GHT

[Guest guest]

After a recent first visit with our Endo we were told GHT wouldn't

be started until 4 year old, I was under the impressions that it

would be 2 years old, can anyone shed any light on this, is it

different in the UK to the US?

Brigitte

[Guest guest]

Dawna

We started ght late (Adam was 8) so I was not concerned with the weight to

height ratio. If you end up in Toronto, you'll more than likely see our Endo. I

am going down on Tuesday (a week today) for Adam's next check up. I'll ask him

some of your questions but he is a good doctor.

One thing you should know, the Canadian standards for GHT levels is alot lower

than the US standards (for instance, and I am just making these numbers up....if

we give 3 units in Canada for a 30 lbs child; the US would do 5 units). But just

to show you how awesome my endo is---Adam is not growing as quickly as he would

like, so we are giving 4.5 units. He is above what is " legally " allowed in

Canada but slightly below the US standards.

My gut would tell me for you to start and go for it. But then again, that's just

me!

Let me know what else you learn and I'll talk to my endo for you.

Deb

GHT

Well our endo called today to let us know that he had been doing some

research with regards to gh and RSS, he has tried to contact Dr.H and

has not had any luck and he doesn't see any reason to wait to start

Noah on GHT. We had told him when he had called with the testing

results that we wanted to wait until Noah gained some weight so that

he was 15% weight to height. Does anyone know if it is just in the

letter from Dr. H about the weight or is there an article that

specifically addresses the weight issue that I can fax or send him a

copy to help explain it. Our Ped wants us to go to Toronto where the

endos have dealt with RSS and get their opinions, but warned us that

they probably wouldn't look at the test results from London and would

want to do their own testing. Does the GH improve appetites too?

H ... I think that you and I are in about the same place as far as

our boys are concerned (except we haven't had any hospital stays yet,

touch wood) ... plateau for a long time with the weight etc. Our ped

mentioned to us about the possibility of a g tube if the periactin

doesn't help (and for some reason he didn't hold much faith in the

periactin or so it seemed to me). Like Jodi said though (I think

I've been saying that a bit) you are doing a great job and sometimes

we have to give it a little time.

We are doing pretty good with the Periactin so far. Only 4 days in

and here's hoping.

Dawna

Matt 13, 11, Kaitlyn 8, Noah 3 RSS, Periactin, 19 lbs 8.7 ounces

You know I just can't wrap my lips around the Canadian name for

Periatin ...

[Guest guest]

Dawna - yes it would seem we are in similar situations. Thanks for

your comments. I haven't been " on top " of my letter info as I

should - I need to get MAGIC to send me more docs myself. I'm sure

someone will be able to help you with that question. But, I do know

that GH does help with appetite as well. We were told about a year

ago that we were to do a tube or GH to help with Ian's appetite as

well - and chose neither at the time. Thus, our reason for being at

this point in time. I very much look forward to your posts and

appreciate chatting with you. Please keep us posted. I'm eager to

hear what you find out for Noah.

- H

Mom to 4 non/rss 41 lbs 42 1/2 " and Ian 2 1/2 RSS 21 lbs

32 "

>

> Well our endo called today to let us know that he had been doing

some

> research with regards to gh and RSS, he has tried to contact Dr.H

and

> has not had any luck and he doesn't see any reason to wait to

start

> Noah on GHT. We had told him when he had called with the testing

> results that we wanted to wait until Noah gained some weight so

that

> he was 15% weight to height. Does anyone know if it is just in

the

> letter from Dr. H about the weight or is there an article that

> specifically addresses the weight issue that I can fax or send him

a

> copy to help explain it. Our Ped wants us to go to Toronto where

the

> endos have dealt with RSS and get their opinions, but warned us

that

> they probably wouldn't look at the test results from London and

would

> want to do their own testing. Does the GH improve appetites too?

>

> H ... I think that you and I are in about the same place as far as

> our boys are concerned (except we haven't had any hospital stays

yet,

> touch wood) ... plateau for a long time with the weight etc. Our

ped

> mentioned to us about the possibility of a g tube if the periactin

> doesn't help (and for some reason he didn't hold much faith in the

> periactin or so it seemed to me). Like Jodi said though (I think

> I've been saying that a bit) you are doing a great job and

sometimes

> we have to give it a little time.

