Guest guest Posted January 11, 2005 Report Share Posted January 11, 2005 Sherri- When I was growing up, I had 7 baby teeth pulled (over the course of several years) because the adult teeth were growing in " behind " the baby teeth. It was recommended by my orthodontist and done by my regular dentist. The jaws of RSS kids aren't big enough to handle all those adult teeth, so they wind up coming in VERY crooked, because they erupt wherever they can make a space (it sounds awful, but my parents' nickname for me was " Jaws " because until I got my braces, I had " rows " of teeth, like a shark). I lost my first tooth at 8 and started going to an orthodontist when I was 9. His decision was to extract a full set of molars so that I'd have enough room for my teeth to be straight. His parting words to me were to get my wisdom teeth pulled...they had not given me ANY problems but according to X-rays they were so badly impacted that they were nearly sideways...and should they START to want to erupt, it would mess up all the work the orthodontist had put into my mouth over the previous 11 years <G>. So I now have a grand total of 24 teeth. All straight <G>. -Sharon- Just an RSS kid who grew up Orlando FL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2005 Report Share Posted January 12, 2005 Sherri - Don't worry. Go to your regular pediatric dentist and they will do x-rays. They may send you to an orthodontist who can better evaluate the situation. What you are describing is quite common, even among children without RSS. > > Our RSS daughter, Abby, turns 7 next month. She has only lost one > tooth, which happened a couple of months ago and the new one is slow > to grow in. She mentioned she had another loose tooth, but it never > came out. I have been busy keeping an eye on the tooth growing in > and failed to notice another tooth coming in, in the wrong place, > slightly behind her bottom lower teeth. > > I'm not sure what direction to take on this. I have read the posts > on craniofacial issues and very young children with their teeth just > coming in. Do I go to a medical doctor? Special dentist? Pull the > tooth (the 2nd loose one, not the one coming in)myself?! Help!! > > Sherri D. - Mom to 6 (soon to be 7) year old twins - Abby (RSS) & Sam > (nonRSS) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2005 Report Share Posted January 12, 2005 Thanks for the information, Sharon. It's reassuring to know there will most likely be a positive end to all this. I don't know why it's so unsettling to me after everything else we've been through. I guess maybe it's because Abby is so sensitive. I had to take her to get a throat culture for strep throat (which she didn't have) a couple of months ago and the doctor had to force her to allow her to put the cotton swab to her throat. Abby could barely open her mouth. I can't imagine going to a dentist and having them gain access to her teeth. Sherri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2005 Report Share Posted January 12, 2005 Thanks, . I'm past my moment of panic now. I am pretty much new to this parenting stuff (our 6 year old twins are our only kids) and dealing with RSS issues certainly puts a different spin on things. Sometimes these " horrible " things seem like they must be due to RSS, not normal child growth issues. And we have the comparison with her twin, Sam, so it seems like anything different must be RSS. I appreciate your response and reassurance that this is normal! Sherri > > Sherri - Don't worry. Go to your regular pediatric dentist and they > will do x-rays. They may send you to an orthodontist who can better > evaluate the situation. What you are describing is quite common, > even among children without RSS. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2005 Report Share Posted August 8, 2005 Hi Katy, Every state should have at least one craniofacial evaluation team, which is a good place to start. Dr. helped me find the ones that were near me in Florida. Prior to meeting Dr. 2 years ago, I had never heard of a craniofacial team, nor would I have thought that this group included RSS kids. I'd recommend emailing Dr. & asking him for resources. Email me privately & I'll give you his email address if you don't already have it. Craniofacial teams are largely associated with conditions such as cleft palate. I did a little searching & found a few sites that may be helpful in explaining what the craniofacial team does: http://www.aboutfaceusa.org/articles/choseteam.htm I also found this info: A list of referrals to health care providers and/or teams, in the US and Canada, may be obtained from the Cleft Palate Foundation (CPF) by calling 1-800-24-CLEFT, or via e-mail. cleftline@... Kim C. > Message: 5 > Date: Mon, 08 Aug 2005 16:00:03 -0000 > > Subject: Dentist specializing in RSS: New Jersey? > > Hi All, > Am looking for two things: > --> Dentists in NJ/PA/NY who specialize in RSS issues > --> I'd like to learn more about the special dental issues faced by > RSS/SGA children. This will help me better discuss the issues when > parents email me. (and, now that is 8 and soon to enter the > dreaded braces land, it will help me too!). So, if you were to > educate a new parent about dental issues, what would some of you > advise them? > > Thanks, > Katy > > RSS Division Co-Consultant, MAGIC > Quote Link to comment Share on other sites More sharing options...
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