Guest guest Posted October 19, 2009 Report Share Posted October 19, 2009 Cees... I (nor the board) knew when he died. He just all of a sudden stopped responding to my posts. For a long while I thought he may be sicker and then began to "wonder". There was no way to check up on him then. The board had no ph. number and neither did I. I'm surprised his wife did not notify us... I'll just bet his guardian angel greeted him! MamaSher; 71, IPF 3-2006, OR.Don't fret about tomorrow, God is already there! Steve> >>> >>> >>First Sher, forgive me for coming to the back door like this......perhaps you'll understand in a moment. What I am asking for are all details of Steve's death that you may have. I hope you can trust me.......that I'm not being ghoulish here........ .I have asked, and not received an answer from docs, etc, "what does it look like to die from IPF"? I know it is not what I'd thought originally (awful), but peaceful and serene for the most part. This latest illness of mine has served to remind me.........there is definitely a "limit". I lost alot of function in the last 9 days. My doc ( whom I trust hugely) told me on Fri that "I would not be surprised to hear that you'd died in 30 days, nor would I be surprised to see you alive in a year". I'm not obsessing on it Sher, it's just that it sounds like one day Steve is traveling, the next day he's dead. I'd appreciate whatever you may be able to share. Please do not despair, I'm okay, I'm settled.....> ........jim> >> > >>ps.....wish I knew a good joke to tell you....... > >>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2009 Report Share Posted October 20, 2009 Joyce, are you still going to Emory for rehab for PF? <FONT face="comic sans ms" color=#40007f size=3> Soulliere & nbsp; <IMG src="http://us.i1.yimg.com/us.yimg.com/i/mesg/tsmileys2/50.gif"></FONT> To: Breathe-Support Sent: Tue, October 20, 2009 8:37:29 AMSubject: Re: correspondence between AK (Jim Wallman) and I. thanks for the tidbit about drinking something warm at night -- i will try to remember to do it sometimes in the winter, i heat up the milk in the microwave before going to bed -- i have to eat something with one of my bedtime meds Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund. org From: Sher Bauman <bofus (AT) wbcable (DOT) net>Subject: Re: SteveTo: james_wallman@ yahoo.comDate: Monday, February 9, 2009, 1:43 PM Jim, First of all thank you for taking me into your confidence.. .expressing such personal concerns touches me. I'm waiting for details about Steve. When his brother informed me of Steve's death it was only about 3 lines. In fact it was so short that I thought it was from Steve telling me his brother had died....mail came from Steve's laptop so I just presumed it was from Steve of course. I did a double-take to realize it was from Steve's brother and Steve is the one who died. What a shock to me and Rich! If and when I hear more I will share with you what I learn. I don't even know for sure that PF is what took his life... his wife died about 6 mo or so prior and perhaps grief overtook him. I went online and tried to find his obit but was not successful. I'm just not that computer savvy in 'searching'. .. Strange, isn't it that your drs do not give you answers...perhaps they don't know. From what I know, death can be easy, such as if you are with hospice and meds and help w/and through everything. Morphine seems to be a wonder drug during end times. Perhaps your dr will Rx it for you. I'm so sorry Jim that you continue to progress downward toward transition. Are you afraid? Are you in pain? Of course I 'despair' to a point...I care about you and I know you are troubled. Is hospice available to you considering where you live? I'm glad you could not muster a joke today.... I'm in my sad feelings right now and move through them slowly. Write anytime..... ..Sher Don't fret about tomorrow, God is already there! Steve First Sher, forgive me for coming to the back door like this......perhaps you'll understand in a moment. What I am asking for are all details of Steve's death that you may have. I hope you can trust me.......that I'm not being ghoulish here........ .I have asked, and not received an answer from docs, etc, "what does it look like to die from IPF"? I know it is not what I'd thought originally (awful), but peaceful and serene for the most part. This latest illness of mine has served to remind me.........there is definitely a "limit". I lost alot of function in the last 9 days. My doc ( whom I trust hugely) told me on Fri that "I would not be surprised to hear that you'd died in 30 days, nor would I be surprised to see you alive in a year". I'm not obsessing on it Sher, it's just that it sounds like one day Steve is traveling, the next day he's dead. I'd appreciate whatever you may be able to share. Please do not despair, I'm okay, I'm settled..... ........jim ps.....wish I knew a good joke to tell you....... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2009 Report Share Posted October 20, 2009 Hi , I live south of Atlanta, in Fayetteville near Peachtree City. I see my doctor at Duke but I found that Piedmont Hospital has a pulmonary rehab program. I think you said you are in Marietta - Piedmont in Atlanta probably not too far. Piedmont has a facility in Fayetteville and I am going to start at that one in December. Joe and Joanie go to Emory for pulmo doctor, not sure if they do rehab there. I think there has been a recent change in staff at Emory, but they could tell you better. I think Jane also sees doctors there, but not sure about Rehab. Hope this helps you - Dorothy Reinecke DX 7/05 - UIP To: Breathe-Support Sent: Tuesday, October 20, 2009 8:08:18 PMSubject: Re: correspondence between AK (Jim Wallman) and I. Sorry Joyce, had you confused with someone else <FONT face="comic sans ms" color=#40007f size=3> Soulliere & nbsp; <IMG src="http:// us.i1.yimg.. com/us.yimg. com/i/mesg/ tsmileys2/ 50.gif"></FONT> From: Joyce T Rosenberg <pinkrockybeach@ yahoo.com>To: Breathe-Support@ yahoogroups. comSent: Tue, October 20, 2009 5:24:43 PMSubject: Re: correspondence between AK (Jim Wallman) and I. i go to "rehab" at a hospital in Pennsylvania Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund. org