Re: time for a few questions

[Guest guest]

Mike

In general we're shooting to keep our oxygen over 90% at all times, but

in reality most of us are shooting for at least 93-94% so that dips are

still above 90%. For those of us with just PF even raising to 95-96% is

generally not a problem. Now, this differs greatly from COPD patients

where CO2 levels are such an issue so the doctors will often try to keep

them between 90 and 93% and no higher. But also the COPD patients

generally don't have the variations we do on sitting versus activity. As

I'm setting my oxygen to do general activity around the house such as

dressing or showering or putting the dishes in the dishwasher or feeding

the cats, I generally have to set it at a level that keeps me around 97%

or so just walking in order to keep me at 90% or higher just doing those

light activities. Let me use a specific example. I could walk upright

and slowly to my bedroom on 2 lpm fine. However, I would drop below 90%

if I then went through the entire process of getting my clothes and

dressing and such so I would need to set my oxygen at 3 lpm for the

entire trip. That way I will be at 97% or so walking in there, but

during the process I will drop to 90-92%.

>

> Hi yall,

> My stats still have not leveled off so I now find myself on

oxygen 24/7. So now the question is " at what level is the oxygen

enough " ? When taking supplemental oxygen do we strive for anything over

90, 95, or 98 - is there a magical number we are shooting for?

> In addition, my wife thought she had read on the caregivers

portion of this site, that someone felt on average this " 3-5 year life

expectancy " is referred to so often to indicate likely survival, applies

not to when first diagnosed but to when one first was placed on oxygen.

What do all of you say to that?

> In addition, while here in ton I have been receiving care

at MUSC. My wife and I plan on heading down to Florida for 3-5 months

right after the first of the year and were considering going to Shands

for treatment. Can anyone who has received services there please pass

on your opinions?

>

> Mike

>

[Guest guest]

Mike

Peggy hasn't spoken yet but she loves Shands and thats for someone who

hates hospitals and doctors in general.

One place I would say Shands probably stands out is in general the way

they would look out for and treat seniors as I would say they are

probably more respectful to seniors and more use to dealing with all

their problems simply because of the demographics of their patients.

This includes transplants to older persons as well.

> > >

> > > Hi yall,

> > > My stats still have not leveled off so I now find myself on

> > oxygen 24/7. So now the question is " at what level is the oxygen

> > enough " ? When taking supplemental oxygen do we strive for anything

over

> > 90, 95, or 98 - is there a magical number we are shooting for?

> > > In addition, my wife thought she had read on the caregivers

> > portion of this site, that someone felt on average this " 3-5 year

life

> > expectancy " is referred to so often to indicate likely survival,

applies

> > not to when first diagnosed but to when one first was placed on

oxygen.

> > What do all of you say to that?

> > > In addition, while here in ton I have been receiving

care

> > at MUSC. My wife and I plan on heading down to Florida for 3-5

months

> > right after the first of the year and were considering going to

Shands

> > for treatment. Can anyone who has received services there please

pass

> > on your opinions?

> > >

> > > Mike

> > >

> >

>