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Checking in from Chattanooga TN

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Hi all!

After a longish day in the car I'm happy to report the safe arrival in Chattanooga of myself, Peggy and , Teri Marietta and Jane. (well Jane just came down for a couple of hours to chat this evening but she'll be back tomorrow with Eddie.

Tomorrow we'll have lots more arrivals to report. I'm so happy to be here!! Off to bed shortly, I'm really tired but once again, supremely happy!

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

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Glad you all got there safe and sound! See ya tmrw afternoon.

B

Barbara McD

PF--Sept 08; Sjogren's--Apr 09; Reynaud's--seems like forever

Beautiful Western NC

Attitude is everything.

To: Breathe-Support Sent: Thu, October 29, 2009 8:45:58 PMSubject: Checking in from Chattanooga TN

Hi all!

After a longish day in the car I'm happy to report the safe arrival in Chattanooga of myself, Peggy and , Teri Marietta and Jane. (well Jane just came down for a couple of hours to chat this evening but she'll be back tomorrow with Eddie.

Tomorrow we'll have lots more arrivals to report. I'm so happy to be here!! Off to bed shortly, I'm really tired but once again, supremely happy!

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

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, Rich and Sher,

The guidelines that have been set for the vaccine have nothing to do with Obama's health care plan or our country letting us down. The guidelines were set to age merely 65 because it is believed that we who are older than 65 are immune to the virus so they are distributing the vaccine to those most at risk.

It is difficult to have guidelines but its better than "first come first serve" where the lines would be so long We'd have to camp out to get the vaccine. I agree that they have somehow "dropped the ball" by not having enough to give us all a shot, but it is what it is. So, it must be distributed in the most efficent way. It's Its much easier to go along with guidelines when it includes us as a priority, and much more difficult to accept when we are not a priority.

I'm just trying to put your mind at ease, there are no death boards an I don't think there ever will be any in this country. Do not underestimate We Americans, we would not put up with it!!! We've overcome much greater challenges.

Bob 69 IPF 1/09

From: Beth <mbmurtha (AT) yahoo (DOT) com>Subject: Checking in from Chattanooga TNTo: Breathe-Support@ yahoogroups. comDate: Thursday, October 29, 2009, 8:45 PM

Hi all!

After a longish day in the car I'm happy to report the safe arrival in Chattanooga of myself, Peggy and , Teri Marietta and Jane. (well Jane just came down for a couple of hours to chat this evening but she'll be back tomorrow with Eddie.

Tomorrow we'll have lots more arrivals to report. I'm so happy to be here!! Off to bed shortly, I'm really tired but once again, supremely happy!

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

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Thank you Bob (and Bruce too) for responding to concerns about the H1N1 vaccine and politics.

Unfortunately the reality is we still have limited (though improving) supply of the vaccine. They have to distribute it the best way possible to those most likely to have severe complications or death from flu infection. That appears to be the very young and pregnant women. Those of us with lung disease or other chronic illnesses will be next on the priority list.

In the meantime, wash your hands, eat well and get enough rest.

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

To: Breathe-Support Sent: Sat, October 31, 2009 12:28:02 AMSubject: Re: Checking in from Chattanooga TN

, Rich and Sher,

The guidelines that have been set for the vaccine have nothing to do with Obama's health care plan or our country letting us down. The guidelines were set to age merely 65 because it is believed that we who are older than 65 are immune to the virus so they are distributing the vaccine to those most at risk.

It is difficult to have guidelines but its better than "first come first serve" where the lines would be so long We'd have to camp out to get the vaccine. I agree that they have somehow "dropped the ball" by not having enough to give us all a shot, but it is what it is. So, it must be distributed in the most efficent way. It's Its much easier to go along with guidelines when it includes us as a priority, and much more difficult to accept when we are not a priority.

I'm just trying to put your mind at ease, there are no death boards an I don't think there ever will be any in this country. Do not underestimate We Americans, we would not put up with it!!! We've overcome much greater challenges.

Bob 69 IPF 1/09

From: Beth <mbmurtha (AT) yahoo (DOT) com>Subject: Checking in from Chattanooga TNTo: Breathe-Support@ yahoogroups. comDate: Thursday, October 29, 2009, 8:45 PM

Hi all!

