Guest guest Posted October 17, 2009 Report Share Posted October 17, 2009 Hello all. I'm Fay, an inveterate lurker who has gained so much info from this site. I do want to suggest that the group should go ahead with a book. Like my young friend Jack, (I'm 81!), Sher, Cees , Ann, and many others I've had experience in writing and editing--nothing really creative--history text books for 4th traders through college students and teacher prep materials for the National Park Service, various history and social studies orgs, and the Atlantic Council, and European Community. So I know how much work this would be. Still someone should take on the initial draft and lots of us have editing experience. Who has time and energy? A tentative suggestion for conent: Part I: What is PF? Who gets it? smokers and non-smokers, active and sedentary people, old and young, different climates, different occupations, etc. Vignettes: examples of our members who represent above plus transplants Part II How diagnosed, treatment,transplants, commonly used medicines,examples different centers of excellence--full listing appendix Part III Liv8ing with PF Keep walking, rehab, living with oxygen Part IV When the Battle is Lost Blessings of Hospice and family members Part V Not for sissys movement, humor, being grateful This is too long and I left out examples: young mother Kerry, wonderfully zany Peggy and Zena, Good friends from other lands,etc. Fay:Mesa, AZ and Capitola CA, DX IPF 1997 and lately getting craky. Quote Link to comment Share on other sites More sharing options...
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