RE: hello

[Guest guest]

Hi everyone,

I just wanted to say that I am just thrilled to be a part of this group. I

have been reading all of your postings. I wanted to thank you all for

responding to my first e-mail and making me feel welcome. I haven't sent my

patient information in yet because I need to get my doctor's fax number on

Tuesday. But, I have been diligently working on my patient letter. I figure

there is no reason to wait for approval considering I was already approved

for the open RNY - I am pretty sure Dr. R will approve me for his procedure.

Kristi,

Yes I have read the manual. My friend that had this procedure on Aug. 23

called me on the 24th. When I found out how good she was doing I instantly

changed my mind on which procedure to have. I downloaded a copy of the

manual, printed it, and took it on vacation with me. I spent my time down in

the Florida Keys reading the whole thing over and over-lol. It is very

thorough and I am completely impressed with his results. Thank you for your

quick response. Nice to meet you.

,

Thank you for your response also. I think your web site is awesome. I can't

believe how much work you put into it. I really appreciate you sharing that

with me. I am really happy to meet you, too. Thanks again!

Margi,

Hi! I wanted to thank you too! Your response definitely made me feel very

welcome. I am keeping your phone number and I put your screen name on my AOL

buddy list. I hope you meant it when you said if I had any questions- I am so

excited that I will probably drive you all crazy with comments and questions.

I am glad to hear you are doing well after your surgery on 7/26. Have you

lost much weight yet? What is the hardest thing for you to adjust in your new

lifestyle? Thanks again for making me feel welcome and I am glad to meet you,

too.

Thank you all! You will all be hearing from me on a regular basis-lol!

Nice to be a part of a friendly group!

Terri

[Guest guest]

In a message dated 9/4/2000 9:36:52 AM Eastern Daylight Time, TKirrie@...

writes:

<< What is the hardest thing for you to adjust in your new

lifestyle? >>

man, I can't WAIT for someone to ask me this!!!!!!!!! :oD

Robin

Wife to Doug

Mommy to Tyler, 4 yrs., and Brennan, 1 yr.

Singer, wife, mom, secretary.. and not in that particular order.

[Guest guest]

In a message dated 9/4/2000 10:39:33 PM Eastern Daylight Time,

judith98101@... writes:

<< Keep it clean, Robin

Judith in Seattle >>

Ha ha ha ha ha!!! just what do you think I was going to say! Jeez! <bg>

Robin

Wife to Doug

Mommy to Tyler, 4 yrs., and Brennan, 1 yr.

Singer, wife, mom, secretary.. and not in that particular order.

[Guest guest]

In a message dated 9/4/2000 10:39:33 PM Eastern Daylight Time,

judith98101@... writes:

<<

Keep it clean, Robin

Judith in Seattle >>

Judith,

She didn't mention lawyers so it was pretty clean.

Trish Lanman

MGB 6/01/2000

start weight: 242

surgery: 212

9/01/2000: 180

goal: 125

self pay

[Guest guest]

Keep it clean, Robin

Judith in Seattle

Re: Hello

> In a message dated 9/4/2000 9:36:52 AM Eastern Daylight Time,

TKirrie@...

> writes:

>

> << What is the hardest thing for you to adjust in your new

> lifestyle? >>

>

> man, I can't WAIT for someone to ask me this!!!!!!!!! :oD

>

> Robin

> Wife to Doug

> Mommy to Tyler, 4 yrs., and Brennan, 1 yr.

> Singer, wife, mom, secretary.. and not in that particular order.

>

> This message is from the Mini-Gastric Bypass Mailing List at Onelist.com

> Please visit our web site at http://clos.net

> Get the Patient Manual at http://clos.net/get_patient_manual.htm

>

> and for more on the MGB,Don't miss :

> http://www.fourlane.com/mgb

>

> To Unsubscribe Send and Email to:

MiniGastricBypass-unsubscribe (AT) egroups (DOT) com

>

>

>

[Guest guest]

Thank you Dinah! I am going to take you up on your offer about questions. I

will stay in touch throughout this journey. I appreciate any advice you can

give. Thank you again! Terri

[Guest guest]

Terri, I'm post op as of Aug 16 and I too was scheduled for another

type surgery before finding out about Dr R. This site and this

surgery is wonderful. Any questions will be welcomed and answered

here! Good Luck in you Journey to Health!

