Guest guest Posted September 20, 2009 Report Share Posted September 20, 2009 I would like to thank every body for this site. I check out all of the e-mails or posts from this group and a fews days ago I e-mailed a member about my HYPERSENSITIVITY PNEUMONITIS (HP) from working with metal working oils. I have been sick since 2003 and on oxygen since 2005 and I have to avoid almot every thing that I use to enjoy in life because of this disease like,going to the drag races,county fair because of the tractors exhause, and even working on my 1972 GRAN TORINO that had been sitting on hold until my youngest son turned 18 and my child support was over to work on my car because I need to take care of my kids even though I was devorsed my kids always came first. On the day my son turned 18 I was told of my lung disease so my dream of restoring my Torino was put on hold again until 2008 when I found a guy who is going to a " OVERHAULIN " on my Torino Wisconsin style and thats where anybody that would like to help out can do so and so fare Jim the owner of the shop has gone way out of his way to help with my 29 year old dream and with my funeral money the car is off to a great start but my money and time to finish my car may be running out. My last 2 or 3 HR CT SCANS show that each time my lung scaring has gotten worse even though I try my best to stay away from thing that make me sick but as you all may know that HP is an AUTIMMUNE DISEASE and with me on Prednasone my immunesystem is kind of wacked anyway. Tonight I have been haveing problems because some body in the aera must have started a camp fire while I had my windows open yesterday and I didn't get them closed fast enough hence, today I have had a very bad day, I have my oxygen cranked all of the way up to 5 liters and my sats are still at 89-90 but the worse part of it all is that I feel like I am suffocating or just feel like I am nut getting any air even though I am breathing just fine. I think that when my lung react like this it's got something to do with the inflammation to my lungs because of my HP and that causes more scaring and between the inflammation and the scarring I can no longer get oxygen to pass through the linning or walls of my lungs. Today has to be one of the worse days in a long time but I am afraid to go to the HOSPITAL because I have a fear of never coming back home like my best friend who died fron the same disease just a year ago as I held his han as he fought for his last breath. I have seen my dad and foster mom as well as my uncle as I held each of their hands and each time it was like when they got to a certian point that all they did to help them was to PUMP THEM FULL OF HIGH LEVELS OF MORPHINE as they said to comfort them but it was like they just ODED them to put them out of their pain hence they never ever even woke up again once that IV OF MORPHINE WENT IN. I guess thats why I am afraid to got to the hospital when I feel this bad. I have 3 little dogs who take care of me while my wife is working 2 jobs and the to little boy dogs lay in bed next to me and although they have never been trained as service dogs, first my older dog a COCKAPOO who has been with me for 8 years now can tell when I am haveing problems with my oxygen levels it's like he can smell it in my breath and he lays so he can feel me breathing without even crushing me and making it hard to breath and if I miss a breath I am woken by his wet nose on my nose as he checks out my breath to see how I am doing. There are nights where my little baby boy don't get any sleep at all because he lays awake with his nose near my face just monitoring my oxygen levels. Well after a few years of him doing this he has benn getting kind of burnt out and sleeps all day so about a year and a half ago we found another COCKAPOO a poodle and cocker mixed. Well after a while the younger dog started to check out what the older male was doing and I don't know if dogs can talk to each other but the older dog got the puppy to help out with watching me . You knoe that they say that 2 male dogs wouldn't get along or give up there space but these 2 dogs switch off watching over me it is so weard but they never fight over anything and while one of them dose the job of laying by my to make sure I am breathing the other dog snuggles up with the dog doing the watching that night and the next night they switch off and the older boy snuggles up to the little boy while the little guy keeps a close watch over me. Well back to my info on HYPERSENSITIVITY PNEUMONITIS my doctor IS DR,JORDAN FINK at childrens hospital clinic in the ASTHMA ALERGY CENTER at the FROEDTERT MEDICAL CENTER IN WISCONSIN. DR. FINK IS THE PERSON WHO HAS WRITTEN BOOKS AND PAPERS ON HP