What time is Letterman on? I hope that I didn't already miss this > show. > > Gale > > > > Just for your INFO, Lance Armstrong is on Letterman tonight, and > he's > > my hero. I just read his two books, and they inspire!!! Give > those > > books to your kids for the holidays this season, especially the > first > > one. It's amazing and will make you want to fight CF. > > <image.tiff> > > > ------------------------------------------- > The opinions and information exchanged on this list should IN NO WAY > be construed as medical advice. > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR > TREATMENTS. > > ------------------------------------ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2003 Report Share Posted December 4, 2003 Just out of curiosity Gale, do you have Dominion East Ohio Gas, Or Colombia Gas?I sell natural gas and I always wonder if I had sold to someone I knew up there before.I sell in Illinois now when The New Jersey people have had enough of meLOL Patty > > > > Just for your INFO, Lance Armstrong is on Letterman tonight, and > > > he's > > > > my hero. I just read his two books, and they inspire!!! Give > > > those > > > > books to your kids for the holidays this season, especially the > > > first > > > > one. It's amazing and will make you want to fight CF. > > > > > > > > <image.tiff> > > > > > > > > > ------------------------------------------- > > > The opinions and information exchanged on this list should IN NO > WAY > > > be construed as medical advice. > > > > > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR > > > TREATMENTS. > > > > > > ------------------------------------ > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2003 Report Share Posted December 4, 2003 I " think " that we have Columbia Gas, but my husband takes care of that so I don't know for sure. Gale > > > > > Just for your INFO, Lance Armstrong is on Letterman tonight, > and > > > > he's > > > > > my hero. I just read his two books, and they inspire!!! > Give > > > > those > > > > > books to your kids for the holidays this season, especially > the > > > > first > > > > > one. It's amazing and will make you want to fight CF. > > > > > > > > > > > <image.tiff> > > > > > > > > > > > > ------------------------------------------- > > > > The opinions and information exchanged on this list should IN > NO > > WAY > > > > be construed as medical advice. > > > > > > > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS > OR > > > > TREATMENTS. > > > > > > > > ------------------------------------ > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2003 Report Share Posted December 5, 2003 crataegus is the more herbal, alternative medicine site; sharktank is the research site, but everyone seems to belong to both; at present both lists are more or less unmoderated: sharktank by choice, crataegus, because the moderator recently lost her sun due to medically inappropriate treatment; I honestly do not know how one currently signs on to it--both are small lists, but very good. n, sticking her computer in here! Re: (unknown) , Is Cratageuos a more " technical " site? I have not tried to join it, because I thought that it would be " over my head " . Gale > > > > Hi everyone! > > > > Did I offend anyone else by submitting my eBay address. A few > > > people > > > > and I were talking about my ALTERNATIVE way of finding a career, > > > since > > > > I could not do architecture. I am NOT advertising, or trying to > > > make a > > > > buck here. I was just asked. I am sorry if I did offend any > one > > > else. > > > > i am here for a very honorable reason. My CF.. > > > > > > > > Natalia > > > > 24 w CF > > > > > > > > <image.tiff> > > > > > > > > > ------------------------------------------- > > > The opinions and information exchanged on this list should IN NO > WAY > > > be construed as medical advice. > > > > > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR > > > TREATMENTS. > > > > > > ------------------------------------ > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2003 Report Share Posted December 6, 2003 Dear Natalia, We are very happy to have you join us. I too am a little lonely, I don't have a lot of friends since I don't work and I don't really get out very much. So I really enjoy this list along with another 2 cf support groups I am on. I myself have fibromyalgia but I did not enjoy the internet support group for it that I joined for a short while. Unlike this list the people all seemed depressed and sorry for theirselves. I didn't like that. love, M Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2003 Report Share Posted December 6, 2003 Isn't it great! We are like a family. Each of us has bad times, cranky times and happy times..........sometimes all at once!!! As long as we respect each other we're ok............ Rosemary in NY with 3 children (13, 11 and 7) with CF. I have a dog named TOBI and have coined the phrase " BREATHE DAMMIT " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2003 Report Share Posted December 9, 2003 Sorry, sent to wrong group. Lori Owen - Denton, Texas SRVG 7/16/01 Dr. Ritter/Dr. Bryce 479/356/hoping for close to 200 On Tue, 9 Dec 2003 16:54:20 -0600 loriowen@... writes: > Robin, > I was wondering if Judy ever brought over the basket of > things > for Dr Ritter's baby? If not, I can ask her to bring it next week. > At > least it would be there in time for Christmas. > Lori Owen - Denton, Texas > SRVG 7/16/01 > Dr. Ritter/Dr. Bryce > 479/356/hoping for close to 200 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2004 Report Share Posted January 8, 2004 It sounds like you just read a page out of my life. Ninety-five percent of the time I'm doing ok. I go about life on a normal routine of treatments and medicines