Re: An old timer needs a shoulder!

[Guest guest]

Hi Stayce,

I was just wondering how things are going? When is 's test?

Please let us know the results.

Ken M

>

>

>

> Hi, all! For those that remember me.... " hello again " . For the

many

> of you that are new, I was the third person to join this listserve

> waaay back when.

>

> My son, , is now 8 yrs. old as of 12/7 and was first diagnosed

at

> birth. He has assemetry, former g-tuber, on GH and full of life!

>

> Anyway, after coming off the g-tube in April of 2003 his weight

gain

> has gone downhill. We have tried feeding therapy, nutrionists

appts.

> and just plain old BEGGING and tricking him to eat more. Anyway,

he

> has not gained weight since last May and at 34 lbs. and 43 inches

> tall, the doctors are now concerned. My fear is having to go back

to

> the g-tube. Not because I hated the g-tube or that it was a

bother,

> but just for the simple fact of having his little tummy go through

> another surgery.

>

> He will have a gut-dismotility test done very soon to see if

> something is going on there.

>

> Anyway, I thought we were past the difficult part of RSS and felt

> pretty educated on the subject, but find myself falling back to

> stress, sadness, frustration, and terribly worried!!!!!!!!!!!!!! I

> look at my little guy and just want to cry out of pure mental

> exhaustion.

>

> For those of you that are pray-ers or go to Church, could sure

> use your prayers. I appreciate this very much.

>

> I hope that your RSS situations are going well and pray for these

> little ones all the time!

>

> Stacie

> Mom to daughter, (non-RSS) and son, (RSS).