From: Sher Bauman <bofus (AT) wbcable (DOT) net>Subject: Re: SteveTo: james_wallman@ yahoo.comDate: Monday, February 9, 2009, 1:43 PM Jim, First of all thank you for taking me into your confidence.. .expressing such personal concerns touches me. I'm waiting for details about Steve. When his brother informed me of Steve's death it was only about 3 lines. In fact it was so short that I thought it was from Steve telling me his brother had died....mail came from Steve's laptop so I just presumed it was from Steve of course. I did a double-take to realize it was from Steve's brother and Steve is the one who died. What a shock to me and Rich! If and when I hear more I will share with you what I learn. I don't even know for sure that PF is what took his life... his wife died about 6 mo or so prior and perhaps grief overtook him. I went online and tried to find his obit but was not successful. I'm just not that computer savvy in 'searching'. .. Strange, isn't it that your drs do not give you answers...perhaps they don't know. From what I know, death can be easy, such as if you are with hospice and meds and help w/and through everything. Morphine seems to be a wonder drug during end times. Perhaps your dr will Rx it for you. I'm so sorry Jim that you continue to progress downward toward transition. Are you afraid? Are you in pain? Of course I 'despair' to a point...I care about you and I know you are troubled. Is hospice available to you considering where you live? I'm glad you could not muster a joke today.... I'm in my sad feelings right now and move through them slowly. Write anytime..... ..Sher Don't fret about tomorrow, God is already there! Steve First Sher, forgive me for coming to the back door like this......perhaps you'll understand in a moment. What I am asking for are all details of Steve's death that you may have. I hope you can trust me.......that I'm not being ghoulish here........ .I have asked, and not received an answer from docs, etc, "what does it look like to die from IPF"? I know it is not what I'd thought originally (awful), but peaceful and serene for the most part. This latest illness of mine has served to remind me.........there is definitely a "limit". I lost alot of function in the last 9 days. My doc ( whom I trust hugely) told me on Fri that "I would not be surprised to hear that you'd died in 30 days, nor would I be surprised to see you alive in a year". I'm not obsessing on it Sher, it's just that it sounds like one day Steve is traveling, the next day he's dead. I'd appreciate whatever you may be able to share. Please do not despair, I'm okay, I'm settled..... ........jim ps.....wish I knew a good joke to tell you....... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2009 Report Share Posted October 21, 2009 , I see Dr. Kershaw at Emory. Joe also sees Dr. Kershaw. As for rehab, I go to a class here in Dalton at the Hamilton-Bradley Center(part of the hospital here) that is for patients who have finished rehab. I never went to the rehab only the class, where I am monitored before, during and after class. Dr. Kershaw told me that the class that I attend is good for me. Toodles! Jane UIP/IPF 12/1998 Dalton, Georgia aka pianolady_musicgirl> >>>> >>>From: Sher Bauman bofus (AT) wbcable (DOT) net>> >>>>Subject: Re: Steve> >>>>To: james_wallman@ yahoo.com> >>>>Date: Monday, February 9, 2009, 1:43 PM> >>>>> >>>>> >>>>Jim,> >>>>First of all thank you for taking me into your confidence.. .expressing such personal concerns touches me.> >>>>I'm waiting for details about Steve. When his brother informed me of Steve's death it was only about 3 lines. In fact it was so short that I thought it was from Steve telling me his brother had died....mail came from Steve's laptop so I just presumed it was from Steve of course.> >>>>I did a double-take to realize it was from Steve's brother and Steve is the one who died. What a shock to me and Rich!> >>>>If and when I hear more I will share with you what I learn.> >>>>I don't even know for sure that PF is what took his life... his wife died about 6 mo or so prior and perhaps grief overtook him.> >>>>I went online and tried to find his obit but was not successful. I'm just not that computer savvy in 'searching'. ..> >>>>Strange, isn't it that your drs do not give you answers...perhaps they don't know.> >>>>From what I know, death can be easy, such as if you are with hospice and meds and help w/and through everything. Morphine seems to be a wonder drug during end times. Perhaps your dr will Rx it for you.> >>>>I'm so sorry Jim that you continue to progress downward toward transition. Are you afraid? Are you in pain?> >>>>Of course I 'despair' to a point...I care about you and I know you are troubled.> >>>>Is hospice available to you considering where you live?> >>>>I'm glad you could not muster a joke today.... I'm in my sad feelings right now and move through them slowly.> >>>>Write anytime..... ..Sher> >>>> > >>>> Don't fret about tomorrow, God is already there!> >>>>> >>>> Steve> >>>>>> >>>>>> >>>>>First Sher, forgive me for coming to the back door like this......perhaps you'll understand in a moment. What I am asking for are all details of Steve's death that you may have. I hope you can trust me.......that I'm not being ghoulish here........ .I have asked, and not received an answer from docs, etc, "what does it look like to die from IPF"? I know it is not what I'd thought originally (awful), but peaceful and serene for the most part. This latest illness of mine has served to remind me.........there is definitely a "limit". I lost alot of function in the last 9 days. My doc ( whom I trust hugely) told me on Fri that "I would not be surprised to hear that you'd died in 30 days, nor would I be surprised to see you alive in a year". I'm not obsessing on it Sher, it's just that it sounds like one day Steve is traveling, the next day he's dead. I'd appreciate whatever you may be able to share. Please do not despair, I'm okay, I'm settled.....> ........jim> >>>>> > >>>>>ps.....wish I knew a good joke to tell you........ > >>>>> > >>>> >>>> >>> > >> > >> >> Quote Link to comment Share on other sites More sharing options...
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