Guest guest Posted October 21, 2003 Report Share Posted October 21, 2003 He wasn't spamming the list. He was sending a link that might make it possible for some of us to save money in talking to one another. The Lord knows we need to be careful with every dime we get due to the costs of this nasty disease. Dawn, mom of 4, 7 and under, the youngest wcf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2003 Report Share Posted October 21, 2003 That's VERY true. I just received an email , supposedly from 'me " -full name & email addy. It was an ad for " enlargement meds-I couldn't believe it . I have sent it to our computer people to see how that was stolen & used.. It was the worst kind of spam. PLEASE , don't anyone think I would send that trash!!. I really thank Torsten for that. I am going to have them check her .as you said. We have many friends aboard & that would be great!! LOVE & HUGS, grandmomBEV Re: Skype He wasn't spamming the list. He was sending a link that might make it possible for some of us to save money in talking to one another. The Lord knows we need to be careful with every dime we get due to the costs of this nasty disease. Dawn, mom of 4, 7 and under, the youngest wcf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2009 Report Share Posted October 7, 2009 Peggy and Sher did you two ever meet in person? Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund.org--- Subject: skypeTo: Breathe-Support Date: Wednesday, October 7, 2009, 4:27 PM Hi Group, I talked with Sher on Skype today.. OH HOW SWEET. We were both rubbing our hair and knowing we needed a good hair doooo. LOL I just can't care about that anymore. Lord I think that means I am officially old. Anyhow let us know if your on Skype and we can chat-- face-to-face Love & Prayers, Peggy Florida, IPF/UIP 2004 "I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly." Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2009 Report Share Posted October 7, 2009 Hi Peggy and all you other Skypes and those considering transplant, I've been on Skype since summer of 2008. My Skype name is CBAYJPW. If you are going to call me send me an email in advance to my home email: cbayjpw@... so I will know to turn my Skype program on as I don't leave it on all the time. Since I had my lung transplant in Aug 2007 I wanted to see my grandkids and son in Hawaii but wasn't up to traveling until this year so I bought them and myself a Logitech Webcam so we could Skype. It has been great although it hasn't been as perfect as Oprah's Skypes. Maile, my youngest grand daughter who will be 3 the 28th of Jan. loves to call Grandma Judy on the Skype and ends our calls with big hugs and kisses. The twin girls there are now almost 4.5 yrs old and they have hula lessons so also dance for me. Alika, my grandson there was 7 in June and active in Soccer and Karate lessons after school until 2 weeks ago when he fell and broke his left arm. He has to wait for it to heal before he can play soccer or karate again. Regarding treatments for IPF, when I was diagnosed in Nov 06 I was already in the end stage. I had been on Prednisone a number of times for respitory problems which the various doctors kept saying was my Asthma or Bronchitis. After having pneumonia in Feb. 06 I continued to cough so much I insisted on seeing the pulm. doc again that fall and he finally ordered a lung scan that Oct. which surprised him when he saw the results. I saw a new pulmonary doctor a week later for a 2nd opinion and he scheduled the bronchoscope to do the lung biopsy as an outpatient rather than an open lung biopsy. He prescribed pulmonary rehab for me and when they gave me the 6 min. walk test (which they said no one ever fails) I failed within 2 min. I was put on oxygen that night 24/7 on Jan. 26, 2006. In Feb. he told me he was going to recommend me for a lung transplant or I only had 1 year to live. They began the pre transplant test the end of April 2007, and a final test was done the end of June I believe. I made the transplant list on Aug. 13, 2007 and had the transplant 9 days later on Aug. 22, 2007. I always thought 13 was my lucky number & when they called me that morning it was 3:13 a.m. They told me the first year was the hardest; but for me it was the first 13 months with 3 treatments for rejection including the lung collapse one time after a biopsy needle poked a hole into my new lung. But, my lung has done so much better even though the right lung still has the IPF. The transplant left lung does most of my breathing. The only time it falls below 90 now is when I try to swim too many lengths of the pool without resting at each end. Now I take my oximeter and lay it on a towel beside the pool so I can check it after 2 lengths. I do my first 2 lengths face foreward with a divers mask on; and only swim underwater 1/2 the length of the pool. I had swam the entire length of the pool under water a couple of times and suspected that wasn't too healthy for me. After my 2 face fordward lengths I then do 10 more lengths doing back strokes and do my purse breathing exercise as I swim. The 12 lengths swim equals 300 yds of swimming. Other pool memebers of the senior pool have been amazed at how much I swim, how well I swim and then I do 1/2 hour of physical therapy exercises in the water also. I usually go 3 times a week but haven't been there in a week now due to my sever scoliosis back problems and medical tests and treatments for same. My primary doctor had an X ray done last Fri. and discovered that I had previously had 3 broken ribs, which my lung doctor said could have happened during the transplant. I did have lots of pain after the transplant but they apparently thought that was normal from the incision. Anyway this Mon. my primary doctor also had a bone scan done of my entire body and I am supposed to get the results tomorrow. Yesterday my pain doctor gave me numbing and anti inflamatory injections for my back. If it helps then I am elgible to have a radio frequency treatment that can