Dinah in Alabama

> Hi Everyone!

>

> I just wanted to introduce myself. My name is Terri and I am new to

this

> group. I am 27 years old and from FL. I just signed up today and am

totally

> excited about this procedure. I have been battling for approval by

my

> insurance for an Open RNY procedure for a year and finally got

approved. I

> had a friend of mine tell me about Dr. Rutledge and I really think

I want to

> have him do my surgery. I am already scheduled for the other on

October 9th.

> I hope I can be approved by him and get everything ready to go to

have him do

> my surgery instead. I am so tired of waiting -- but I am willing

to wait if

> this is what will be the best for me. If any of you have any words

of

> encouragement to offer.... Please e-mail me or send it to this

board. Thanks-

> I would appreciate any input at this point.

>

> Nice to get to know you all,

> Terri

[Guest guest]

Hi Cindy: Welcome. I'm only 4 mos. post-op so I can't give you the

perspective of someone who's been post op a long time. But I can

tell you that we're glad you're here and we'll help in any way we

can.

Flo from land posting from Raleigh

>

> Hello all, my name is Cindy, I'm from Massachusettts have been

reading about

> MGB for about a year. I've read all the e-mails of the day and have

finally

> got my own e-mail address and can now be part of this larger

community. I am

> waiting for BC/BS of Mass. to respond. I have the HMO . Does anyone

have any

> thoughts, experience or advice dealing with these people? My PCP is

great he

> is excited for me and can't wait for me to have the procedure. He

was very

> careful in his refferal letter to BC/BS, however I'm not exactly

sure what

> they want.

> Also I would like to hear from folks who had this prcedure done 2

to 3 years

> ago. I wonder how life is after some time has passed. Can they

still loose,

> what are they eating, etc.? I look forward to chatting with you

this is a

> tremendous site. You have all helped me in my decision and I thank

you all.

> All my best, Cindy

>

>

>

>

>

> _______________________________________________________

> Say Bye to Slow Internet!

> http://www.home.com/xinbox/signup.html

[Guest guest]

Trudy:

Your post was so true. The weight does bother us more than it does our kids.

I know that my kids love me with all of their heart........and I am the most

active mom out there on the baseball field.

This surgery is going to help me become the healthy person I deserve to

be......and to give me a longer, healthier life with my children.

Christy

California Pre-Op

[Guest guest]

Lorna,

God knows most of us have been there (embarrasing the kids in all) but thats

just one of the reasons we are here now. Life isn't always fair especially when

you have a handicap. I am sure you're a great mom, and some of those kids that

gives your daughter a hard time aren't lucky enough to have a mom like you.

Usually, my kids brought everyone over to our house and even tho. the kids were

leary of me at first because of my size, I'd win them over with my willingness

to be genuine with them. I didn't try to pretend to be something I am not, I

just let them know that it didn't matter. I was a great mom, and a nice, sweet

lady, who loved kids (and still do). You gotta watch their blunt honestly.. and

know how to counter-react it. Its difficult to be mean to someone who is being

so nice to you, even when you're seven years old. My kids have included me in

everything from plays, to sporting events. I'm just their mom.

(step-mom to 3 of em). Please teach your children how important it is not to

judge people by their size or their appearance. No matter what other kids say to

them, they will know (and feel ) it just doesn't matter like my kids say " you're

our mom! "

Wow, I'm windy.. hope it helps you. If you decide tohave this surgery, let it be

because it is the best thing for you, not because you feel you're an

embarrassment to your kids. (believe me it bothers you more than it does them.)

Good luck from a Mom who knows.

Trudy

Hello

Hello all!!

I have been reading your wonderful stories for a very long time. I

still have not even gone to the doctors to see if I can even get the

surgery done. I have so many questions and so many fears that stop me

from making the appointment. One of my questions is what are the long

term affects of this surgery. Will I have a problem with scar tissue?