AND HE IS ALSO CALLED ALL OVER THE WORLD TO HELP OUT WITH HP OUT BREAKS LIKE IN FACTORIES THE HAVE BAD COOLENT OR OILS IN THER MACHINEING CENTERS. I have had HR CT SCANS BLOOD TESTS AND A LUNG BIOP. The best tool so far has been the HR CT SCAN TO TRACK THE PROGRESSION OF MY HP AS WELL AS MY PULMONARY FIBROSIS. I have done all of the breating test but because of the uncontrolable coughing that comes on with the breathing tests because when I give a hard breath in the test I cough until my eyes are about to explode and once I even got a belly button herna from coughing but the tests do show air trapping in my lungs where thet find dead spots in my lungs so the breathing tests are of very little use for me because of all of the coughing. I hope that all of you are ok and doing as well as possable for your illness. I plan to GOD WILLING try to do the HOT ROD MAGAZINE POWER TOUR OF 2010 IF MY CAR IS READY AND GOD GIVE MY A LITTLE MORE TIME ON THIS EARTH AND MY REASON FOR DOING THE TOUR IS TO BRING SOME ATTION TO PULMONARY FIBROSIS AND HOW THIS DISEASE TAKE AS MANEY PEOPLE PER YEAR AS BREAST CANCER AND 8 OUT OF 10 PEOPLE HAVE NEVER HEARD OF PULMONARY FIBROSIS. I know that the trip my kill me because of all of the car exhahust but I have always wanted to see the UNITED STATES seeing that I have only been to ILLINOIS FROM WISCON TO PICK MY DAD UP WHEN HE CAME HOME FOR THE FIRST TIME IN 27 YEARS TO DIE FROM LUNG CANCER SO I HAVEN'T REALLY GOTTEN TO SEE ANY OF THIS COUNTRY AND I WISH TO DO SO BEFORE I DIE. I would love to go to California to see the great people like CHIP FOOSE, AND JAY LENO WHO HAVE TO BE SOME OF THE GREATEST CAR GUYS EVER AND I WOULD LIKE TO SEE A PLACE CALLED RED BARN AUTOMOTIVE WHO HAS OFFERED TO HELP ME GET MY CAR RUNNING AGAIN AFTER 29 YEARS. You can check out more about me and my car and all of you that are car crazy but can't go to car shows because of your illness please check out (hubgarage and my page at hubgaragebruce351c) it is a gret place to get away in a way. A place where every body is into cars and enjoys life, don't get me wrong because this is a great web site but there are times when all of us need to forget or try to forget or get away from thinking about what lays a head for each and every one of us with these bummer of a diseases and at HUBGARAGE you don't even have to leave your home to check out the car world the site was setup and is run by CHRIS JACOBS from the TV SHOW OVERHAULIN and he has been great to me everytime that I need a car buddy to e-mail even if he is in CALIFORNIA AND ME IN WISCONSIN we can still talk car talk just to get away. To all of you please forgive my spelling and grammer that is why I don't post often but tonight I feel like my time may be runnig near and I wanted to share a little with all of you before it;s to late and I can no longer do so. thanks and God Bless Bruce Theresa WI. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2009 Report Share Posted September 21, 2009 Bruce, I am originally from Oconomowoc, welcome to another Wisconsinite. Wisconsin is hard on lungs, I know my mother had IPF and they told her to get somewhere warm and dry in the winter and she came to AZ then as a snowbird. Wi is a beautiful place, I've been to Theresa for a summer festival but there is almost too much stuff, humidity, pollen, bugs, etc. I hope you make your trip! Dyane Phoenix, ipf 02 >> I would like to thank every body for this site. I check out all of the e-mails or posts from this group and a fews days ago I e-mailed a member about my HYPERSENSITIVITY PNEUMONITIS (HP) from working with metal working oils. I have been sick since 2003 and on oxygen since 2005 and I have to avoid almot every thing that I use to enjoy in life because of this disease like,going to the drag races,county fair because of the tractors exhause, and even working on my 1972 GRAN TORINO that had been sitting on hold until my youngest son turned 18 and my child support was over to work on my car because I need to take care of my kids even though I was devorsed my kids always came first. On the day my son turned 18 I was told of my lung disease so my dream of restoring my Torino was put on hold again until 2008 when I found a guy who is going to a "OVERHAULIN" on my Torino Wisconsin style and thats where anybody that would like to help out can do so and so fare Jim the owner of the shop has gone way out of his way to help with my 29 year old dream and with my funeral money the car is off to a great start but my money and time to finish my car may be running out. My last 2 or 3 HR CT SCANS show that each time my lung scaring has gotten worse even though I try my best to stay away from thing that make me sick but as you all may know that HP