Guest guest Posted November 4, 2001 Report Share Posted November 4, 2001 * Kirstin, Hi- my son LJ has been GFCF successfully for 18 months now. He has always had normal bowels (stunk somewhat) but fine otherwise, and his diet was great, ate every food - except wouldn't try veggies. He was on the high functioning side of autism, had severe exzema and no bizarre behaviors. This diet still opened up a whole new world for him. I had him allergy tested and also removed everything he had even a slightest allergy to. He will be 7 years old on November 10. He is an excellent reader now, does simple math and basically is a great kid. I will never put gluten and casein back in his diet - is how I feel now. Who knows maybe 10 or 15 years from now, but right now why . You have nothing to lose trying the diet. I do not use any enzymes or meds. I do eleiminate ALL artificial colors, flavors and preservatives though. in New York (LJs mom) * On Sun, 4 Nov 2001 10:32:15 -0600 " Kirstin er " writes: > He is most definitely not severe, but also most definitely not > " right> I had some questions for ya'll since he doesn't really fit they > " typical " child that I read about in Karyn Seroussi's book. , but his stools are normal, and > he does not self-limit his diet at ALL> > From what I understood (but I may be wrong...that's why I'm asking > :-) ) of Mrs. Seroussi's book, the typical child that this diet > would help has bowel problems as well. Or can they have normal > bowels and still tend to be sensitive to gluten and casein? > > Or should I possibly look in other directions, such as supplementing > with certain enzymes, vitamins, EFAs, etc.? > > Love, > Kirstin <>< ________________________________________________________________ GET INTERNET ACCESS FROM JUNO! Juno offers FREE or PREMIUM Internet access for less! Join Juno today! For your FREE software, visit: http://dl.www.juno.com/get/web/. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2001 Report Share Posted November 4, 2001 Hi , Thanks for your input. Caleb's bowels now are not even stinky (they were a tad when he was on citrus) - they are just like his older brother's. :-) He has absolutely zero symptoms (excema, nasal congestion, etc.) of any sort of intolerance, EXCEPT for the PDD issues. His troubles are delayed receptive and expressive language (I think he is about 10 months behind, and *I* think his expressive is better than his receptive...he doesn't understand a whole lot), a FEW minor SID issues (nothing major), and he has problems playing with toys correctly. Oh, and he's somewhat of a klutz LOL! He has progressed AMAZINGLY the last 6 months with no therapy or diet modification, and so that's why I'm kind of iffy about the diet (still waiting on therapy....<sigh>) working for him. (There is no doubt in my mind that it definitely WORKS...just can't figure out if it's for him, if that makes sense.) I'd love to hear others' thoughts as well. Love, Kirstin <>< Wife to Bobby (7 years) Momma to Grant (4.5), Caleb (3), Libby (1.25), and " Lil' Bit " (due 4/26/02) I sell books kids love!!! I'm an Usborne Books at Home Independent Consultant! http://usbornekirstin.tripod.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2001 Report Share Posted November 4, 2001 Kids with normal bowels have been helped too. I would give it a trial-it cant hurt and might help.f Intro and a question > Hi, my name is Kirstin. My husband Bobby and I have 3 children: Grant is 4.5, Caleb is 3, and Libby is 16 months. We are expecting another child in late April. > > We are suspecting that Caleb falls somewhere on the PDD spectrum. He is most definitely not severe, but also most definitely not " right. " We are waiting for an appointment to get some more evaluations done with him. I have been considering a GFCF diet, but I had some questions for ya'll since he doesn't really fit they " typical " child that I read about in Karyn Seroussi's book. > > He has delays and autistic behaviors, but his stools are normal, and he does not self-limit his diet at ALL. His stools USED to be on the squishy side. (Sorry to be so gross LOL!!!) They definitely were not loose, just soft. BUT I eliminated citrus from his diet (he drank diluted OJ for breakfast everyday), and his stools are now normal. > > From what I understood (but I may be wrong...that's why I'm asking :-) ) of Mrs. Seroussi's book, the typical child that this diet would help has bowel problems as well. Or can they have normal bowels and still tend to be sensitive to gluten and casein? > > Or should I possibly look in other directions, such as supplementing with certain enzymes, vitamins, EFAs, etc.? > > Love, > Kirstin <>< > > Wife to Bobby (7 years) > Momma to Grant (4.5), Caleb (3), Libby (1.25), and " Lil' Bit " (due 4/26/02) > > I sell books kids love!!! > I'm an Usborne Books at Home Independent Consultant! > http://usbornekirstin.tripod.com/ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2001 Report Share Posted November 4, 2001 Kids with normal bowels have been helped too. I would give it a trial-it cant hurt and might help.f Intro and a question > Hi, my name is Kirstin. My husband Bobby and I have 3 children: Grant is 4.5, Caleb is 3, and Libby is 16 months. We are expecting another child in late April. > > We are suspecting that Caleb falls