I am 26 yrs old and my weight is 265 lbs my BMI is 42. I have three

little girls that I would like to see grow up into young ladies. I have

been on so many diets and failed. I suffer from depression. I have not

been out on the town in about three years. I am ashamed of my

appearance. I dont even go out to my daugther bus stop in the mornings

becuase the kids pick at her after I go back in the house. I feel stuck

like I have no where to go.

Lorna

[Guest guest]

Hi: The best way to get information in the beginning is to download the manual

on the clos.net website. Then read any and all information you can about the

risks and the complications that can happen on the same site. I started reading

the emails, and really visiting and printing out the gobs of stuff that Dr. R

has on his site. It willhelp you to decide if you even want surgery for weight

loss.

All any of us can do is to share with you our experience. There are risks. You

have to decide for yourself whether or not you will be read to take the steps to

get to surgery. In any or either case, you can rely on us to help you through

the process.

Flo frm land

> ** Original Subject: RE: Hello

> ** >

> ** Original Date: Mon, 09 Oct 2000 14:57:21 -0600

> ** Original Message follows...

>

> Hello all!!

>

> I have been reading your wonderful stories for a very long time. I

> still have not even gone to the doctors to see if I can even get the

> surgery done. I have so many questions and so many fears that stop me

> from making the appointment. One of my questions is what are the long

> term affects of this surgery. Will I have a problem with scar tissue?

>

> I am 26 yrs old and my weight is 265 lbs my BMI is 42. I have three

> little girls that I would like to see grow up into young ladies. I have

> been on so many diets and failed. I suffer from depression. I have not

> been out on the town in about three years. I am ashamed of my

> appearance. I dont even go out to my daugther bus stop in the mornings

> becuase the kids pick at her after I go back in the house. I feel stuck

> like I have no where to go.

>

> Lorna

>

>

>

[Guest guest]

Hi Sherry, I'm glad you had a wonderful weekend. (even though it was cold.

)

You didin't miss much. LOL We were just discussing how we thought toxins

played an important part in RP, so thought I'd ask Bradley (he is doing

research) and see if he has ran across it.

A new member wanted a survey done so she could see how different people had

different problems with RP, so I just made one up. She wanted to know their

symps, what meds they took and what their reactions were, what other

surgeries or illnesses they have had in the past.

I guess we are still looking for that connections. I sure hope we find it

one day. I know deep in my heart that my mom died from RP and no one knew.

When I look back now and see what her symptoms were, I could just shoot

myself. It was before I had RP and before I even had a computer. AND we

believed what the drs told us.

I'm sorry, didn't mean to bring up memories for you. Honest!! okay on to

happy thoughts.

I was going to work in my garden today, I bought tons of plants from a

wholesale nursery yesterday. It was 80 degrees yesterday. WEll, it rained

all day today and was cold. Guess it will just have to wait. LOL They are

all on my deck out back. At least the deck looks nice.

How are you enjoying being out of school, or are you back again? Boy time

flies.

Keep me posted and give Shirley a big hug for me.

hugs and prayers to you both.

[Guest guest]

I have missed you too. Was good to talk to you the other day. You

make me laugh so much. I love your spirit. I just want you to be careful

and watch your stress. Yeah, I can just hear you saying " Watch it what????

GROW? " I has to be hard with your sister and dad both sick and I worry

about you taking care of him. I hope your doctor can get you meds straight

so you aren't flaring. YOu know I worry about you.

I can't wait to hear your Jerry Springer story, I bet it is a good one.

Know you are in my thoughts and prayers

[Guest guest]

Hallo Nina , this is Heidi here. Thank you so much and we are wishing you

the same. Enjoy while you can. Take it easy OK.

Hugs

Heidi

> HELLO ALL,,,JUST WANT TO WISH ALL A GOOD LONG WEEK END...I'M TAKING A

> BREAK AND GOING TO OUR CAMPER IN WEST VA. ..JUST TO WATCH THE DEER

> PLAY..LOL....AWAY FROM DOCTORS....LOVE AND PRAYERS COMING YOUR

> WAY...NINA

[Guest guest]

Hi Rosemary,

How much blood? Would you say about a teaspoon? a has had 3

episodes of lung bleeds. Very scary, but her CF doc says if not more

than 3 spoons and stops, then she should be ok. The last time it

scare the heck out of me so we ran to the doctor, but he told me she

was ok. Lung bleeds can be caused by paint fumes, or any strong

odor, inhaled medicine, i.e. Tobi, pulmozyme, or by a big cough

attach. Also, vitamin K deficiency may cause a lung bleed, and our

children can be vit k deficient.