kill the nerve causing the pain. I told my pain doctor that when I emailed my brother a photo from my June MRI he replied " is that your spine or a train crash " ; and she agreed with him. So yes a transplant can be difficult; but believe me it is worth it to keep on living and seeing your family. I have been only on 5mg of Prednisone this year, down to one 250 mg CellCept twice a day, had my Prograf reduced from 7 mg a day to 4 mg a day in June and put on 2 mg of Rapamune (once a day). These are all the anti rejection meds; but today I have been taken completely off of Prograf and my Rapamune was raised to 3 mg. I have to have another blood test done in 2 weeks to see how this works. I'm hoping it works well as Prograf does have lots of side effects, but then all the anti rejection meds do. You just have to learn to deal with it. Love and Aloha, Judy (Ohio) IPF 11/06 TX 8/07 > > Hi Group, I talked with Sher on Skype today.. OH HOW SWEET. We were > both rubbing our hair and knowing we needed a good hair doooo. > LOL I just can't care about that anymore. Lord I think that means I > am officially old. > Anyhow let us know if your on Skype and we can chat-- face-to-face > > > > > Love & Prayers, Peggy > Florida, IPF/UIP 2004 > > " I believe that friends are quiet angels who lift us to our feet, > when our wings have trouble remembering how to fly. " > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2009 Report Share Posted October 7, 2009 No Pink, She is in Oregan and I'm in Fl.. I would love to meet her. I would love to meet everyone in our Group.Love & Prayers, Peggy Florida, IPF/UIP 2004"I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly." Peggy and Sher did you two ever meet in person? Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund.org--- On Wed, 10/7/09, Peggy <pac1773 (AT) cfl (DOT) rr.com> wrote: From: Peggy <pac1773 (AT) cfl (DOT) rr.com>Subject: skypeTo: Breathe-Support Date: Wednesday, October 7, 2009, 4:27 PM Hi Group, I talked with Sher on Skype today.. OH HOW SWEET. We were both rubbing our hair and knowing we needed a good hair doooo. LOL I just can't care about that anymore. Lord I think that means I am officially old. Anyhow let us know if your on Skype and we can chat-- face-to-face Love & Prayers, Peggy Florida, IPF/UIP 2004 "I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly." Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2009 Report Share Posted October 7, 2009 OOPS,,, make that OregOn.. lol Love & Prayers, Peggy Florida, IPF/UIP 2004"I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly." No Pink, She is in Oregan and I'm in Fl.. I would love to meet her. I would love to meet everyone in our Group.Love & Prayers, Peggy <pastedGraphic.tiff>Florida, IPF/UIP 2004"I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly." Peggy and Sher did you two ever meet in person? Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund.org--- On Wed, 10/7/09, Peggy <pac1773 (AT) cfl (DOT) rr.com> wrote: From: Peggy <pac1773 (AT) cfl (DOT) rr.com>Subject: skypeTo: Breathe-Support Date: Wednesday, October 7, 2009, 4:27 PM Hi Group, I talked with Sher on Skype today.. OH HOW SWEET. We were both rubbing our hair and knowing we needed a good hair doooo. LOL I just can't care about that anymore. Lord I think that means I am officially old. Anyhow let us know if your on Skype and we can chat-- face-to-face Love & Prayers, Peggy Florida, IPF/UIP 2004 "I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly." Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2009 Report Share Posted October 7, 2009  Peggy....our Skype call was great! and I talked for a few minutes...I didn't have long. This is just about as good as meeting. MamaSher; 71, IPF 3-2006, OR.Don't fret about tomorrow, God is already there! skypeTo: Breathe-Support Date: Wednesday, October 7, 2009, 4:27 PM Hi Group, I talked with Sher on Skype today.. OH HOW SWEET. We were both rubbing our hair and knowing we needed a good hair doooo. LOL I just can't care about that anymore. Lord I think that means I am officially old. Anyhow let us know if your on Skype and we can chat-- face-to-face Love & Prayers, Peggy Florida, IPF/UIP 2004 "I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly." Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 25, 2009 Report Share Posted December 25, 2009 I am curious. What is skype....I thought it was a breed of dog. Joyce R AZ birds Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2009 Report Share Posted December 31, 2009 Jane.... I was trying to bring you in on skype...you say your s-name is piano_ladymusicgirl. Can't bring it up on skype. Your "from" post says pianolady_musicgirl.... Send me the correct one and I'll add you in. I'm having trouble with sound right now but I'm working on it with Peggy...... MamaSher; IPF 2006; Cellular NSIP, PH, 2009, OR,.Don't fret about tomorrow, God is already there! From: pianolady_musicgirl Sent: Thursday, December 31, 2009 11:23 AM To: Breathe-Support Subject: Skype Hi! Happy New Year Everyone! I have skype and my skype is: piano_ladymusicgirl. I would love to talk and chat with anyone who has skype. Toodles! Jane UIP/IPF 12/1998 Dalton, Georgia aka pianolady_musicgirl No virus found in this incoming message.Checked by AVG - www.avg.com Version: 9.0.725 / Virus Database: 270.14.123/2595 - Release Date: 12/31/09 00:52:00 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2009 Report Share Posted December 31, 2009 Pianolady, I see you got some snow in Dalton, all we have is cold rain. Happy New Year PF 01/05 diabetis forever, pagents disease 1975 68yo Atlanta. To: Breathe-Support Sent: Thu, December 31, 2009 2:23:46 PMSubject: Skype Hi! Happy New Year Everyone! I have skype and my skype is: piano_ladymusicgirl . I would love to talk and chat with anyone who has skype. Toodles! Jane UIP/IPF 12/1998 Dalton, Georgia aka pianolady_musicgirl Quote Link to comment Share on other sites More sharing options...
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