After a longish day in the car I'm happy to report the safe arrival in Chattanooga of myself, Peggy and , Teri Marietta and Jane. (well Jane just came down for a couple of hours to chat this evening but she'll be back tomorrow with Eddie.

Tomorrow we'll have lots more arrivals to report. I'm so happy to be here!! Off to bed shortly, I'm really tired but once again, supremely happy!

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

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Hi Beth and all in Chattanooga. I so wish I was there with you all and I

know you are having a great time. I still remember what a wonderful time we had

in Orlando. My Mom has been very sick the last two months and there was no way

and I could get away. Next time.... I hope. but just wanted to say " Hi! "

Eileen IPF/UIP May 07

Boca Raton FL

>

>

> >From: Beth <mbmurtha (AT) yahoo (DOT) com>

> >Subject: Checking in from Chattanooga TN

> >To: Breathe-Support@ yahoogroups. com

> >Date: Thursday, October 29, 2009, 8:45 PM

> >

> >

> > 

> >Hi all!

> >After a longish day in the car I'm happy to report the safe arrival in

Chattanooga of myself, Peggy and , Teri Marietta and Jane. (well Jane just

came down for a couple of hours to chat this evening but she'll be back tomorrow

with Eddie.

> >Tomorrow we'll have lots more arrivals to report. I'm so happy to be here!!

Off to bed shortly, I'm really tired but once again, supremely happy!

> > 

> > Beth

> >Moderator

> >Fibrotic NSIP 06/06 Dermatomyositis 11/08

> > 

> > 

>

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my family doctor told me that he did not register to administer the vaccine and that a lot of other docs in this are did not register either

i am more concerned about my daughter and grandson

the one in florida already had h1n1 and i think the entire family recieved tamiflu -- back in august

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: Checking in from Chattanooga TNTo: Breathe-Support Date: Friday, October 30, 2009, 10:37 PM

SherThere is none yet available in the county I live in. My doctors have noteven heard a word about their distribution. It's a spotty deliverysituation it appears, state by state and county by county. Much is alsodetermined by how the local health departments have decided to handleit. Because of availability some cities are more restrictive than othersright now too. For instance, the health department in Dallas wasvaccinating today but not even to all kids, just to those within theyoungest age group or with other health issues, as well as to pregnantwomen. There have been cases of some pharmacies and some medicalfacilities not following the guidelines. There is a facility in FarmersBranch (about 20 miles from me) that is under investigation right now.I don't know for the life of me how Palin and Obama got broughtinto this. I was going to blame it all on Quincy

myself.>>> From: Beth mbmurtha (AT) yahoo (DOT) com>> Subject: Checking in from Chattanooga TN> To: Breathe-Support@ yahoogroups. com> Date: Thursday, October 29, 2009, 8:45

PM>>>>> Hi all!> After a longish day in the car I'm happy to report the safearrival in Chattanooga of myself, Peggy and , Teri Marietta andJane. (well Jane just came down for a couple of hours to chat thisevening but she'll be back tomorrow with Eddie.> Tomorrow we'll have lots more arrivals to report. I'm sohappy to be here!! Off to bed shortly, I'm really tired but once again,supremely happy!>> Beth>> Moderator>> Fibrotic NSIP 06/06 Dermatomyositis 11/08>

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mary beth

since you already had h1n1 and received tamiflu, would you still need the vaccine?

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: Checking in from Chattanooga TNTo: Breathe-Support Date: Saturday, October 31, 2009, 7:14 AM

Thank you Bob (and Bruce too) for responding to concerns about the H1N1 vaccine and politics.

Unfortunately the reality is we still have limited (though improving) supply of the vaccine. They have to distribute it the best way possible to those most likely to have severe complications or death from flu infection. That appears to be the very young and pregnant women. Those of us with lung disease or other chronic illnesses will be next on the priority list.

In the meantime, wash your hands, eat well and get enough rest.

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

From: ROBERT L SCIBA <scibar (AT) sbcglobal (DOT) net>To: Breathe-Support@ yahoogroups. comSent: Sat, October 31, 2009 12:28:02 AMSubject: Re: Checking in from Chattanooga TN

, Rich and Sher,

The guidelines that have been set for the vaccine have nothing to do with Obama's health care plan or our country letting us down. The guidelines were set to age merely 65 because it is believed that we who are older than 65 are immune to the virus so they are distributing the vaccine to those most at risk.

