Re: Update/ Answering do people get 'cured'with SCD?

April 5, 2010

Hi Terry,

So good to hear from you and congratulations on your progress. Thank you for

keeping us all informed and hopeful for good things to come.

Thanks also for your input on medication questions and all the answers to

questions on this board about teeth and toothpaste.

Please check in from time to time, and again, glad to hear you are doing well.

PJ

>

> Hi My SCD Friends:

>

> Since it is my birthday today, I thought it fitting to post an update on my

condition.

> I have not posted for a while, 'though I read the list digest daily.

>

> For those of you new to the list who don't know me, I was diagnosed in July of

'08 with proctosigmoiditis, a form of UC limited to those anatomical areas. I

was diagnosed only a month or so after I started to have symptoms that consisted

of bleeding, progressing to gas and diarrhea. Luckily, I immediately found SCD

and I started on Lialda, a form of mesalamine in extended release form that

allows once a day dosing. I threw myself into SCD wholeheartedly and was very

vigilant with it ( with some mistakes, of course).

>

> I also was taking Tamoxifen, an anti-estrogen, since I had had abnormal

mammograms with some Atypical Ductal hyperplasia ( excess abnormal cells) on

biopsy found in February of 2007. Currently, my OB-GYN has switched me to

Evista, also an anti-estrogen, now that I am officially in menopause. It

supposedly has less side effects than Tamoxifen. My last mammogram in February

was NEGATIVE.( whopee!)

>

> After 3 months on SCD and Lialda, I became totally symptom free. I

experimented with many SCD legal advanced foods. At the one year mark from

diagnosis, I was taking my Lialda perhaps once or twice a week when I felt I

needed it. I occasionally had some loose stool, but not that I was concerned

about. At this time I saw my GI who was amazed that I wasn't taking my meds, and

passed off this improvement to the fact that he said there is a small percentage

of patients who get better on their own. I asked him for a script for LDN and

brought him the U of PA study and he eventually refused.

>

> I obtained a prescription for LDN finally and started it September of '09. I

totally discontinued my Lialda within the month and have had consistent stool

since then. Recently I have been feeling so well that I actually forget to take

my LDN and take it maybe every 3 days if I remember. I have been adding back non

SCD foods into my diet that I have missed, like garbanzo beans and sweet

potatoes but I do not have them every day. I still continue my daily yogurt (

'cause I love it!) and I do follow SCD. However, I dine out now without being so

paranoid and visit friends and don't bring my own food. I am doing fine. I

consider myself in remission and healed.

>

> I did not eat the so- called SAD prior to my dx. I do not intend to start now.

I will continue to add back in non SCD foods that I enjoyed before and I will

experiment with non grain " grains " such as quinoa, which is actually a high

protein seed used by the ancients. I am scheduled for a colonoscopy next year. I

may wait another year, but I am curious to see what it would reveal.

>

> I don't agree with my GI that I got better on my own. I totally credit SCD for

my healing and progress and I was lucky to find this group several months after

from whom I learned so much. I share my SCD experience with anyone who will

listen and have recommended SCD to many of my patients in my dental practice who

have digestion issues.

>

> I hope that new people who are struggling will read this and be encouraged and

I hope that all the 'old' people with whom I have corresponded will know how

much I appreciated their support and cherished their friendship.

>

> Love and luck to all.

> Yours in health,

>

> Terry Rumas, D.M.D

> Proctosigmoiditis 6/08

> SCD 7/08

> LDN 3 times per week

> Evista

>

April 5, 2010

Terry,I'm a newcomer (found out 2 days before '09 Christmas--merry christmas to me) and I immediately found this group and scd. I have a gazillion questions and need to find time to ask. Thanks for sending your update. I know there are members who are frustrated and some not well off. I don't know where I stand yet. I kind of found out by luck. I was loosing my insurance and had one instance of blood (but a lifetime of C). I've been reading the posts on LDN but I don't know anything about it. I'm trying. Is this something everyone should take?Be well,To: BTVC-SCD Sent: Mon, April 5, 2010 7:52:43 PMSubject: Update/ Answering do people get 'cured'with SCD?

Hi My SCD Friends:

Since it is my birthday today, I thought it fitting to post an update on my condition.

I have not posted for a while, 'though I read the list digest daily.