is an AUTIMMUNE DISEASE and with me on Prednasone my immunesystem is kind of wacked anyway. Tonight I have been haveing problems because some body in the aera must have started a camp fire while I had my windows open yesterday and I didn't get them closed fast enough hence, today I have had a very bad day, I have my oxygen cranked all of the way up to 5 liters and my sats are still at 89-90 but the worse part of it all is that I feel like I am suffocating or just feel like I am nut getting any air even though I am breathing just fine. I think that when my lung react like this it's got something to do with the inflammation to my lungs because of my HP and that causes more scaring and between the inflammation and the scarring I can no longer get oxygen to pass through the linning or walls of my lungs. Today has to be one of the worse days in a long time but I am afraid to go to the HOSPITAL because I have a fear of never coming back home like my best friend who died fron the same disease just a year ago as I held his han as he fought for his last breath. I have seen my dad and foster mom as well as my uncle as I held each of their hands and each time it was like when they got to a certian point that all they did to help them was to PUMP THEM FULL OF HIGH LEVELS OF MORPHINE as they said to comfort them but it was like they just ODED them to put them out of their pain hence they never ever even woke up again once that IV OF MORPHINE WENT IN. I guess thats why I am afraid to got to the hospital when I feel this bad. I have 3 little dogs who take care of me while my wife is working 2 jobs and the to little boy dogs lay in bed next to me and although they have never been trained as service dogs, first my older dog a COCKAPOO who has been with me for 8 years now can tell when I am haveing problems with my oxygen levels it's like he can smell it in my breath and he lays so he can feel me breathing without even crushing me and making it hard to breath and if I miss a breath I am woken by his wet nose on my nose as he checks out my breath to see how I am doing. There are nights where my little baby boy don't get any sleep at all because he lays awake with his nose near my face just monitoring my oxygen levels. Well after a few years of him doing this he has benn getting kind of burnt out and sleeps all day so about a year and a half ago we found another COCKAPOO a poodle and cocker mixed. Well after a while the younger dog started to check out what the older male was doing and I don't know if dogs can talk to each other but the older dog got the puppy to help out with watching me . You knoe that they say that 2 male dogs wouldn't get along or give up there space but these 2 dogs switch off watching over me it is so weard but they never fight over anything and while one of them dose the job of laying by my to make sure I am breathing the other dog snuggles up with the dog doing the watching that night and the next night they switch off and the older boy snuggles up to the little boy while the little guy keeps a close watch over me. Well back to my info on HYPERSENSITIVITY PNEUMONITIS my doctor IS DR,JORDAN FINK at childrens hospital clinic in the ASTHMA ALERGY CENTER at the FROEDTERT MEDICAL CENTER IN WISCONSIN. DR. FINK IS THE PERSON WHO HAS WRITTEN BOOKS AND PAPERS ON HP AND HE IS ALSO CALLED ALL OVER THE WORLD TO HELP OUT WITH HP OUT BREAKS LIKE IN FACTORIES THE HAVE BAD COOLENT OR OILS IN THER MACHINEING CENTERS. I have had HR CT SCANS BLOOD TESTS AND A LUNG BIOP. The best tool so far has been the HR CT SCAN TO TRACK THE PROGRESSION OF MY HP AS WELL AS MY PULMONARY FIBROSIS. I have done all of the breating test but because of the uncontrolable coughing that comes on with the breathing tests because when I give a hard breath in the test I cough until my eyes are about to explode and once I even got a belly button herna from coughing but the tests do show air trapping in my lungs where thet find dead spots in my lungs so the breathing tests are of very little use for me because of all of the coughing. I hope that all of you are ok and doing as well as possable for your illness. I plan to GOD WILLING try to do the HOT ROD MAGAZINE POWER TOUR OF 2010 IF MY CAR IS READY AND GOD GIVE MY A LITTLE MORE TIME ON THIS EARTH AND MY REASON FOR DOING THE TOUR IS TO BRING SOME ATTION TO PULMONARY FIBROSIS AND HOW THIS DISEASE TAKE AS MANEY PEOPLE PER YEAR AS BREAST CANCER AND 8 OUT OF 10 PEOPLE HAVE NEVER HEARD OF PULMONARY FIBROSIS. I know that the trip my kill me because of all of the car exhahust but I have always wanted to see the UNITED STATES seeing that I have only been to ILLINOIS FROM WISCON TO PICK MY DAD UP WHEN HE CAME HOME FOR THE FIRST TIME IN 27 YEARS TO DIE FROM LUNG