>

> We are doing pretty good with the Periactin so far. Only 4 days

in

> and here's hoping.

>

> Dawna

> Matt 13, 11, Kaitlyn 8, Noah 3 RSS, Periactin, 19 lbs 8.7

ounces

> You know I just can't wrap my lips around the Canadian name for

> Periatin ...

>

[Guest guest]

Deb,

Your endo has dealt with some RSS kids right I mean as opposed to

one ... would you ask him if he would be willing to consult with the

our London one ... I am not totally opposed to going to TO but would

rather stick it out with London. Maybe our ped would be happy if our

endo would even consult with someone.

Thanks so much.

Dawna

>

> Dawna

> We started ght late (Adam was 8) so I was not concerned with the

weight to height ratio. If you end up in Toronto, you'll more than

likely see our Endo. I am going down on Tuesday (a week today) for

Adam's next check up. I'll ask him some of your questions but he is a

good doctor.

> One thing you should know, the Canadian standards for GHT levels is

alot lower than the US standards (for instance, and I am just making

these numbers up....if we give 3 units in Canada for a 30 lbs child;

the US would do 5 units). But just to show you how awesome my endo is-

--Adam is not growing as quickly as he would like, so we are giving

4.5 units. He is above what is " legally " allowed in Canada but

slightly below the US standards.

> My gut would tell me for you to start and go for it. But then

again, that's just me!

> Let me know what else you learn and I'll talk to my endo for you.

>

> Deb

>

> GHT

>

>

> Well our endo called today to let us know that he had been doing

some

> research with regards to gh and RSS, he has tried to contact Dr.H

and

> has not had any luck and he doesn't see any reason to wait to

start

> Noah on GHT. We had told him when he had called with the testing

> results that we wanted to wait until Noah gained some weight so

that

> he was 15% weight to height. Does anyone know if it is just in

the

> letter from Dr. H about the weight or is there an article that

> specifically addresses the weight issue that I can fax or send

him a

> copy to help explain it. Our Ped wants us to go to Toronto where

the

> endos have dealt with RSS and get their opinions, but warned us

that

> they probably wouldn't look at the test results from London and

would

> want to do their own testing. Does the GH improve appetites too?

>

> H ... I think that you and I are in about the same place as far

as

> our boys are concerned (except we haven't had any hospital stays

yet,

> touch wood) ... plateau for a long time with the weight etc. Our

ped

> mentioned to us about the possibility of a g tube if the

periactin

> doesn't help (and for some reason he didn't hold much faith in

the

> periactin or so it seemed to me). Like Jodi said though (I think

> I've been saying that a bit) you are doing a great job and

sometimes

> we have to give it a little time.

>

> We are doing pretty good with the Periactin so far. Only 4 days

in

> and here's hoping.

>

> Dawna

> Matt 13, 11, Kaitlyn 8, Noah 3 RSS, Periactin, 19 lbs 8.7

ounces

> You know I just can't wrap my lips around the Canadian name for

> Periatin ...

>

>

>

>

>

>

>

>

[Guest guest]

Hi Dawna

I better start a list of questions LOL......I asked my endo one time " how many

RSS kids do you treat? " (since I know of NONE; haven't found one yet on this

list or via Magic; mind you our ped. --who is also an endo--treats one other GHD

patient that is a member of Magic)....anyway, when I asked him his response was

" about a half a dozen " . So it's more than Adam at least.

He is the head of endocrinology at Sick Kids as well, so I think that says

something. I will ask him on Tuesday if he is willing to consult with the London

endo. or prefers to be the one " in charge " (don't worry I will phrase it nicely

with no names!! LOL)

I'll let you know when I find out more.