For those of you new to the list who don't know me, I was diagnosed in July of '08 with proctosigmoiditis, a form of UC limited to those anatomical areas. I was diagnosed only a month or so after I started to have symptoms that consisted of bleeding, progressing to gas and diarrhea. Luckily, I immediately found SCD and I started on Lialda, a form of mesalamine in extended release form that allows once a day dosing. I threw myself into SCD wholeheartedly and was very vigilant with it ( with some mistakes, of course).

I also was taking Tamoxifen, an anti-estrogen, since I had had abnormal mammograms with some Atypical Ductal hyperplasia ( excess abnormal cells) on biopsy found in February of 2007. Currently, my OB-GYN has switched me to Evista, also an anti-estrogen, now that I am officially in menopause. It supposedly has less side effects than Tamoxifen. My last mammogram in February was NEGATIVE.( whopee!)

After 3 months on SCD and Lialda, I became totally symptom free. I experimented with many SCD legal advanced foods. At the one year mark from diagnosis, I was taking my Lialda perhaps once or twice a week when I felt I needed it. I occasionally had some loose stool, but not that I was concerned about. At this time I saw my GI who was amazed that I wasn't taking my meds, and passed off this improvement to the fact that he said there is a small percentage of patients who get better on their own. I asked him for a script for LDN and brought him the U of PA study and he eventually refused.

I obtained a prescription for LDN finally and started it September of '09. I totally discontinued my Lialda within the month and have had consistent stool since then. Recently I have been feeling so well that I actually forget to take my LDN and take it maybe every 3 days if I remember. I have been adding back non SCD foods into my diet that I have missed, like garbanzo beans and sweet potatoes but I do not have them every day. I still continue my daily yogurt ( 'cause I love it!) and I do follow SCD. However, I dine out now without being so paranoid and visit friends and don't bring my own food. I am doing fine. I consider myself in remission and healed.

I did not eat the so- called SAD prior to my dx. I do not intend to start now. I will continue to add back in non SCD foods that I enjoyed before and I will experiment with non grain "grains" such as quinoa, which is actually a high protein seed used by the ancients. I am scheduled for a colonoscopy next year. I may wait another year, but I am curious to see what it would reveal.

I don't agree with my GI that I got better on my own. I totally credit SCD for my healing and progress and I was lucky to find this group several months after from whom I learned so much. I share my SCD experience with anyone who will listen and have recommended SCD to many of my patients in my dental practice who have digestion issues.

I hope that new people who are struggling will read this and be encouraged and I hope that all the 'old' people with whom I have corresponded will know how much I appreciated their support and cherished their friendship.

Love and luck to all.

Yours in health,

Terry Rumas, D.M.D

Proctosigmoiditis 6/08

SCD 7/08

LDN 3 times per week

Evista

April 5, 2010

Happy Birthday, Terry - I was thinking about you lately, but realized you

must be doing much better and that's why we haven't heard from you.

Have a great rest of the evening.

Mara

> Hi My SCD Friends:

>

> Since it is my birthday today, I thought it fitting to post an update on my

condition.

> I have not posted for a while, 'though I read the list digest daily.

\

April 5, 2010

Hi

http://www.lowdosenaltrexone.org/

http://www.ldnaware.org/

http://www.ldndatabase.com/

http://health.groups.yahoo.com/group/LDN_Users/

Alot of people do take whether they are sick or not. The people who are healthy take it has a preventative to getting sick. The people who are sick take not to get any worse and sometimes they will get dramatically better.

Sky

To: BTVC-SCD Sent: Tue, 6 April, 2010 11:17:43 AMSubject: Re: Update/ Answering do people get 'cured'with SCD?

Terry,

I'm a newcomer (found out 2 days before '09 Christmas--merry christmas to me) and I immediately found this group and scd. I have a gazillion questions and need to find time to ask. Thanks for sending your update. I know there are members who are frustrated and some not well off. I don't know where I stand yet. I kind of found out by luck. I was loosing my insurance and had one instance of blood (but a lifetime of C).

I've been reading the posts on LDN but I don't know anything about it. I'm trying. Is this something everyone should take?

Be well,

From: terry.belle <TERUM359 (AT) msn (DOT) com>To: BTVC-SCD@yahoogroup s.comSent: Mon, April 5, 2010 7:52:43 PMSubject: Update/ Answering do people get 'cured'with SCD?