somewhere on the PDD spectrum. He is most definitely not severe, but also most definitely not " right. " We are waiting for an appointment to get some more evaluations done with him. I have been considering a GFCF diet, but I had some questions for ya'll since he doesn't really fit they " typical " child that I read about in Karyn Seroussi's book. > > He has delays and autistic behaviors, but his stools are normal, and he does not self-limit his diet at ALL. His stools USED to be on the squishy side. (Sorry to be so gross LOL!!!) They definitely were not loose, just soft. BUT I eliminated citrus from his diet (he drank diluted OJ for breakfast everyday), and his stools are now normal. > > From what I understood (but I may be wrong...that's why I'm asking :-) ) of Mrs. Seroussi's book, the typical child that this diet would help has bowel problems as well. Or can they have normal bowels and still tend to be sensitive to gluten and casein? > > Or should I possibly look in other directions, such as supplementing with certain enzymes, vitamins, EFAs, etc.? > > Love, > Kirstin <>< > > Wife to Bobby (7 years) > Momma to Grant (4.5), Caleb (3), Libby (1.25), and " Lil' Bit " (due 4/26/02) > > I sell books kids love!!! > I'm an Usborne Books at Home Independent Consultant! > http://usbornekirstin.tripod.com/ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2001 Report Share Posted November 5, 2001 > He has delays and autistic behaviors, but his stools are normal, and he does not self-limit his diet at ALL. His stools USED to be on the squishy side. (Sorry to be so gross LOL!!!) They definitely were not loose, just soft. BUT I eliminated citrus from his diet (he drank diluted OJ for breakfast everyday), and his stools are now normal. > Two of my four children are delayed, one is autistic and one is PDD. They never had much digestive issue at all, and they did not self-limit their foods either [i learned later that is because they reacted to basically all foods], but diet and a few other things have basically made them NT, altho not yet age-appropriate. Here is their story. http://home.pacbell.net/cscomp/myson.htm The OJ is a high phenol food, here is more information on that http://home.pacbell.net/cscomp/phenol.htm > Or should I possibly look in other directions, such as supplementing with certain enzymes, vitamins, EFAs, etc.? My children are intolerant of basically ALL foods. I use enzymes to help them be able to eat ANY foods without a reaction. I use the enzymes from this url http://www.houstonni.com/ You can also look at the enzymes and other supplements from this url http://www.kirkmanlabs.com/ Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2001 Report Share Posted November 5, 2001 Hi , My son also did not fit the profile. Normal BM's, never on antibiotic, no GI problems, mildly PDD, varied diet, etc. I wasn't sure this diet would be for him but I had his peptides tested and he was extremely high in gluten and casein intolerance. I started the diet immediately and his behavior improved, his excema cleared up, his focus was better and some other gains. If nothing else he is very healthy and doesn't mind the diet. Good Luck to you... > Hi, my name is Kirstin. My husband Bobby and I have 3 children: Grant is 4.5, Caleb is 3, and Libby is 16 months. We are expecting another child in late April. > > We are suspecting that Caleb falls somewhere on the PDD spectrum. He is most definitely not severe, but also most definitely not " right. " We are waiting for an appointment to get some more evaluations done with him. I have been considering a GFCF diet, but I had some questions for ya'll since he doesn't really fit they " typical " child that I read about in Karyn Seroussi's book. > > He has delays and autistic behaviors, but his stools are normal, and he does not self-limit his diet at ALL. His stools USED to be on the squishy side. (Sorry to be so gross LOL!!!) They definitely were not loose, just soft. BUT I eliminated citrus from his diet (he drank diluted OJ for breakfast everyday), and his stools are now normal. > > From what I understood (but I may be wrong...that's why I'm asking :-) ) of Mrs. Seroussi's book, the typical child that this diet would help has bowel problems as well. Or can they have normal bowels and still tend to be sensitive to gluten and casein? > > Or should I possibly look in other directions, such as supplementing with certain enzymes, vitamins, EFAs, etc.? > > Love, > Kirstin <>< > > Wife to Bobby (7 years) > Momma to Grant (4.5), Caleb (3), Libby (1.25), and " Lil' Bit " (due 4/26/02) > > I sell books kids love!!! > I'm an Usborne Books at Home Independent Consultant! > http://usbornekirstin.tripod.com/ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2001 Report Share Posted November 5, 2001 Hi , My son also did not fit the profile. Normal BM's, never on antibiotic, no GI problems, mildly PDD, varied diet, etc. I wasn't sure this diet would be for him but I had his peptides tested and he was extremely high in gluten and casein intolerance. I started the diet immediately and his behavior improved, his excema cleared up, his focus was better and some other gains. If nothing else he is very healthy and doesn't mind the diet. Good Luck to you... > Hi, my name is Kirstin. My husband Bobby and I have 3 