This has been our experience and I hope it helps.

Love to you and your children,

-- In cfparents , ROSEMARY3FOR3wCF@a... wrote:

> I am not sure if I am not getting mail or if no one has written.

>

> My question: saw clump of blood w/ a piece flem. Anyone know

what that

> could indicate ????

>

> Thanks.

>

>

>

> Rosemary in NY with 3 children (13, 10.11 and 7)

> with CF. I have a dog named TOBI and have

> coined the phrase " BREATHE DAMMIT "

>

>

>

[Guest guest]

I am getting mail. As for the blood, I would give the doc a ring, could be

nothing but better to be reassured.

love,

M

mom of Nick age 21 nocf and age 19 w/cf

[Guest guest]

In a message dated 11/22/2003 5:47:16 PM Central Standard Time,

hollychuck@... writes:

Holly Thornton

Hi Holly I am a mom of three girls and two of them have CF. When we were

first diagnosed I never knew of anyone in our family either that had CF until

one

of my aunt's remembering a cousin that had a son that died of CF. We found the

mystery on my side but have not yet found it on my husband side. We do know

of there being asthma and whooping cough so we do wonder if some of these

disease they were diagnosed with could in fact been CF.

My girls were not diagnosed until they were 6 and 1 years old so visible

signs are not always there. My girls were thriving fine they only sign we had

was

when my oldest had polyps in her nose. In fact if it wasn't for the ENT I

still don't think we would know today. Well, we are all glad you found this

group

it is a GREAT resource for information so ask away that is what we are here

for to help each other out with our experiences and knowledge. Deb A

11 w/CF, Lynzie 9 wo/CF and Natalynn w/CF 6

[Guest guest]

My girls were thriving fine they only sign we had was

> when my oldest had polyps in her nose. In fact if it wasn't for the

ENT I

> still don't think we would know today.

Same for my son. The polyps were our only clue.

jan

[Guest guest]

Tracey,

Well, I can not help you a whole lot in the sense of the TOBI and

the age of your child, but I can tell you that a lot of people that

I know that are adults with CF had a rough start, even younger than

Sydney. So don'y dispair, you found this group which to me is the

best place on the net to get support.

Welcome and be ready we have some incredibly people and quiet a bit

of knowledge, from all ages to all parts of the world.

> Hi!

> I'm going to give this another try, I'm not sure it worked the

first time around. Anyways, my daughter, Sydney, is going to be

three in March, and she was diagnosed with CF in May of this year.

My husband was actually deployed during the war when I found out, so

I was sort of handling it myself with help from my family until he

came home. Anyways, I have a bunch of questions concerning CF, but

I'll start out small. We had an appointment yesterday at the CF

Clinic, and found out that Sydney tested positive for psudanomas

(non-mucoid). We started her on TOBI today, and I'm concerned about

her taking it at such a young age. Has anyone else out there had to

use this on their toddlers? If so, did you see an improvement? For

the most part my husband and I are trying to be very positive about

everything, but sometimes its hard. I want her to live a normal

life, but I already find myself sheltering her from a lot. We

recently moved to Virginia, and I haven't returned to work yet for

fear she'll be exposed to way too many viruses at a daycare center.

It seems like we're starting to spiral out of control with our

emotions, any advice on how to get a grip on reality without letting

it bring you down? It feels like we're the only family going

through this. I'm hoping somebody has some words of encouragement

out there! Thanks in advance for any advice you may have for us.

>

> Tracey

>

>

[Guest guest]

Welcome Tracey!!

My daughter who started Tobi in October, but she is 10, so I can't

help you too much. I know there are others around here who have

young ones and no doubt they will chime in! My husband is in the

Navy and we are in San Diego. The CF clinic at the naval hospital

here is fantastic. You had asked how to keep the emotions from

spinning out of control. Well, thats a tough one. The thing that

helps me is I try not focus on what is down the road. I focus on the

here and now. is here, now, and I am happy with that. The

treatments are a pain in the arse and can really take a toll on the

parents. Don't let this disease run your life. Do what you can to

the best of your ability and DON " T YOU DARE FEEL GUILTY ABOUT

ANYTHING! Do not close yourself off to your husband. Let him help

you, let him take care of you, and together the two of you will be

able to control those emotions. There will be bad times, but they

will get better. When you do encounter some bad times, let us know.