Hi My SCD Friends:Since it is my birthday today, I thought it fitting to post an update on my condition.I have not posted for a while, 'though I read the list digest daily.For those of you new to the list who don't know me, I was diagnosed in July of '08 with proctosigmoiditis, a form of UC limited to those anatomical areas. I was diagnosed only a month or so after I started to have symptoms that consisted of bleeding, progressing to gas and diarrhea. Luckily, I immediately found SCD and I started on Lialda, a form of mesalamine in extended release form that allows once a day dosing. I threw myself into SCD wholeheartedly and was very vigilant with it ( with some mistakes, of course).I also was taking Tamoxifen, an anti-estrogen, since I had had abnormal mammograms with some Atypical Ductal hyperplasia ( excess abnormal cells) on biopsy found in February of 2007. Currently, my OB-GYN has switched me to Evista, also an

anti-estrogen, now that I am officially in menopause. It supposedly has less side effects than Tamoxifen. My last mammogram in February was NEGATIVE.( whopee!)After 3 months on SCD and Lialda, I became totally symptom free. I experimented with many SCD legal advanced foods. At the one year mark from diagnosis, I was taking my Lialda perhaps once or twice a week when I felt I needed it. I occasionally had some loose stool, but not that I was concerned about. At this time I saw my GI who was amazed that I wasn't taking my meds, and passed off this improvement to the fact that he said there is a small percentage of patients who get better on their own. I asked him for a script for LDN and brought him the U of PA study and he eventually refused. I obtained a prescription for LDN finally and started it September of '09. I totally discontinued my Lialda within the month and have had consistent stool since then. Recently I have been feeling so

well that I actually forget to take my LDN and take it maybe every 3 days if I remember. I have been adding back non SCD foods into my diet that I have missed, like garbanzo beans and sweet potatoes but I do not have them every day. I still continue my daily yogurt ( 'cause I love it!) and I do follow SCD. However, I dine out now without being so paranoid and visit friends and don't bring my own food. I am doing fine. I consider myself in remission and healed.I did not eat the so- called SAD prior to my dx. I do not intend to start now. I will continue to add back in non SCD foods that I enjoyed before and I will experiment with non grain "grains" such as quinoa, which is actually a high protein seed used by the ancients. I am scheduled for a colonoscopy next year. I may wait another year, but I am curious to see what it would reveal.I don't agree with my GI that I got better on my own. I totally credit SCD for my healing and progress

and I was lucky to find this group several months after from whom I learned so much. I share my SCD experience with anyone who will listen and have recommended SCD to many of my patients in my dental practice who have digestion issues.I hope that new people who are struggling will read this and be encouraged and I hope that all the 'old' people with whom I have corresponded will know how much I appreciated their support and cherished their friendship.Love and luck to all.Yours in health,Terry Rumas, D.M.DProctosigmoiditis 6/08SCD 7/08LDN 3 times per weekEvista

April 5, 2010

At 07:52 PM 4/5/2010, you wrote:

Since it is my birthday today, I

thought it fitting to post an update on my condition.

I have not posted for a while, 'though I read the list digest

daily.

Terry,

Happy birthday!

And what a splendid report!

Congrats on the negative mammogram, too -- boy do I know the surge of

excitement as each test comes back negative!

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Uterine Cancer Surgery, April 2008

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

Babette the Foundling Beagle

April 5, 2010

I don't agree with my GI that I got better on my own. I totally credit SCD for my healing and progress and I was lucky to find this group several months after from whom I learned so much. I share my SCD experience with anyone who will listen and have recommended SCD to many of my patients in my dental practice who have digestion issues.I hope that new people who are struggling will read this and be encouraged and I hope that all the 'old' people with whom I have corresponded will know how much I appreciated their support and cherished their friendship.Terry, thanks so much for sharing your story! I was just feeling a little discouraged, as I've been trying to wean off of prednisone and had to go back up 10 mg today due to D. Your success story came at just the right time for me. Congratulations on your health!! Peace =)Alyssa 16 yo UC April 2008, dx Sept 2008SCD June 2009 (restarted)Azathioprine 50 mg 1x per dayPrednisone 35 mg 1x per day

April 6, 2010

Heya Terry!

Isn't this diet amazing?!?!?

I love it that I don't have to be so paranoid about eating out and hanging with

friends either!

I have been going to dinner parties! My friends are aware of my situation and

ask me things I stay away from!!

How cool that you are doing so well and that all of your hard work has paid off.

I love that and loved reading about the neg mamo.

Stay in touch and email me any time!

Hugs,

Jodi

Doing the bday dance for you!