children: Grant is 4.5, Caleb is 3, and Libby is 16 months. We are expecting another child in late April. > > We are suspecting that Caleb falls somewhere on the PDD spectrum. He is most definitely not severe, but also most definitely not " right. " We are waiting for an appointment to get some more evaluations done with him. I have been considering a GFCF diet, but I had some questions for ya'll since he doesn't really fit they " typical " child that I read about in Karyn Seroussi's book. > > He has delays and autistic behaviors, but his stools are normal, and he does not self-limit his diet at ALL. His stools USED to be on the squishy side. (Sorry to be so gross LOL!!!) They definitely were not loose, just soft. BUT I eliminated citrus from his diet (he drank diluted OJ for breakfast everyday), and his stools are now normal. > > From what I understood (but I may be wrong...that's why I'm asking :-) ) of Mrs. Seroussi's book, the typical child that this diet would help has bowel problems as well. Or can they have normal bowels and still tend to be sensitive to gluten and casein? > > Or should I possibly look in other directions, such as supplementing with certain enzymes, vitamins, EFAs, etc.? > > Love, > Kirstin <>< > > Wife to Bobby (7 years) > Momma to Grant (4.5), Caleb (3), Libby (1.25), and " Lil' Bit " (due 4/26/02) > > I sell books kids love!!! > I'm an Usborne Books at Home Independent Consultant! > http://usbornekirstin.tripod.com/ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2001 Report Share Posted November 5, 2001 Dana, > Two of my four children are delayed, one is autistic and one is PDD. > They never had much digestive issue at all, and they did not > self-limit their foods either [i learned later that is because they > reacted to basically all foods], Oh ACK!!!!! That is most certainly what I didn't want to hear LOL!!!!! > The OJ is a high phenol food, here is more information on that > > http://home.pacbell.net/cscomp/phenol.htm Thanks - would I have seen any behavioral changes when I took away the OJ? I didn't notice any at all - just his poop was different (my daughter's too, but she has always been fine developmentally...if anything she is ahead of the game in many areas). I will check out your page - phenols are pretty much Greek to me LOL! , > My son also did not fit the profile. Normal BM's, never on > antibiotic, no GI problems, mildly PDD, varied diet, etc. I wasn't > sure this diet would be for him but I had his peptides tested and he > was extremely high in gluten and casein intolerance. Did your insurance cover this? If not, <gulp> how expensive is it? I'm not sure if mine would cover it or not, but it's worth a shot I guess! I also read on the GFCFdiet website how they suspect that high gluten and casein peptides can cause depression....which I have problems with. Wonder if maybe I should be tested too! (But we'll cross that bridge when we get to it....unless anyone has any other info. on GFCF and depression that is more definitive????) Love, Kirstin <>< Wife to Bobby (7 years) Momma to Grant (4.5), Caleb (3), Libby (1.25), and " Lil' Bit " (due 4/26/02) I sell books kids love!!! I'm an Usborne Books at Home Independent Consultant! http://usbornekirstin.tripod.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2001 Report Share Posted November 5, 2001 > Dana, > > > Two of my four children are delayed, one is autistic and one is PDD. > > They never had much digestive issue at all, and they did not > > self-limit their foods either [i learned later that is because they > > reacted to basically all foods], > > Oh ACK!!!!! That is most certainly what I didn't want to hear LOL!!!!! Here is their story, if you are interested, they are doing much better with enzymes and now chelation. There are now only a few foods they cannot eat. http://home.pacbell.net/cscomp/myson.htm > > > The OJ is a high phenol food, here is more information on that > > > > http://home.pacbell.net/cscomp/phenol.htm > > Thanks - would I have seen any behavioral changes when I took away the OJ? If he is also eating other phenol foods, then you might not see behavior changes. Because it affected his bm, then he probably does not tolerate oranges, in addition to the phenol issue. > Did your insurance cover this? If not, <gulp> how expensive is it? I'm not > sure if mine would cover it or not, but it's worth a shot I guess! I know you directed this question to , but you can check this lab and call for prices if you want. You can do these tests at any lab I think, so if your doctor gives you rx to a covered lab, you might get lucky with your insurance LOL, but this will give you a good idea. http://www.greatplainslaboratory.com/ I also > read on the GFCFdiet website how they suspect that high gluten and casein > peptides can cause depression....which I have problems with. Wonder if > maybe I should be tested too! (But we'll cross that bridge when we get to > it....unless anyone has any other info. on GFCF and depression that is more > definitive????) I am VERY bipolar with emphasis on depressive end, when I eat high phenols, which includes milk. So yes, you might consider reducing the phenols in your own diet also. Dana Quote Link to comment Share on other sites More sharing options...
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