We are here to help you get through it!

Take care,

e,Chief's wife, and mom to , 10 wcf, and Ian 13 nocf

[Guest guest]

Send me your mailing address & I will send you some GREAT tapes &

booklets with info & you will see/hear other folks with their wee ones &

older ones. They are NOT doom & gloom either

You will find much info & answers here that will help you thru this. .

My granddaugther is in college up in the mountains skiing all the time/

She is 6 ft. tall & doing VERY well.

LOVE & HUGS, grandmomBEV

Hello

Hi!

I'm going to give this another try, I'm not sure it worked the first

time around. Anyways, my daughter, Sydney, is going to be three in

March, and she was diagnosed with CF in May of this year. My husband

was actually deployed during the war when I found out, so I was sort of

handling it myself with help from my family until he came home.

Anyways, I have a bunch of questions concerning CF, but I'll start out

small. We had an appointment yesterday at the CF Clinic, and found out

that Sydney tested positive for psudanomas (non-mucoid). We started her

on TOBI today, and I'm concerned about her taking it at such a young

age. Has anyone else out there had to use this on their toddlers? If

so, did you see an improvement? For the most part my husband and I are

trying to be very positive about everything, but sometimes its hard. I

want her to live a normal life, but I already find myself sheltering her

from a lot. We recently moved to Virginia, and I haven't returned to

work yet for fear she'll be exposed to way too many viruses at a daycare

center. It seems like we're starting to spiral out of control with our

emotions, any advice on how to get a grip on reality without letting it

bring you down? It feels like we're the only family going through this.

I'm hoping somebody has some words of encouragement out there! Thanks

in advance for any advice you may have for us.

Tracey

[Guest guest]

Hi Tracey,

My daughter has been on Tobi for more than 3 years. She is five now and she

started on it before she turned 2. It has worked well for her, and she no

longer cultures pseudomonas.

(Where's the soap box?.......ah, here it is....)

My big issue with Tobi.......It has major side effects and most docs do not

usually choose to monitor blood levels in small children who use tobi as they

would if they were getting IV tobramycin. They say it is inhaled, not going

into the blood stream so it won't be a problem, but inhaling is how we oxigenate

our blood! so why would it not go into the bloodstream? Tobi is approved for

people 6 and over (not under). When started on Tobi her doc had not

prescribed it much for really little kids, so he and I agreed that we SHOULD

monitor her levels. It's a good thing too! Her levels were VERY high, and it

could have caused some serious damage. They cut the dose in half and her level

came back fine. She has been on it every other month ever since.

(let me put the soap box away now)

So Yes Tobi is good but ask for the levels to be followed!

As for getting a grip on the whole CF experience and how to handle what is going

on, You found the place to get help! CF parents is a great support system!!!!

Mom of 5 with CF and one on the way!!

Hello

Hi!

I'm going to give this another try, I'm not sure it worked the first time

around. Anyways, my daughter, Sydney, is going to be three in March, and she

was diagnosed with CF in May of this year. My husband was actually deployed

during the war when I found out, so I was sort of handling it myself with help

from my family until he came home. Anyways, I have a bunch of questions

concerning CF, but I'll start out small. We had an appointment yesterday at

the CF Clinic, and found out that Sydney tested positive for psudanomas

(non-mucoid). We started her on TOBI today, and I'm concerned about her taking

it at such a young age. Has anyone else out there had to use this on their

toddlers? If so, did you see an improvement? For the most part my husband and

I are trying to be very positive about everything, but sometimes its hard. I

want her to live a normal life, but I already find myself sheltering her from a

lot. We recently moved to Virginia, and I haven't returned to work yet for fear

she'll be exposed to way too many viruses at a daycare center. It seems like

we're starting to spiral out of control with our emotions, any advice on how to

get a grip on reality without letting it bring you down? It feels like we're

the only family going through this. I'm hoping somebody has some words of

encouragement out there! Thanks in advance for any advice you may have for us.