CANCER SO I HAVEN'T REALLY GOTTEN TO SEE ANY OF THIS COUNTRY AND I WISH TO DO SO BEFORE I DIE. I would love to go to California to see the great people like CHIP FOOSE, AND JAY LENO WHO HAVE TO BE SOME OF THE GREATEST CAR GUYS EVER AND I WOULD LIKE TO SEE A PLACE CALLED RED BARN AUTOMOTIVE WHO HAS OFFERED TO HELP ME GET MY CAR RUNNING AGAIN AFTER 29 YEARS. You can check out more about me and my car and all of you that are car crazy but can't go to car shows because of your illness please check out (hubgarage and my page at hubgaragebruce351c) it is a gret place to get away in a way. A place where every body is into cars and enjoys life, don't get me wrong because this is a great web site but there are times when all of us need to forget or try to forget or get away from thinking about what lays a head for each and every one of us with these bummer of a diseases and at HUBGARAGE you don't even have to leave your home to check out the car world the site was setup and is run by CHRIS JACOBS from the TV SHOW OVERHAULIN and he has been great to me everytime that I need a car buddy to e-mail even if he is in CALIFORNIA AND ME IN WISCONSIN we can still talk car talk just to get away. To all of you please forgive my spelling and grammer that is why I don't post often but tonight I feel like my time may be runnig near and I wanted to share a little with all of you before it;s to late and I can no longer do so. thanks and God Bless Bruce Theresa WI.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2009 Report Share Posted October 7, 2009 bruce don't worry about the spelling and grammar you spoke from the heart and that's what counts Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund.org--- Subject: My HYPRESENSITIVITY PNEUMONITISTo: Breathe-Support Date: Monday, September 21, 2009, 1:33 AM I would like to thank every body for this site. I check out all of the e-mails or posts from this group and a fews days ago I e-mailed a member about my HYPERSENSITIVITY PNEUMONITIS (HP) from working with metal working oils. I have been sick since 2003 and on oxygen since 2005 and I have to avoid almot every thing that I use to enjoy in life because of this disease like,going to the drag races,county fair because of the tractors exhause, and even working on my 1972 GRAN TORINO that had been sitting on hold until my youngest son turned 18 and my child support was over to work on my car because I need to take care of my kids even though I was devorsed my kids always came first. On the day my son turned 18 I was told of my lung disease so my dream of restoring my Torino was put on hold again until 2008 when I found a guy who is going to a "OVERHAULIN" on my Torino Wisconsin style and thats where anybody that would like to help out can do so and so fare Jim the owner of the shop has gone way out of his way to help with my 29 year old dream and with my funeral money the car is off to a great start but my money and time to finish my car may be running out. My last 2 or 3 HR CT SCANS show that each time my lung scaring has gotten worse even though I try my best to stay away from thing that make me sick but as you all may know that HP is an AUTIMMUNE DISEASE and with me on Prednasone my immunesystem is kind of wacked anyway. Tonight I have been haveing problems because some body in the aera must have started a camp fire while I had my windows open yesterday and I didn't get them closed fast enough hence, today I have had a very bad day, I have my oxygen cranked all of the way up to 5 liters and my sats are still at 89-90 but the worse part of it all is that I feel like I am suffocating or just feel like I am nut getting any air even though I am breathing just fine. I think that when my lung react like this it's got something to do with the inflammation to my lungs because of my HP and that causes more scaring and between the inflammation and the scarring I can no longer get oxygen to pass through the linning or walls of my lungs. Today has to be one of the worse days in a long time but I am afraid to go to the HOSPITAL because I have a fear of never coming back home like my best friend who died fron the same disease just a year ago as I held his han as he fought for his last breath. I have seen my dad and foster mom as well as my uncle as I held each of their hands and each time it was like when they got to a certian point that all they did to help them was to PUMP THEM FULL OF HIGH LEVELS OF MORPHINE as they said to comfort them but it was like they just ODED them to put them out of their pain hence they never ever even woke up again once that IV OF MORPHINE WENT IN. I guess thats why I am afraid to got to the hospital when I feel this bad. I have 3 little dogs who take care of me while