It is difficult to have guidelines but its better than "first come first serve" where the lines would be so long We'd have to camp out to get the vaccine. I agree that they have somehow "dropped the ball" by not having enough to give us all a shot, but it is what it is. So, it must be distributed in the most efficent way. It's Its much easier to go along with guidelines when it includes us as a priority, and much more difficult to accept when we are not a priority.

I'm just trying to put your mind at ease, there are no death boards an I don't think there ever will be any in this country. Do not underestimate We Americans, we would not put up with it!!! We've overcome much greater challenges.

Bob 69 IPF 1/09

From: Beth <mbmurtha (AT) yahoo (DOT) com>Subject: Checking in from Chattanooga TNTo: Breathe-Support@ yahoogroups. comDate: Thursday, October 29, 2009, 8:45 PM

Hi all!

After a longish day in the car I'm happy to report the safe arrival in Chattanooga of myself, Peggy and , Teri Marietta and Jane. (well Jane just came down for a couple of hours to chat this evening but she'll be back tomorrow with Eddie.

Tomorrow we'll have lots more arrivals to report. I'm so happy to be here!! Off to bed shortly, I'm really tired but once again, supremely happy!

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

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Pink

She's probably out cruising the river or something, but, yes, they are

recommending she and others who have had it still get the vaccine. The

feeling is that it will not hurt and may help, especially as the H1N1

season may run very long.

One other thing I haven't seen discussed publicly recently and would

hope parents are being told when their child gets the flu shot. The CDC

appears to still be recommending two shots for those under ten years

old, separated by at least 21 days.

>

>

> From: Beth mbmurtha (AT) yahoo (DOT) com>

> Subject: Checking in from Chattanooga TN

> To: Breathe-Support@ yahoogroups. com

> Date: Thursday, October 29, 2009, 8:45 PM

>

>

>

>

>

>

>

> Hi all!

> After a longish day in the car I'm happy to report the safe arrival in

Chattanooga of myself, Peggy and , Teri Marietta and Jane. (well

Jane just came down for a couple of hours to chat this evening but

she'll be back tomorrow with Eddie.

> Tomorrow we'll have lots more arrivals to report. I'm so happy to be

here!! Off to bed shortly, I'm really tired but once again, supremely

happy!

>

> Beth

> Moderator

> Fibrotic NSIP 06/06 Dermatomyositis 11/08

>

>

>

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We just got off the Riverboat Cruise...lots of pics to come!!!

        JOE/JOANIE

JOE 60 IPF1/2008 GRIFFIN, GA.

There are only 2 ways to live your life. One is as though nothing is a miracle. The other is as though everything is a miracle.

-- Checking in from Chattanooga TN

Hi all!

After a longish day in the car I'm happy to report the safe arrival in Chattanooga of myself, Peggy and , Teri Marietta and Jane. (well Jane just came down for a couple of hours to chat this evening but she'll be back tomorrow with Eddie.

Tomorrow we'll have lots more arrivals to report. I'm so happy to be here!! Off to bed shortly, I'm really tired but once again, supremely happy!

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

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Joyce,

I did have confirmed H1N1 back in May. The CDC is currently recommending that anyone who has already had H1N1 should still get the vaccine. There are variations of the virus that are covered by the vaccine that I may or may not have immunity to from my infection.

Just to clarify about Tamiflu. It is intended to treat or prevent an infection. Having had a course of Tamiflu does not provide protection from a future infection. If you've had Tamiflu before, you would receive it again for a new infection. The same way you would take an antibiotic each time you had a bacterial infection.

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

To: Breathe-Support Sent: Sat, October 31, 2009 9:59:51 AMSubject: Re: Checking in from Chattanooga TN

mary beth

since you already had h1n1 and received tamiflu, would you still need the vaccine?

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund. org

From: Beth <mbmurtha (AT) yahoo (DOT) com>Subject: Checking in from Chattanooga TNTo: Breathe-Support@ yahoogroups. comDate: Thursday, October 29, 2009, 8:45 PM

Hi all!

