Re: Re: Congress on Pulmonary Fibrosis Bill

[Guest guest]

emailed my rep., Elton Gallegly, and he is a co-author of HR-1079. Emailed 4 sisters to contact their reps.

Ken O.

To: Breathe-Support Sent: Thu, October 29, 2009 1:42:21 PMSubject: Re: Congress on Pulmonary Fibrosis Bill

Jack,You can put me back on the list, did mine today!Dyane Phoenix ipf 02>> Yesterday, I had an emal from my friend Congressman Mike Michaud onH.R. 1079, the Pulmonary Fibrosis Enhancement Act, telling me that hesupports this bill. The bill will create a patient registry, Federalmoney for research, helping to identify treatments and a cure. Today Ireceived an email from the Coalition for Pulmonary Fibrosis stating thatthey have 60 members of Congress supporting this bill, but need 40 morein order to get a Congressional hearing on PF. This bill will bemilestone for us on this> board and all those who will follow us. The Coalition is asking allof us and our friends

and family> to call now to urge our Congressmen to support this bill You can dothis be calling (the> Capitol Switchboard) and ask for the Health Legislative Assistance. If you leave a voice mail message, include your name and phone number sothat they can call you back. Sample phone message: "I am> a pulmonary fibrosis (patient, family member of patient, caregiver) in(your town). I am calling> to urge Rep. ____________ __(your Congressman) to support pulmonaryfibrosis patients by> supporting the Pulmonary Fibrosis Enhancement Act. This criticallyimportant legislation will create> a much-needed patient registry and will finally move research forwardin PF, helping identify> treatments and a cure. Please support patients and families bysupporting H. R. 1079.">> This will take only a few minutes, but just think, if we workcollectively in supporting

and getting> passage of H. R. 1079, we not only help ourselves, but all those outthere who have PF and> those yet to come. If we don't help ourselves, nobody will. Pleasecall today.>> PS I will know who calls and who doesn't and those who don't won'tget a Christmas gift this year.> Such are my powers.>> Jack> 79/IPF - UIP/dx06/05 Maine>