Tracey

[Guest guest]

In a message dated 12/9/2003 9:05:07 PM Central Standard Time, bevd@...

writes:

Hey Deb,

did they get you what you wanted with the masks? let me know if they haven't

.. They should have by now.........I have been doing reports & plans &

haven't been down in Rx this week to check . whatever you need , let me

know

LOVE & HUGS, grandmoMBEV

Ya I think so. I haven't heard anything today but they were having a hard

time with my insurance trying to figure out how to bill it. Also she said they

do

not bill to the state? our oldest is on a waive program and for some

reason they didn't think they could bill it. Thanks for asking!! I hope we

get them soon. Deb A

[Guest guest]

Hey Deb,

did they get you what you wanted with the masks? let me know if they haven't

.. They should have by now.........I have been doing reports & plans &

haven't been down in Rx this week to check . whatever you need , let me

know

LOVE & HUGS, grandmoMBEV

Re: Hello

In a message dated 12/9/2003 3:29:12 PM Central Standard Time,

brewzline19@... writes:

Tracey

My daughters were diagnosed when they were 6 years old and 1 year old. The

first time we used Tobi my youngest was around 2 years old. The first year

we

used collistin it is a Danish method the only bad thing about it is it needs

to

be done 3 times a day but it only takes about 15 minutes to get through the

treatment. Were Tobi takes about 40 minutes.

The first year of diagnoses is the hardiest. You will go through a lot of

emotion and dealing with things alone will make it even hard. But you have

come

to the right place because we have all been there at least once so if you

need

a shoulder to lean on we are hear and we can also answer any questions you

may

have. So hang in there you have a lot to learn but there is a lot of

knowledgeable people here. Deb A

[Guest guest]

Tracey, Our daughter was diagnosed at 16 months of age. She is in

daycare and we just (Nov. 20) had sinus surgery. I know the hardest part is

realizing that she might not be able to do everything in life that you want her

to do.

has done wonderful in daycare, but I have an extraordinary person in

. She has been my provider for 12 years. 's oldest sister just

turned 13 and she has another sister that is 10. She can get just as much germ

wise from them as daycare. God only knows what they are bringing home to her.

We are doing everything for the now. Her health, could be better, but we have

never been on Tobi, only inhaled gentimycian. We have had only one hospital

admission just before her 2nd birthday. We are hoping this surgery for her

sinuses will help her in the long run. Her upper sinuses were completely sealed

off. They say classic CF sinus problems. She didn't culture any bad bugs, so I

am happy. Because of the flu bug going around our whole family does get flu

shots and we don't take Alli out very much and we don't take her shopping or out

to eat.

Just keep going one day at a time. The best thing that has happened among all

of this is that this has made us a stronger family unit. In a big cause of

making Alli's life the best.

I would love to email back and forth

Thanks and welcome to our " club "

Traci married to a wonderful husband and 3 great daughters with one who

fights CF ( 13, 10 and 4) Hello

Hi!

I'm going to give this another try, I'm not sure it worked the first time

around. Anyways, my daughter, Sydney, is going to be three in March, and she

was diagnosed with CF in May of this year. My husband was actually deployed

during the war when I found out, so I was sort of handling it myself with help

from my family until he came home. Anyways, I have a bunch of questions

concerning CF, but I'll start out small. We had an appointment yesterday at

the CF Clinic, and found out that Sydney tested positive for psudanomas

(non-mucoid). We started her on TOBI today, and I'm concerned about her taking

it at such a young age. Has anyone else out there had to use this on their

toddlers? If so, did you see an improvement? For the most part my husband and

I are trying to be very positive about everything, but sometimes its hard. I

want her to live a normal life, but I already find myself sheltering her from a

lot. We recently moved to Virginia, and I haven't returned to work yet for fear

she'll be exposed to way too many viruses at a daycare center. It seems like

we're starting to spiral out of control with our emotions, any advice on how to

get a grip on reality without letting it bring you down? It feels like we're

the only family going through this. I'm hoping somebody has some words of

encouragement out there! Thanks in advance for any advice you may have for us.

Tracey