After a longish day in the car I'm happy to report the safe arrival in Chattanooga of myself, Peggy and , Teri Marietta and Jane. (well Jane just came down for a couple of hours to chat this evening but she'll be back tomorrow with Eddie.

Tomorrow we'll have lots more arrivals to report. I'm so happy to be here!! Off to bed shortly, I'm really tired but once again, supremely happy!

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

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DROPPED THE BALL is an understatement

<FONT face="comic sans ms" color=#40007f size=3> Soulliere & nbsp; <IMG src="http://us.i1.yimg.com/us.yimg.com/i/mesg/tsmileys2/50.gif"></FONT>

To: Breathe-Support Sent: Sat, October 31, 2009 12:28:02 AMSubject: Re: Checking in from Chattanooga TN

, Rich and Sher,

The guidelines that have been set for the vaccine have nothing to do with Obama's health care plan or our country letting us down. The guidelines were set to age merely 65 because it is believed that we who are older than 65 are immune to the virus so they are distributing the vaccine to those most at risk.

It is difficult to have guidelines but its better than "first come first serve" where the lines would be so long We'd have to camp out to get the vaccine. I agree that they have somehow "dropped the ball" by not having enough to give us all a shot, but it is what it is. So, it must be distributed in the most efficent way. It's Its much easier to go along with guidelines when it includes us as a priority, and much more difficult to accept when we are not a priority.

I'm just trying to put your mind at ease, there are no death boards an I don't think there ever will be any in this country. Do not underestimate We Americans, we would not put up with it!!! We've overcome much greater challenges.

Bob 69 IPF 1/09

From: Beth <mbmurtha (AT) yahoo (DOT) com>Subject: Checking in from Chattanooga TNTo: Breathe-Support@ yahoogroups. comDate: Thursday, October 29, 2009, 8:45 PM

Hi all!

After a longish day in the car I'm happy to report the safe arrival in Chattanooga of myself, Peggy and , Teri Marietta and Jane. (well Jane just came down for a couple of hours to chat this evening but she'll be back tomorrow with Eddie.

Tomorrow we'll have lots more arrivals to report. I'm so happy to be here!! Off to bed shortly, I'm really tired but once again, supremely happy!

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

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Thanks: Even if I am 73, I still feel that I am at risk. If one had good lungs I can see the over 65 arguement. Burns

To: Breathe-Support Sent: Sat, October 31, 2009 2:15:24 PMSubject: Re: Checking in from Chattanooga TN

DROPPED THE BALL is an understatement

<FONT face="comic sans ms" color=#40007f size=3> Soulliere & nbsp; <IMG src="http:// us.i1.yimg. com/us.yimg. com/i/mesg/ tsmileys2/ 50.gif"></FONT>

From: ROBERT L SCIBA <scibar (AT) sbcglobal (DOT) net>To: Breathe-Support@ yahoogroups. comSent: Sat, October 31, 2009 12:28:02 AMSubject: Re: Checking in from Chattanooga TN

, Rich and Sher,

The guidelines that have been set for the vaccine have nothing to do with Obama's health care plan or our country letting us down. The guidelines were set to age merely 65 because it is believed that we who are older than 65 are immune to the virus so they are distributing the vaccine to those most at risk.

It is difficult to have guidelines but its better than "first come first serve" where the lines would be so long We'd have to camp out to get the vaccine. I agree that they have somehow "dropped the ball" by not having enough to give us all a shot, but it is what it is. So, it must be distributed in the most efficent way. It's Its much easier to go along with guidelines when it includes us as a priority, and much more difficult to accept when we are not a priority.

I'm just trying to put your mind at ease, there are no death boards an I don't think there ever will be any in this country. Do not underestimate We Americans, we would not put up with it!!! We've overcome much greater challenges.

Bob 69 IPF 1/09

From: Beth <mbmurtha (AT) yahoo (DOT) com>Subject: Checking in from Chattanooga TNTo: Breathe-Support@ yahoogroups. comDate: Thursday, October 29, 2009, 8:45 PM

Hi all!

After a longish day in the car I'm happy to report the safe arrival in Chattanooga of myself, Peggy and , Teri Marietta and Jane. (well Jane just came down for a couple of hours to chat this evening but she'll be back tomorrow with Eddie.