my wife is working 2 jobs and the to little boy dogs lay in bed next to me and although they have never been trained as service dogs, first my older dog a COCKAPOO who has been with me for 8 years now can tell when I am haveing problems with my oxygen levels it's like he can smell it in my breath and he lays so he can feel me breathing without even crushing me and making it hard to breath and if I miss a breath I am woken by his wet nose on my nose as he checks out my breath to see how I am doing. There are nights where my little baby boy don't get any sleep at all because he lays awake with his nose near my face just monitoring my oxygen levels. Well after a few years of him doing this he has benn getting kind of burnt out and sleeps all day so about a year and a half ago we found another COCKAPOO a poodle and cocker mixed. Well after a while the younger dog started to check out what the older male was doing and I don't know if dogs can talk to each other but the older dog got the puppy to help out with watching me . You knoe that they say that 2 male dogs wouldn't get along or give up there space but these 2 dogs switch off watching over me it is so weard but they never fight over anything and while one of them dose the job of laying by my to make sure I am breathing the other dog snuggles up with the dog doing the watching that night and the next night they switch off and the older boy snuggles up to the little boy while the little guy keeps a close watch over me. Well back to my info on HYPERSENSITIVITY PNEUMONITIS my doctor IS DR,JORDAN FINK at childrens hospital clinic in the ASTHMA ALERGY CENTER at the FROEDTERT MEDICAL CENTER IN WISCONSIN. DR. FINK IS THE PERSON WHO HAS WRITTEN BOOKS AND PAPERS ON HP AND HE IS ALSO CALLED ALL OVER THE WORLD TO HELP OUT WITH HP OUT BREAKS LIKE IN FACTORIES THE HAVE BAD COOLENT OR OILS IN THER MACHINEING CENTERS. I have had HR CT SCANS BLOOD TESTS AND A LUNG BIOP. The best tool so far has been the HR CT SCAN TO TRACK THE PROGRESSION OF MY HP AS WELL AS MY PULMONARY FIBROSIS. I have done all of the breating test but because of the uncontrolable coughing that comes on with the breathing tests because when I give a hard breath in the test I cough until my eyes are about to explode and once I even got a belly button herna from coughing but the tests do show air trapping in my lungs where thet find dead spots in my lungs so the breathing tests are of very little use for me because of all of the coughing. I hope that all of you are ok and doing as well as possable for your illness. I plan to GOD WILLING try to do the HOT ROD MAGAZINE POWER TOUR OF 2010 IF MY CAR IS READY AND GOD GIVE MY A LITTLE MORE TIME ON THIS EARTH AND MY REASON FOR DOING THE TOUR IS TO BRING SOME ATTION TO PULMONARY FIBROSIS AND HOW THIS DISEASE TAKE AS MANEY PEOPLE PER YEAR AS BREAST CANCER AND 8 OUT OF 10 PEOPLE HAVE NEVER HEARD OF PULMONARY FIBROSIS. I know that the trip my kill me because of all of the car exhahust but I have always wanted to see the UNITED STATES seeing that I have only been to ILLINOIS FROM WISCON TO PICK MY DAD UP WHEN HE CAME HOME FOR THE FIRST TIME IN 27 YEARS TO DIE FROM LUNG CANCER SO I HAVEN'T REALLY GOTTEN TO SEE ANY OF THIS COUNTRY AND I WISH TO DO SO BEFORE I DIE. I would love to go to California to see the great people like CHIP FOOSE, AND JAY LENO WHO HAVE TO BE SOME OF THE GREATEST CAR GUYS EVER AND I WOULD LIKE TO SEE A PLACE CALLED RED BARN AUTOMOTIVE WHO HAS OFFERED TO HELP ME GET MY CAR RUNNING AGAIN AFTER 29 YEARS. You can check out more about me and my car and all of you that are car crazy but can't go to car shows because of your illness please check out (hubgarage and my page at hubgaragebruce351c) it is a gret place to get away in a way. A place where every body is into cars and enjoys life, don't get me wrong because this is a great web site but there are times when all of us need to forget or try to forget or get away from thinking about what lays a head for each and every one of us with these bummer of a diseases and at HUBGARAGE you don't even have to leave your home to check out the car world the site was setup and is run by CHRIS JACOBS from the TV SHOW OVERHAULIN and he has been great to me everytime that I need a car buddy to e-mail even if he is in CALIFORNIA AND ME IN WISCONSIN we can still talk car talk just to get away. To all of you please forgive my spelling and grammer that is why I don't post often but tonight I feel like my time may be runnig near and I wanted to share a little with all of you before it;s to late and I can no longer do so. thanks and God Bless Bruce Theresa WI. Quote Link to comment Share on other sites More sharing options...
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