and basically accept that these are the cards we were delt, and with God in control of our lives, he keeps us going. But we're not super-human, I'm realizing every day I log on to this computer that there are so many other people feeling the way I feel. I had " one of those days " just a little over a month ago when they started my daughter on TOBI. I just felt like I couldn't handle subjecting her (almost 3 years old) to another form of treatment. The first day we gave her the TOBI, I dreaded her reaction. I prayed about it, and thank God, she did ok. Fortunately, my daugher loves the Toy Story movies. Currently, she wears a " Buzz Lightyear Vest " and a " Buzz Lightyear Helmet " . Every time she's done, she yells " To inifinite and beyond! " Ironic, huh? I hope she does go to inifinite and beyond throughout her life. Let yourself have your down days, and just realize that tomorrows a new day. You're in my thoughts. Tracey, mom to Sydney almost 3 w/cf (unknown) Well, today is one of those days when my emotions have overtaken me. My life is not one to complain about. I have a husband who loves me, whom I dearly love, two wonderful children, two dogs, a horse, a roof over my head and food in the fridge. Bills are paid, the weather is beautiful, and here I sit in tears. Why? I don't know. Of course I know, there is a monster in my house, in my life and I do not like it. I want it to go away, but it won't. I try to protect my daughter from the things that will harm her, but I cannot protect her from this. Over the holidays we neglected her treatments and now it is time to get back on track. I take for granted the fact that she has made it half way through the flu season without even a sniffle, so missing a treatment here or there should be ok? I guess I am beating myself up that my baby has to go through 3 hours of treatments a day. When is she allowed to have a life? Well if you don't do the treatments, she won't have a life. Great, that makes me feel better. She absolutely hates doing treatments. Currently we are doing 28 days of Tobi, vest 20 minutes x2 and pulmozyme 1x a day. I have tried everything, from being the meanest Mom in the UNIVERSE, to bribery. Yes this is a small battle. How do I explain to her that if she does not do these treatments she will get very sick? It is very hard for me when the two of us are struggling and negotiating treatments to not blurt out " if you don't do them you could die! " But sometimes that is what I want to say. That is my pain, my burden. I cannot tell her this because I am afraid she will give up, not care, or rebel and " speed up " the process( not now, but perhaps in her teenage years). Natalia's post really touched me when she said that " she feels sad " , I don't want my daughter to feel sad! I don't want her to be in the position of where she has to fight for her life, and this just kills me. So I come back to reality, I do not know what is going to happen next week, next year, in 20 years, I have to get through today, and I will think about tomorrow later. Today things are good, everyone is happy and healthy. I won't apologize for rambling, I just needed to throw this out there. I know, I know, stay positive, don't let it get you down etc... but, today it has gotten me down. Have you ever had a dream where you are being chased and you cannot run away? Your feet move like a cartoon character, yet you don't go anywhere? Today, I can't get away. I could go to the beach, or sit out on my patio in the warm sun, but then I would be alone with my thoughts and right now, that is not a good place to be. I can't sit and watch tv, that just drives me up the wall. My attention span is too short. Clean the house, mop the floor.....yeah right. Ok, turn some " happy music " on really loud and clean the house and mop the floors. Or better yet, type to the group, throw my feelings out into cyberspace and know that I am not alone. Someone, somewhere will know how this feels. e, mom to 10 wcf and Ian 13 nocf ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. ------------------------------------ ------------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2004 Report Share Posted January 8, 2004 We all have those days once in a while. I get them too. Especially when is at school or something. Sometimes I can distract myself long enough to get it together, sometimes I can't. I am sorry you are feeling down, but this is the place to vent it. We all understand, and sometimes the hardest part is finding someone who " gets " what you mean and can say, " I know exactly how you feel right now " Mom of 5 with CF and one on the way (unknown) Well, today is one of those days when my emotions have overtaken me. My life is not one to complain about. I have a husband who loves me, whom I dearly love, two wonderful children, two dogs, a horse, a roof over my head and food in the fridge. Bills are paid, the weather is beautiful, and here I sit in tears. Why? I don't know. Of course I know, there is a monster in my house, in my life and I do not like it. I want it to go away, but it won't. I try to protect my daughter from the things that will harm her, but I cannot protect her from this. Over the holidays we neglected her treatments and now it is time to get back on track. I take for granted the fact that she has made it half way through the flu season without even a sniffle, so missing a treatment here or there should be ok? I guess I am beating myself up that my baby has to go through 3 hours of treatments a day. When is she allowed to have a life? Well if you don't do the treatments, she won't have a life. Great, that makes me feel better. She absolutely hates doing treatments. Currently we are doing 28 days of Tobi, vest 20 minutes x2 and pulmozyme 