Re: Height Prediction Question

[Guest guest]

Have you gotten a copy of the girls' RSS growth chart from MAGIC?

This growth chart (height only) was created by the Wollmann et al

group that did the largest study to date on RSS kids (N=386). These

were untreated RSS kids, so the height numbers are very stable.

These height numbers would clearly take into effect (and average out

for variances) the rapid progression of bone age for these kids. I

forget when I originally did , but I think it was about 1-2

inch differences in the final adult height based on the RSS chart

versus the one from CDC? Jenn

>

> Hi. I've read a lot about advancing bone age and I am curious to

how

> this plays out in our kids height predictions. Autumn is

following

> her height curve consistantly (her weight comes and goes though)

and

> I can follow it up to 18 yrs of age to predict her future height

as

> of now, but the question is if her bone age advances does it lower

> the height due to less growth? She is 14 mos and has had one bone

> age done by her geneticist to see if delayed, her endo said she is

> too young for it to be accurate yet and will do another in 1-2 yrs

to

> check. Is this something that needs to be done every year to keep

> track? Unfortunatly, I will not get to see Dr. H for awhile time

> although I would really like to, so I am trying to be as informed

as

> possible because as much as my docs know, they don't know as much

as

> they need to about RSS/SGA.

>

> One question about seeing Dr. H, how do we get insurance to cover

it

> when out of state? I am in Ohio. I would like to look into this

for

> maybe this fall or winter.

>

> Thanks

>

>

> mom to Autumn RSS 14 mos 16 lbs 27 inches miralax, periactin

> baby girl due in July

> Ocean 2 1/2 35 3/4 inches 29 1/2 lbs miralax funny little guy

> Skye 6 1/2 43 inches 35 lbs ocd, sid, anxiety disorder, being

> evaluated for autistic spectrum disorder, undergoing tests for

size

> and weight, hasn't gained in 7 mos, enlarged hard lymph node in

> uncommon place (according to doc) on bottom front neck and is

being

> monitiored. AHHH! Good thing that can't be heard.