Deb

GHT

>

>

> Well our endo called today to let us know that he had been doing

some

> research with regards to gh and RSS, he has tried to contact Dr.H

and

> has not had any luck and he doesn't see any reason to wait to

start

> Noah on GHT. We had told him when he had called with the testing

> results that we wanted to wait until Noah gained some weight so

that

> he was 15% weight to height. Does anyone know if it is just in

the

> letter from Dr. H about the weight or is there an article that

> specifically addresses the weight issue that I can fax or send

him a

> copy to help explain it. Our Ped wants us to go to Toronto where

the

> endos have dealt with RSS and get their opinions, but warned us

that

> they probably wouldn't look at the test results from London and

would

> want to do their own testing. Does the GH improve appetites too?

>

> H ... I think that you and I are in about the same place as far

as

> our boys are concerned (except we haven't had any hospital stays

yet,

> touch wood) ... plateau for a long time with the weight etc. Our

ped

> mentioned to us about the possibility of a g tube if the

periactin

> doesn't help (and for some reason he didn't hold much faith in

the

> periactin or so it seemed to me). Like Jodi said though (I think

> I've been saying that a bit) you are doing a great job and

sometimes

> we have to give it a little time.

>

> We are doing pretty good with the Periactin so far. Only 4 days

in

> and here's hoping.

>

> Dawna

> Matt 13, 11, Kaitlyn 8, Noah 3 RSS, Periactin, 19 lbs 8.7

ounces

> You know I just can't wrap my lips around the Canadian name for

> Periatin ...

>

>

>

>

>

>

>

>

[Guest guest]

Thanks so much Deb! If you want any more details or anything about

Noah just let me know and I'll email you. I really appreciate this.

I do trust you will do it nicely lol.

Dawna

> >

> > Dawna

> > We started ght late (Adam was 8) so I was not concerned with

the

> weight to height ratio. If you end up in Toronto, you'll more

than

> likely see our Endo. I am going down on Tuesday (a week today)

for

> Adam's next check up. I'll ask him some of your questions but he

is a

> good doctor.

> > One thing you should know, the Canadian standards for GHT

levels is

> alot lower than the US standards (for instance, and I am just

making

> these numbers up....if we give 3 units in Canada for a 30 lbs

child;

> the US would do 5 units). But just to show you how awesome my

endo is-

> --Adam is not growing as quickly as he would like, so we are

giving

> 4.5 units. He is above what is " legally " allowed in Canada but

> slightly below the US standards.

> > My gut would tell me for you to start and go for it. But then

> again, that's just me!

> > Let me know what else you learn and I'll talk to my endo for

you.

> >

> > Deb

> >

> > GHT

> >

> >

> > Well our endo called today to let us know that he had been

doing

> some

> > research with regards to gh and RSS, he has tried to contact

Dr.H

> and

> > has not had any luck and he doesn't see any reason to wait to

> start

> > Noah on GHT. We had told him when he had called with the

testing

> > results that we wanted to wait until Noah gained some weight

so

> that

> > he was 15% weight to height. Does anyone know if it is just

in

> the

> > letter from Dr. H about the weight or is there an article

that

> > specifically addresses the weight issue that I can fax or

send

> him a

> > copy to help explain it. Our Ped wants us to go to Toronto

where

> the

> > endos have dealt with RSS and get their opinions, but warned

us

> that

> > they probably wouldn't look at the test results from London

and

> would

> > want to do their own testing. Does the GH improve appetites

too?

> >

> > H ... I think that you and I are in about the same place as

far

> as

> > our boys are concerned (except we haven't had any hospital

stays

> yet,

> > touch wood) ... plateau for a long time with the weight etc.

Our

> ped

> > mentioned to us about the possibility of a g tube if the

> periactin

> > doesn't help (and for some reason he didn't hold much faith

in

> the

> > periactin or so it seemed to me). Like Jodi said though (I

think

> > I've been saying that a bit) you are doing a great job and

> sometimes

> > we have to give it a little time.

> >

> > We are doing pretty good with the Periactin so far. Only 4

days

> in

> > and here's hoping.

> >

> > Dawna

> > Matt 13, 11, Kaitlyn 8, Noah 3 RSS, Periactin, 19 lbs

8.7

> ounces

> > You know I just can't wrap my lips around the Canadian name

for

> > Periatin ...

> >

> >

> >

> >

> >

> >

> >

> >