1x a day. I have tried everything, from being the meanest Mom in the UNIVERSE, to bribery. Yes this is a small battle. How do I explain to her that if she does not do these treatments she will get very sick? It is very hard for me when the two of us are struggling and negotiating treatments to not blurt out " if you don't do them you could die! " But sometimes that is what I want to say. That is my pain, my burden. I cannot tell her this because I am afraid she will give up, not care, or rebel and " speed up " the process( not now, but perhaps in her teenage years). Natalia's post really touched me when she said that " she feels sad " , I don't want my daughter to feel sad! I don't want her to be in the position of where she has to fight for her life, and this just kills me. So I come back to reality, I do not know what is going to happen next week, next year, in 20 years, I have to get through today, and I will think about tomorrow later. Today things are good, everyone is happy and healthy. I won't apologize for rambling, I just needed to throw this out there. I know, I know, stay positive, don't let it get you down etc... but, today it has gotten me down. Have you ever had a dream where you are being chased and you cannot run away? Your feet move like a cartoon character, yet you don't go anywhere? Today, I can't get away. I could go to the beach, or sit out on my patio in the warm sun, but then I would be alone with my thoughts and right now, that is not a good place to be. I can't sit and watch tv, that just drives me up the wall. My attention span is too short. Clean the house, mop the floor.....yeah right. Ok, turn some " happy music " on really loud and clean the house and mop the floors. Or better yet, type to the group, throw my feelings out into cyberspace and know that I am not alone. Someone, somewhere will know how this feels. e, mom to 10 wcf and Ian 13 nocf ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. ------------------------------------ ------------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2004 Report Share Posted January 9, 2004 i have those days to i call them my bad cf days i have not had one in a while but the past few days i have i thought maybe it was all the holiday hoopla got to me but then anna got sick and we had a night in the hopital and we are waiting for the test results to see if she has Phksudonomis ( i can never spell that one right !!) but the waiting is killing me she is only two and i wish she could just tell me what is wring when she is sick michelle mom to 4 girls caitlin 8 n/cf erin 7 n/cf moira 3 n/cf and anna 2w/cf (unknown) > > > Well, today is one of those days when my emotions have overtaken > me. My life is not one to complain about. I have a husband who > loves me, whom I dearly love, two wonderful children, two dogs, a > horse, a roof over my head and food in the fridge. Bills are paid, > the weather is beautiful, and here I sit in tears. Why? I don't > know. Of course I know, there is a monster in my house, in my life > and I do not like it. I want it to go away, but it won't. I try to > protect my daughter from the things that will harm her, but I cannot > protect her from this. Over the holidays we neglected her > treatments and now it is time to get back on track. I take for > granted the fact that she has made it half way through the flu > season without even a sniffle, so missing a treatment here or there > should be ok? I guess I am beating myself up that my baby has to go > through 3 hours of treatments a day. When is she allowed to have a > life? Well if you don't do the treatments, she won't have a life. > Great, that makes me feel better. She absolutely hates doing > treatments. Currently we are doing 28 days of Tobi, vest 20 minutes > x2 and pulmozyme 1x a day. I have tried everything, from being the > meanest Mom in the UNIVERSE, to bribery. Yes this is a small battle. > How do I explain to her that if she does not do these treatments she > will get very sick? It is very hard for me when the two of us are > struggling and negotiating treatments to not blurt out " if you > don't do them you could die! " But sometimes that is what I want to > say. That is my pain, my burden. I cannot tell her this because I am > afraid she will give up, not care, or rebel and " speed up " the > process( not now, but perhaps in her teenage years). Natalia's post > really touched me when she said that " she feels sad " , I don't want > my daughter to feel sad! I don't want her to be in the position of > where she has to fight for her life, and this just kills me. So I > come back to reality, I do not know what is going to happen next > week, next year, in 20 years, I have to get through today, and I > will think about tomorrow later. Today things are good, everyone is > happy and healthy. > I won't apologize for rambling, I just needed to throw this out > there. I know, I know, stay positive, don't let it get you down > etc... but, today it has gotten me down. Have you ever had a dream > where you are being chased and you cannot run away? Your feet move > like a cartoon character, yet you don't go anywhere? Today, I can't > get away. I could go to the beach, or sit out on my patio in the > warm sun, but then I would be alone with my thoughts and right now, > that is not a good place to be. I can't sit and watch tv, that just > drives me up the wall. My attention span is too short. Clean the > house, mop the floor.....yeah right. Ok, turn some " happy music " on > really loud and clean the house and mop the floors. Or better yet, > type to the group, throw my feelings out into cyberspace and know > that I am not alone. Someone, somewhere will know how this feels. > > > e, mom to 10 wcf and Ian 13 nocf > > > > > > > ------------------------------------------- > The opinions and information exchanged on this list should IN NO WAY > be construed as medical advice. > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. > > ------------------------------------ > > > > > -------------------------------------------------------------------------- ---- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2004 Report Share Posted January 9, 2004 In a message dated 1/8/2004 2:11:00 PM Central Standard Time, kristine.patrick@... writes: e Have you every told you daughter that they will put her in the hospital instead of having to tell her the alternative? My oldest just hates hates staying in the hospital so I always use that as a threat. Hope this helps Deb A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2004 Report Share Posted January 25, 2004 Therapy....which could be just someone to talk to who isn't related or a friend. A neutral party is sometimes better to dump on then someone you know. Should medication be called for, realize that it is exactly that...medication. If you are diabetic you wouldn't deny yourself insulin would you? Another thought? Can you look for a new job? (ok...this coming from a woman who's husband has been unemployed for a year)...Taking care of yourself will help you take care of others. Debbie & in Gig Harbor (170cm medial) ladybostons@... http://www.cafeshops.com/copsstore http://www.marykay.com/debbiemcneice -----Original Message----- From: gwh12000 I had open RNY 2 1/2 years ago and am at my desired weight lost 160. I am recently under a lot of stress My wife has become mentally ill my job is hell and a 17 year old daughter I find I have lost my copeing mechanizum (eating). I was copeing with activity staying constantly buisy to keep from eating but I am exhausted and have to slow down. I find myself getting more and more out of control. Has anyone experienced this and do you have any suggestions for dealing with it. Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2004 Report Share Posted January 26, 2004 What an awful lot of stress! I'm so very sorry to hear it. I remember when I'd lost almost 100 lbs at the Duke University Rice Diet, Dr. Kempner (who started that program) said, " I hope you don't have any major life problems over the next couple of years - " - he felt that if did, the stress would trigger the eating issues again, and I can see why he thought that. Do you find yourself eating too many carbs? That can set off overeating in me so fast. It may be that going high protein for a while will help with the cravings - it may also help with some of the stress of trying to figure out what to eat. When I'm in a stressful situation, I'll make me a crockpot chuck roast, and just eat on that for a few days. I don't try to limit what I eat (other than what my pouch limits). And I still try to get in all my liquids. Pam in Niceville Florida (unknown) I had open RNY 2 1/2 years ago and am at my desired weight lost 160. I am recently under a lot of stress My wife has become mentally ill my job is hell and a 17 year old daughter I find I have lost my copeing mechanizum (eating). I was copeing with activity staying constantly buisy to keep from eating but I am exhausted and have to slow down. I find myself getting more and more out of control. Has anyone experienced this and do you have any suggestions for dealing with it. Thanks Homepage: http://groups.yahoo.com/group/Graduate-OSSG Unsubscribe: mailto:Graduate-OSSG-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2004 Report Share Posted January 26, 2004 Possibly therapy would help. I have found that when under a lot of stress it is best to have someone to talk to even if it is my pastor. Lori Owen - Denton, Texas SRVG 7/16/01 Dr. Ritter/Dr. Bryce 479/356/hoping for close to 200 On Mon, 26 Jan 2004 02:32:42 -0000 " gwh12000 " writes: > I had open RNY 2 1/2 years ago and am at my desired weight lost 160. > > I am recently under a lot of stress My wife has become mentally ill > > my job is hell and a 17 year old daughter I find I have lost my > copeing mechanizum (eating). I was copeing with activity staying > constantly buisy to keep from eating but I am exhausted and have to > > slow down. I find myself getting more and more out of control. Has > anyone experienced this and do you have any suggestions for dealing > > with it. Thanks > > > Homepage: http://groups.yahoo.com/group/Graduate-OSSG > > Unsubscribe: mailto:Graduate-OSSG-unsubscribe > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2004 Report Share Posted February 2, 2004 Hear Hear... I'm 2.75 years out and 25 pounds up from goal (30 up from lowest). I am giving myself till my anniversary date to get at least 20 of these suckers off. It took me about 2 years for the carb monster to find me again... Slowly, little things. Reasonable amounts of little things... Then not so reasonable amounts, then not so little things and BAM! So, I'm not picking on you and there's nothing at all wrong with treating yourself, just pay attention to how you react to the food and how you feel and all that good stuff Nothing tastes as good as " Goal " feels! http://www.eradain.com/apoplexy (unknown) Beware of complacency...re: the carbs. You are only 18 mos out...and it will bite you in the backside when you least expect it. I never went the carbs route, and still regained 30 lbs that I cannot take off. Thankfully, I was way below chart weight. Remember the 2 year wall....it is lurking out there. For me..it was the three year wall...and I think it was three years only because I do mostly protein shakes, water and vitamins! Regards~ Jacque Quote Link to comment Share on other sites More sharing options...
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