Guest guest Posted May 26, 2005 Report Share Posted May 26, 2005 glad to hear she is doing better!!! try and get the fluids and carbs into her!!! good luck and ((HUGS)) jodie c Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2005 Report Share Posted May 26, 2005 So glad she is doing better!!!! Dayna _____ From: RSS-Support [mailto:RSS-Support ] On Behalf Of blondesteph_00 Sent: Thursday, May 26, 2005 8:16 PM To: RSS-Support Subject: update on Kyla today is a much better day, the color is coming back in her, she ate 3 chocolate sticks, some angel hair pasta, and a sandwich from the sandwich maker, she is drinking really sweet tea because i thought she could use the extra sugar LOL her doctor called today and her blood glucose id fine, she has a trace of ketones in her urine so i am trying to push fluid in her and some kind of food, but she is much better today..i called the G.I. every hour on the hour and left messages for them to call me back, hopefully they will get tired of me calling and get me an appointment within hte next couple of months!!!! _____ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2005 Report Share Posted May 26, 2005 YaY = ) I'm so glad that your daughter is doing better. *leah* blondesteph_00 wrote: today is a much better day, the color is coming back in her, she ate 3 chocolate sticks, some angel hair pasta, and a sandwich from the sandwich maker, she is drinking really sweet tea because i thought she could use the extra sugar LOL her doctor called today and her blood glucose id fine, she has a trace of ketones in her urine so i am trying to push fluid in her and some kind of food, but she is much better today..i called the G.I. every hour on the hour and left messages for them to call me back, hopefully they will get tired of me calling and get me an appointment within hte next couple of months!!!! --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2005 Report Share Posted May 27, 2005 Steph, That is great news and I am so glad that she is eating a little more. Try to keep getting her to take in the fluids and eat as often as possible. Leave snacks out for her that she likes that she can grab and nibble on maybe. Keep up with the GI phone calls! ) Jodi R. > today is a much better day, the color is coming back in her, she ate 3 > chocolate sticks, some angel hair pasta, and a sandwich from the > sandwich maker, she is drinking really sweet tea because i thought she > could use the extra sugar LOL her doctor called today and her blood > glucose id fine, she has a trace of ketones in her urine so i am > trying to push fluid in her and some kind of food, but she is much > better today..i called the G.I. every hour on the hour and left > messages for them to call me back, hopefully they will get tired of me > calling and get me an appointment within hte next couple of months!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2005 Report Share Posted May 27, 2005 Hey !! Glad to hear that she's doing better!! Sounds like you have it all under control! You're doing a great job!! Pat (g-ma to , RSS, 3 yrs 5 months old, 23#, 33 " , G-tube, GHT) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2005 Report Share Posted August 19, 2005 , I'm at a loss for words. It's inconceivable sometimes the difficulties and stresses we must face. In light of your situation, do know that we all care for you, will pray for you, and that we will think of you daily. And by the way - please do not feel you need to apologize. That's what we are here for. I'm glad you felt comfortable enough to share your thoughts. You didn't mention how you were coping with all this - but, you seem to be handling things well. Please feel free to talk more if you need to. If you have a church nearby - sometimes they will offer babysitting for those last minute interviews or even for when you need a little bit of time with your husband to talk about next steps. My husband lost his job last November and it was a very humiliating feeling - even though he didn't want to admit it. He had been with the same company for 18 years and I think he was very comfortable with his surroundings. When all that changed - he was lost and unsure of himself - he didn't admit that either. On the positive side - things do get better. We actually grew closer than we have ever been because we took the opportunity to spend quality time with each other when normally when he would work we had NO time together - ever. I also put all my anxieties about the situation, fears, concerns and sadness aside and put all my energies into my husband. I reminded him EVERY day how proud of him I was, how intelligent and smart he was, how much I believed emphatically that I was not worried about him finding a job, and supported his needs to be at the library, read a book by himself or even just take a ride in the car alone - because I realized that focusing all my efforts on him gave him comfort and the security that he needed. After he found a job in a different state and we moved from our comfort zone - that's when I realized that all my support gave us the grounding to our relationship that we probably needed for the last 9 years! Even though we have always been incredibly happy (well almost always ) - it was a lesson that was well learned in that men really need support from their wives no matter where they are in life. Sorry, I'm rambling - just more meanderings. Bad habit - my tangents! I hope some of what I have said helps though. The job thing is such an incredible stressor in life and I can certainly relate to your situation. As far as Kyla goes. I'm so sorry to hear of all her dealings with meds and boils! Ugh - so frustrating. My heart poors out to you. You are an amazing mom though. You are handling this so well. I must have missed the boil conversation - is this normal with RSS children? How is Kyla handling all this? Is she sick on the meds? Sounds like she could use lots of hugs - we'll send some her way today. Good luck with the potty training thing. My non RSS son refused to even consider it. My peds kept telling me to wait until he was 3 1/2. I of course didn't listen and kept trying with no avail. Finally, I gave up. Would you believe - exactly at 3 1/2 months I was looking for him one day and found him peeing on the potty? Would you believe he's never peed in his pants and always uses the potty now? I hate admitting when the docs are right! Take care - we will think of you often. - H > okay, i know we have had enough talk on here about boils, we had a > discussion at the convention over it, so sorry!!! kyla woke up > yesterday with what i thought was a boil, she went to school anyway > (she started pre-k monday and she loves it) today she woke up and it > was hard as a rock and red and swollen, i took her to school and > showed the nurse who said it was a boil and she can stay since it > isn't draining. i put a bandaid on it and sent her to class i picked > her up for an 11 appointment for it anyway because they are forming > on her rear too.........as soon as i pulled the bandaid off it popped > it and the doctor said it was definately staff infection, took a > culture of the puss to determine the degree of it, even though she > said it was pretty serious........my poor baby could barely walk over > it. it looks a lot better now. she was put on 4 more prescriptions, 2 > antibiotics,one topical for the staff and another for the rear. she > is also on periactin, miralax (5 teaspoons and sometimes it still > don't help) prevacid (30mg) pediatex for her congestion, and she is > about to start back on reglan..............any more meds please? we > could use more!!! at least she don't fight us anymore to take it...on > top of all this my hubby lost his job 2 weeks ago and is having > trouble getting another (he is an electrician) my son has started > potty training has good days and very bad days, there is no in > between, i have had a few job offers but one was for night shift > (NOT!!) and the other was from 3-9 p.m. which means no time for kyla > and i won't do that either. so we are very broke right now, oh did i > mention the water pump went out on my car)okay, enough about us, > sorry!! stephanie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2005 Report Share Posted August 20, 2005 - I was going to write you today, after I spent a while talking with my son's best friend's mom yesterday. Her 3 year old daughter had repeated boils -- turns out after seeing numerous doctors and finally a infectious disease doctor at the children's hospital - it is the horrible staph infection that is going around the US. She was trying to explain it to me that they think her daughter has a bacteria in her body, and it just keeps " coming out. " They have caught it each time early enough before she has had to have IV antibiotics. But that they are considering putting her in the hospital for a week for IV antibiotics to try and rid her of it for once and for all.... But it all started with these boils she kept getting.... so it made me think of you. Turns out that numerous kids in our community have gotten it -- some in high school were in the hospital. And it is very contagious. UGH! I wish you the best! Quote Link to comment Share on other sites More sharing options...
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