Re: Sick in China :(

[Guest guest]

Oh Kat, I'm sorry you had to find out this way. I hope others will chime in and

give you some great advice. I've never been in this situation so I'm at a loss.

Misty Kimble

CD - no meds

SCD - 2 + years

>

> Thanks to anyone who can help. I hope I don't discourage everyone from

visiting China, it is really beautiful here. I think if I had avoided wheat I

would have been fine. Needless to say, I'm 100% sure now that I have Celiac

disease, and Dermatitis Herpetiformis (rash associated with Celiac).

>

> Kat

>

[Guest guest]

I've never been to China (don't I wish!) but I have a couple of

thoughts for you. First, this one is if someone in your dinner

party speaks Chinese. Maybe you can ask for just plain steamed

veggies, steamed over water, nothing added. This is what I always

did with our Chinese restaurant here, mainly so DH (who has no gut

troubles) could have his Chinese food. I'd even tell them which

veggies I could handle at the moment and as long as I really stressed

the " cook over plain water, do not add anything " it would be

fine. Add some sort of bland plain meat and you won't starve.

The second idea might not work but it's an idea. My acupuncturist

spent several months in China for some advanced study a few years

ago. She doesn't have gut troubles but she said the food in the

not-very-large city where they were, was pretty much inedible. But

another of the students had been there before and discovered an

Indian restaurant down the street so that was where they ate all the

time. Of course I don't know where all you will be and what might be

available other than just Chinese, but you might see. Since there

won't be a nice SCD restaurant for you, of course you'd have to pick

and choose any place but maybe you'd have a better chance elsewhere.

Good luck, I hope you feel better soon.

[Guest guest]

I was fairly certain I was celiac, or at the very least

gluten-intolerant. But after a week here of being exposed to some

wheat in very small amounts, I still had no symptoms. So, I thought

maybe I was ok to have a bit of wheat while traveling. Now I know,

definitely not having wheat ever again for the rest of my life

Kat

Unfortunately it really IS no gluten ever again. One tiny bit can

cause an amazing amount of trouble. When I had my last colonoscopy I

had had a bite of wheat some months before (which in all these years

I have rarely done), and the doc told me I had some milk inflammation

he was seeing and that yes, it undoubtedly was from that one small

bite a few months before! Not a good idea at all for us who have

celiac problems.

[Guest guest]

I do believe it now. I was never officially diagnosed with Celiac so I started

to think I might do ok with small amounts. But now I know, absolutely no trace

of it ever.

That's amazing that even months later there was inflammation. It makes sense to

me though, since it took me over a year and a half gluten-free with 1 year of

that SCD to finally get a lot better. This past year I have not really had

digestive symptoms until now. I'm hoping I recover from this episode quickly!

Thanks,

Kat

> Unfortunately it really IS no gluten ever again. One tiny bit can

> cause an amazing amount of trouble. When I had my last colonoscopy I

> had had a bite of wheat some months before (which in all these years

> I have rarely done), and the doc told me I had some milk inflammation

> he was seeing and that yes, it undoubtedly was from that one small

> bite a few months before! Not a good idea at all for us who have

> celiac problems.

>

>

>