Guest guest Posted December 23, 2001 Report Share Posted December 23, 2001 Hi Jodi! You have joined the list of many that had complication-free surgeries. I appreciate your candor and your response. This is such a good group and I am so impressed with how soon you both returned to work! It seems so soon! I am learning here, that complications are more of the exceptions than the rule, or that complications are usually minor as opposed to major. Happy holidays to you and all your loved ones! Ann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2001 Report Share Posted December 23, 2001 Hi , Boy, you sure read me right! The more reassurance the better. I am nervous and insecure about all of this. But everyone is wonderful and the freedom from complications has been pretty amazing! Happy holidays and thank you! Ann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2003 Report Share Posted August 24, 2003 See the attached file for details Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2003 Report Share Posted August 26, 2003 Please see the attached file for details. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2003 Report Share Posted August 26, 2003 Please see the attached file for details. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2003 Report Share Posted September 3, 2003 Please see the attached file for details. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2003 Report Share Posted September 3, 2003 Please see the attached file for details. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2003 Report Share Posted September 3, 2003 Please see the attached file for details. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2003 Report Share Posted September 3, 2003 Please see the attached file for details. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2004 Report Share Posted April 12, 2004 , Hello from andria, VA! Good luck with your further testing ... talk with your doc and request the AMBRY GENETIC TESTING (done in CA) ... checks for up to 1,000 known CF genes. Katy Bean, a former member of my support group and member of this on-line support group, now in HI, has 2 kids with CF. And, both kids sweat tested negative for CF. SOME KIDS DO HAVE CF AND SWEAT TEST NEGATIVE ... have the genetic testing done by Ambry. Type in Ambry Genetics on the Internet and read about the company/test, so you're knowledgeable when you talk with your doc. Keep us posted on your child! Sincerely, Jen Chastain Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2005 Report Share Posted May 23, 2005 , I think if you go under 'edit membership' you can change your profile so that your name shows up as rather than just 'R'. Glad we were able to make you feel better:-) Mission accomplished. Sara > Thanks for all the support and advice you guys have given me so far! > It will be great to chat wih everyone throughout my (and everyone > else's) operation and recovery. And also - do you know how to change > the username thing? Mine shows up as just " R " for some reason and I > want to change it. > > <3, > > Oh yes, my mom is a member too and signed me up on the June surgery > calender! June 3! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2005 Report Share Posted May 23, 2005 If you look at the top of the page..there is a title bar for the support group. Right above that there is a little link " Edit Membership. " Once there, there is an option to change username. The username is what shows up when you post a message. let me know if this does not work! ~~ > Thanks for all the support and advice you guys have given me so far! > It will be great to chat wih everyone throughout my (and everyone > else's) operation and recovery. And also - do you know how to change > the username thing? Mine shows up as just " R " for some reason and I > want to change it. > > <3, > > Oh yes, my mom is a member too and signed me up on the June surgery > calender! June 3! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2005 Report Share Posted May 23, 2005 Wow Sara...I think we posted that at the same time lol! > > Thanks for all the support and advice you guys have given me so far! > > It will be great to chat wih everyone throughout my (and everyone > > else's) operation and recovery. And also - do you know how to change > > the username thing? Mine shows up as just " R " for some reason and I > > want to change it. > > > > <3, > > > > Oh yes, my mom is a member too and signed me up on the June surgery > > calender! June 3! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2005 Report Share Posted May 24, 2005 , great minds think alike:-) > > > Thanks for all the support and advice you guys have given me so > far! > > > It will be great to chat wih everyone throughout my (and > everyone > > > else's) operation and recovery. And also - do you know how to > change > > > the username thing? Mine shows up as just " R " for some reason > and I > > > want to change it. > > > > > > <3, > > > > > > Oh yes, my mom is a member too and signed me up on the June > surgery > > > calender! June 3! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2005 Report Share Posted June 27, 2005 mimi!! good luck at your visit tomorrow!! ((HUGS)) jodie c Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2006 Report Share Posted July 7, 2006 Glad I could help, . I think you will be very happy with Dr. Van Bosse and it is wonderful that he accepts your insurance. The whole process is trying enough at times without adding money worries into the mix. My heart breaks for families that have to pay out of pocket, but have no choice because they are doing the best thing for their child. As for the consultation, I can't say for sure whether you will have to pay out of pocket, but I would imagine not. If there is any charge at all, which there may not be, he should be able to bill your insurance company. Our first visit with Dr. Van Bosse was an actual cast change ( had his first casts applied by a local ortopaedist 12 hours after he was born. It was unnecessary and I would not recommend it), so we never had a consultation, per se. I wish you the best of luck and please feel free to contact me. Anne > > Anne, > > You are truly a lifesaver. I needed to get your email tonight! > > Knowing how pleased you are with Dr. Van Bosse has made a world of > difference to me. I was so scared that because of my financial > situation I would be left without the best care. I am going to > schedule my consultation with him as soon as I get another ultrasound. > > Did you have to pay out of pocket for your initial consultation? > > sounds like he is doing very well. I am so happy for you and I > hope I am as happy as you 4 months in! > > Thank you again, > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2006 Report Share Posted August 3, 2006 I really enjoyed meeting you and your husband and didn't get a chance to see you after you were done with your consultation. Who did you meet and what did you think? I hope it went well and you feel a little more comfortable. I will email you off board when I have a chance and give you my information again. As I said the other day, don't hesitate to contact me if you need to/want to. As for , Dr. VB said that we could begin to reduce the time in the DBB, so we're no longer 23/7. YAY! We're going to do 20/7 for a month and then 18/7 for another month and then VB will see him again. I'm actually a little nervous about it - so afraid of a relapse. I've been like the FAB gestapo with him and really only had him out of the brace when I would bathe him. He seems to be enjoying his new found freedom, though. Enjoy the rest of your pregnancy. It's not long now... -Anne > > Just a thank you to Anne!!!! You were so helpful at the consultation for Dr. Van Bosse (cannot find your email ). I could not have gotten through yesterday without your help and patience! Thank you!!!!!!! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2006 Report Share Posted August 3, 2006 definitely send me your email again! pregnancy makes you do silly things! Re: Thank You! I really enjoyed meeting you and your husband and didn't get a chance to see you after you were done with your consultation. Who did you meet and what did you think? I hope it went well and you feel a little more comfortable. I will email you off board when I have a chance and give you my information again. As I said the other day, don't hesitate to contact me if you need to/want to. As for , Dr. VB said that we could begin to reduce the time in the DBB, so we're no longer 23/7. YAY! We're going to do 20/7 for a month and then 18/7 for another month and then VB will see him again. I'm actually a little nervous about it - so afraid of a relapse. I've been like the FAB gestapo with him and really only had him out of the brace when I would bathe him. He seems to be enjoying his new found freedom, though. Enjoy the rest of your pregnancy. It's not long now... -Anne > > Just a thank you to Anne!!!! You were so helpful at the consultation for Dr. Van Bosse (cannot find your email ). I could not have gotten through yesterday without your help and patience! Thank you!!!!!!! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2009 Report Share Posted October 11, 2009 MB.... I'm late sending my atta-girl to you! These accomplishments feel so good and encourage the rest of us... Hugs. MamaSher; 71, IPF 3-2006, OR.Don't fret about tomorrow, God is already there! Thank you! Thank you everyone for your congratulations and encouragement. This is one of the reasons I love this group!! Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 Quote Link to comment Share on other sites More sharing options...
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