Tomorrow we'll have lots more arrivals to report. I'm so happy to be here!! Off to bed shortly, I'm really tired but once again, supremely happy!

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

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Beth: Thank you for letting me express my frustrations. This group has been a big help and made me more determined to try to extend my life. I am certain there is a better way to deal with IPF. Unfortunately, no one has written a how-to book. Burns

To: Breathe-Support Sent: Fri, October 30, 2009 10:27:16 PMSubject: Re: Checking in from Chattanooga TN

I understand your frustration but this has nothing to do with Palin or Obama or any other politician or political issue. It's very simply a matter of them prioritizing those at greatest risk. It starts with kids and pregnant women. The vast majority of those to die have been very young. We've had quite a few in our area. Then we'll all get it. The age again isn't a matter of someone condemning you for being old, but it is a matter of greater likelihood of you having built immunity to H1N1 by either having it or being exposed to it during a previous outbreak. It's also a matter of what they've found out so far about risk. No one would argue that everyone needs the vaccine. However, there isn't enough out there yet for everyone even if some pharmacies might have some that no one has gone to get. The distribution system is struggling in other ways. For instance, Dallas and Fort Worth have both started some vaccines but I live in another

county and none has started in my county yet. There are also instances of those administering it not knowing the rules well and turning away those deserving it as well. Yes, it's lousy that everyone can't have it or didn't get the vaccination two months ago. Here is the CDC information:The new 2009 H1N1 virus does not seem to be affecting people 65 years and older in the same way that seasonal flu usually does. Most people who have gotten sick from this new virus have been younger. In fact, people 65 and older are the group that is least likely to get infected with this new virus. There have been relatively few infections and even fewer cases of serious illness and death with this new virus in people older than 65. Laboratory tests on blood samples indicate that older people likely have some pre-existing immunity to the 2009 H1N1 flu virus. But while people 65 and older are the least likely to be infected with 2009 H1N1 flu, those

that do become infected are at greater risk of having serious complications from their illness.> > > >From: Beth mbmurtha (AT) yahoo (DOT) com>> >Subject: Checking in from Chattanooga TN> >To: Breathe-Support@ yahoogroups. com> >Date: Thursday, October 29, 2009, 8:45 PM> >> >> > > >Hi all! > >After a longish day in the car I'm happy to report the safe arrival in Chattanooga of myself, Peggy and , Teri Marietta and Jane. (well Jane just came down for a couple of hours to chat this evening but she'll be back tomorrow with Eddie.> >Tomorrow we'll have lots more arrivals to report. I'm so happy to be here!! Off to bed shortly, I'm really tired but once again, supremely

happy!> > > > Beth> >Moderator> >Fibrotic NSIP 06/06 Dermatomyositis 11/08> > > > >

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Thank you: Burns

To: Breathe-Support Sent: Fri, October 30, 2009 10:37:29 PMSubject: Re: Checking in from Chattanooga TN

SherThere is none yet available in the county I live in. My doctors have noteven heard a word about their distribution. It's a spotty deliverysituation it appears, state by state and county by county. Much is alsodetermined by how the local health departments have decided to handleit. Because of availability some cities are more restrictive than othersright now too. For instance, the health department in Dallas wasvaccinating today but not even to all kids, just to those within theyoungest age group or with other health issues, as well as to pregnantwomen. There have been cases of some pharmacies and some medicalfacilities not following the guidelines. There is a facility in FarmersBranch (about 20 miles from me) that is under investigation right now.I don't know for the life of me how Palin and Obama got broughtinto this. I was going to blame it all on Quincy

myself.>>> From: Beth mbmurtha (AT) yahoo (DOT) com>> Subject: Checking in from Chattanooga TN> To: Breathe-Support@ yahoogroups. com> Date: Thursday, October 29, 2009, 8:45 PM>>>>> Hi all!> After a longish day in the car I'm happy to report the safearrival in Chattanooga of myself, Peggy and ,

Teri Marietta andJane. (well Jane just came down for a couple of hours to chat thisevening but she'll be back tomorrow with Eddie.> Tomorrow we'll have lots more arrivals to report. I'm sohappy to be here!! Off to bed shortly, I'm really tired but once again,supremely happy!>> Beth>> Moderator>> Fibrotic NSIP 06/06 Dermatomyositis 11/08>

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